Well, I was scheduled for my first benlysta infusion last tues but I ended up in the ER with the most horrible head pain ever!!! they did a spinal tap and had very abnormal results so they admitted me and started treatment for bacterial meningitis. Well the bacteria didn’t grow so thank goodness it was negative.i was in the hospital for 3days they did numerous tests and all negative.so I have an appt with my reumy on Wednesday and im actually very lucky too have a great reumy!! He’s going through everything and trying too figure it out?? And well do my first benlysta in a week. I’m going back too work Monday night and hope im ready and don’t have a headache like that again!!! Wish me luck!!
I'm glad you didn't have meningitis! Good luck with the Benlysta and I hope that headache doesn't come back. Head pain is awful.
Sharon
I am sorry you had to go through that awful ordeal, but so thankful for a good outcome. You are indeed blessed to have a good rheumy. And I pray the Benlysta will begin to help soon. Take one day at a time..happier days ahead!