Reply to lone wolf
Either you do not have lupus or you are living in an alternate reality. Your comments would provide an amusing read if the subject was not so devastatingly serious.
I too, CHOOSE to live well with lupus. I encourage myself daily to do things that are good for my body. I eat well, I exercise in the pool or walk on the treadmill, sometimes I even take a Zumba class because exercise lifts the spirits!
I realize there are many faces of lupus and some are dealt a tougher hand than others… I feel that a positive mental attitude and recognizing individual limits are key.
People do what is good for them and the way they feel on a daily basis.
Hell if I’m going to sit on my backside if I’m feeling good to get out and enjoy a theme park with my girls! Yes, I’ll be exhausted later… But so what? I’ll sleep when I’m dead…
I barely make comments on this site, but Linda’s opinion of lone wolf was /is unnecessary. How very rude.
Lone wolf, I salute your journey, long may it continue.
I'm glad for all you girls who can accomplish so much in a day. I don't feel like I sit back and complain all day. I do what I can and I don't think anyone can say that I can be "wonder woman" if I wanted to If I had a choice I would not have given up my business that I absolutely loved, just to sit and feel sorry for myself.
Cindy.
I feel like an idiot, but what are these "spoons" some people mention, I have had lupus for 20 yrs and never heard it. so if someone could clarify this for me I would be grateful..........purrs..catspaw1955
well freightliner , I feel like a real cry baby some times...and I feel very misunderstood, you just wish these people tht are able to walk around and do things, could feel for a minute the pain we endure every day.......see I am whining again..well I think any of us with lupus are all WONDER WOMEN and let us not forget the WONDER MEN either..purrs..catspaw1955
crying good for our souls, I work with the public after all the oh doesn't that hurt or we are praying for u I go home and cry
catspaw1955, Google "spoon theory"
catspaw1955 said:
I feel like an idiot, but what are these "spoons" some people mention, I have had lupus for 20 yrs and never heard it. so if someone could clarify this for me I would be grateful..........purrs..catspaw1955
dear lone wolf you are absolutely right. It seems to me anyone that deals with Lupus SLE or not with a modicum of grace should be commended. Thank you for opening up the idea of other pathways to take :) God Bless Julie
lone wolf said:
Hello Linda:
Your comments are hurtful and very inappropriate. I am a physician, quite aware of the serious nature of this subject. I have spent my life since being diagnosed following another path, which has proven successful for me. I choose to write about the positive aspects of the healing possibilities that are all around us as opposed to being so negative and victimized by lupus. It is unfortunate that you cannot see the good in what I post, and it is also deeply insulting to intimate that I am lying about my journey. It takes enormous strength and fortitude to really live well with lupus. Courageous choices and deep convictions regarding what is right for me should serve as an example of how a person can rise above the norm that conventional medicine offers. I would hope that the administrator of this site would strike your insulting comments and remind you and others that there are many roads to dealing with lupus and how a person chooses to live their life. Be Well. lone wolf
Hey Cindy.... You rock :)
freightliner said:
I'm glad for all you girls who can accomplish so much in a day. I don't feel like I sit back and complain all day. I do what I can and I don't think anyone can say that I can be "wonder woman" if I wanted to If I had a choice I would not have given up my business that I absolutely loved, just to sit and feel sorry for myself.
Cindy.
I just love the spoons, mine are soup spoons, sterling silver....and I will be very careful not to use them all in one dayl...it is just a fabulous way for me to decide if I can do the wash, or wash my hair,,,,,,,,and using it to explain lupus to the laymen it is a wonderful way to get people to understand about lupus........purrs..catspaw1955
LupusRRJ said:
catspaw1955, Google "spoon theory"
catspaw1955 said:I feel like an idiot, but what are these "spoons" some people mention, I have had lupus for 20 yrs and never heard it. so if someone could clarify this for me I would be grateful..........purrs..catspaw1955
Hey !!! WAIT a second , let's not go at one another in this way ????????????????????????? We all are here for the same reason's ( understanding and support when other's don't give us a chance ) . Seriously ? Pull your thought's together and let's all have attitude about LUPUS ,not one another ? Everyone at different time's go through stages where some may have been through and other's that have not made it there yet &may not never get to the stage of what you / we/ me/ . The negetive comment's are not WELCOMED here !!!! Sorry to be aggressive /toned up, but PLEASE , i have been on this sit for soon be 4year's and it is easy to do , if there is an negetive comment post to you," Don't take it PERSONAL", ( we are family here with a comfortable place to talk with someone that knows about some what the experience is about !!!! ) Come on my family Living with LUPUS let's be HAPPY for once ??????????????????????????...Beverly L.
lone wolf said:
Hello Linda
:
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ur comments ae hurrtful and very inapprorpiate. Ia m a physician, quite aware of the serious nature of this subject. I have spent my life since being diagnosed following another path, which has proven successful for me. I choose to write about the positive aspects of the healing possibilities that are all around us as opposed to being so negative and victimized by lupus. It is unfortunate that you cannot see the good in what I post, and it is also deeply insulting to intimate that I am lying about my journey. It takes enormous strength and fortitude to really live well with lupus. Courageous choices and deep convictions regarding what is right for me should serve as an example of how a person can rise above the norm that conventional medicine offers. I would hope that the administrator of this site would strike your insulting comments and remind you and others that there are many roads to dealing with lupus and how a person chooses to live their life. Be Well. lone wolf
Hello once again lone wolf. First, I will take this opportunity to apologize for my remarks. If I may, I would like to explain how my feelings erupted after reading your post. For 20 years, I also had a positive attitude, an extraordinary busy and rewarding life. I was unable to go the natural path to treat the lupus but I was able to work out 3 times a week with a personal trainer and teach a Sunday School class. One day about 5years ago I began coughing and it continued for a week. Finally I was hospitalized for 2months where they did a lung biopsy. The only thing keeping me alive, according to the specialists was the massive doses of steroids I was give via IV, orally and inhalation. They never could find out what caused the coughing and I was sent home, where I began a slow downhill slide. The day I read your post, in the two weeks prior, I was diagnosed with adrenal insufficiency, osteoporosis, osteoarthritis and uncontrolled blood pressure. I am barely able to walk and have to make constant trips to the ER for adrenal failure, which left untreated would result in my death. Your post made me feel that if I just tried harder or had a better attitude everything would be fine. Well, everything will never be “fine”. I have days when I can be up for an hour and move slowly in my home. My faith keeps me going and this is probably a bad time to be posting as the pain meds haven’t helped tonight. I do have days when I talk and laugh with friends, read my favorite authors, listen to music, etc.But please try and realize that because of lupus, many of us have developed even worse diseases. We cannot and will not be able to lead the life you lead. For the first 20 years, I led that life and I don’t want to frighten any of you. For those 20 years the lupus was mild and I led a normal life. I think the majority of you will be able to do the same…whether you choose a traditional or a non-traditional form of treatment. Again, I apologize for hurting your feelings.