I was SO happy. After only a few weeks on plaquenil, I was starting to feel almost normal, and then...the CRASH! I have done nothing but sleep for the past 3 days. Is that normal??? Is it a result of over-exerting too soon? Was the improvement all in my head? Wishful thinking? I don't know what to think!
I've been on plaquenil for almost 4 months now. I haven't seen much of a change. I have good days and bad dayd and I find myself pushing to much on my good days that I am laid up for several days afterwards. I helped a friend plan a birthday party this past week and now I have been down for two days. I am still trying to remind myself to take it easy and not to push. I think that has been the hardest adjustment for me.
Jazmin ... Let me know what you find. I am starting Plaquenil next week and have high hopes of it turning things around for me. You mention you are sleeping more - do you have the pain, as well? Maybe you did do too much (feeling better) like I would do and we may possibly need to refrain and stay in control of the things we do if that makes sense. Maybe still take it easy, especially since you have not been on the med that long (they say it can take up to six month for the full effect). I am just motivated that you are already feeling better. Focus on the good results and slow down a bit for now and, of course, check with your Rheumy. Let me know what you find. Hugs, Dee
Louters - Ditto - I have to "plan" to plan .. Went to dinner and a movie with my sons Saturday evening (big outing for me). Dinner went well; had to leave halfway through the movie I was in so much pain lol... Just stood us, said "That's it" and left. I hate being "half" a person, but I did try so I patted myself on the back. Usually, I would not go and miss out. Am hoping the Plaquenil helps; give it a couple more months to kick in .. Hugs, Dee
Louters said:
I've been on plaquenil for almost 4 months now. I haven't seen much of a change. I have good days and bad dayd and I find myself pushing to much on my good days that I am laid up for several days afterwards. I helped a friend plan a birthday party this past week and now I have been down for two days. I am still trying to remind myself to take it easy and not to push. I think that has been the hardest adjustment for me.
Hi Dee...
I do have pain in my joints, muscles, skin...it's worst at night and in the morning. It doesn't seem to be quite as bad as it had been, though. For the past several years, I just never felt healthy. Last week I had a few days when I did feel healthy(ish) and, being that this is the most hectic time in my job, I was pushing myself as hard as I had done before the "curse" took over. Once I got home, and the adrenaline wasn't rushing, I would crash for the remainder of the day. Then I'd start a new day, push myself, then crash again. After 3 or 4 days of that, the BIG crash hit! I have my next rheumy appointment in a couple of days, and will discuss the issue with him. I'll keep you posted. It would be nice to know that the meds are having some affect...even it comes and goes, for now. It makes me hopeful for the long term benefits!
Tootles said:
Jazmin ... Let me know what you find. I am starting Plaquenil next week and have high hopes of it turning things around for me. You mention you are sleeping more - do you have the pain, as well? Maybe you did do too much (feeling better) like I would do and we may possibly need to refrain and stay in control of the things we do if that makes sense. Maybe still take it easy, especially since you have not been on the med that long (they say it can take up to six month for the full effect). I am just motivated that you are already feeling better. Focus on the good results and slow down a bit for now and, of course, check with your Rheumy. Let me know what you find. Hugs, Dee
Louters...
My rheumy had told me that it could take several months before I started feeling any differently. I was shocked to have these spurts of feeling well and energized! Seeing as how I crashed so hard, maybe I was imagining the improvement because I needed it so badly! Anyway, I think I am going to follow the sage advice of you and Tootles, and not push myself. I'm like you, though, in that it is a huge adjustment for me. Before I started feeling so unwell, I used to gogogogogo! I'm hoping I will be able to return to at least a little of that, eventually!
Louters said:
I've been on plaquenil for almost 4 months now. I haven't seen much of a change. I have good days and bad dayd and I find myself pushing to much on my good days that I am laid up for several days afterwards. I helped a friend plan a birthday party this past week and now I have been down for two days. I am still trying to remind myself to take it easy and not to push. I think that has been the hardest adjustment for me.