awww the choking part that I have experienced! I almost ran out of breath trying to gef the food down. Even the water hurt too much with food blocked in my mid chest. Terrible and scary!
Thank you for the tips!
Love
Gehlay
Ballerina8876 said:
As the others have stated, I’d have a look into Sjogren’s. I get the feeling when I eat pancakes, but only pancakes. It’ weird. I just make sure I take small bites and chew longer. I would let your doctor know and make sure they look into it since it can become a choking hazard.
hi tina! Thank you for the tips! Ill always have water within my reach!
tinapet said:
I get that but mine feels more stuck in my throat. It scares me. I know it’s the Sjogren’s that most of us have anyway. I was told to drink slowly a glass of water before I eat and to be sure to have a glass of something to drink ANY TIME I eat anything to be sure I can get it down. Some times when I feel really dry I drink something carbonated to give the food that extra push down my throat.
If it continues though you should have it evaluated by your doctor just to be sure it’s not something else causing it.
hi Trisha! You perfectly described what i have been feeling lately :(. Feeling of fullness and bloating are common to my days after meals. Thanks so much for the tips
Love
Gehlay
Trisha said:
Hi Gehlay
I get the feeling you describe after I eat. I have to remember to slow down, and chew slowly. Its worse when I’m eating processed foods and bread. Makes me feel really full, and it can be painful and sometimes I feel bloated. I have trouble taking pills too, and I hate that feeling trying to drink more before it starts disolving and burning yuck!
hello! Thank you for your feedback. Ill try to have it checked by my docs
Jenniferforhealing said:
I have this problem. For me, it is caused by acid build up from GERD & Barrett’s Esophagus…which narrows the esophageal tube. I have to have my esophagus dilated every so often as this occurs. It is done through an upper endoscopy. It is due to Lupus/Sjogren’s. I suspect you may be dealing with the same issue if you have been diagnosed with either or both. Talk to your gastro doc about this. The dilation does wonders!
woah! That is so scary having something in your lungs beside air! That forced me to reconsider telling my docs about this! Thank you for sharing yourexperience!
Love
Gehlay
USAGURL said:
Check it out right away. I had 2 instance of aspirating food and pills from this symptom–stupified the doctors who gave me all kinds of tests. I had two bronchoscopies to remove the pills and a piece of “In & Out Burger.” Turned out to be Sjorgren’s. We lupeys can get secondary autoimmune diseases. See Tez’s link, she always finds great ones.
Watch out for yeast infections in your mouth. Yeast is opportunistic and loves dry mouths. Also, teeth rot from dry mouth too.
Once diagnosed with Sjogren’s, I took a medication called Salagen (Pilocarpine). I take it 5-6 times a day to help stimulate the saliva I have left. Have to suck lemon drops or chew sugarless gum during the day. At meal time it works very well, but still have liquids handy . Pretty expensive med.
Be careful. Food and liquids and pills can end up in your lungs like it did for me.
i choke on bread too! Bad feeling! Thank you for sharing your experience! polymyositis is another scary thought on my list!
Iamwiam said:
I had a similar problem around the time I was diagnosed. I have an overlapping disease called Polymyositis. I lost muscle and strength. I noticed when I was eating starchy foods. I now take two Zantec a day, which helps a lot.
hello DeAnne! ill keep that in mind no more eating 3 hours before bedtime… Ahhhh lots of disciine is needed here. Thanks much!
whathappensinvegas said:
Just to add the USAGrls comment, do not eat up to 3 hours priorto sleep. Lying flat can worsen the acid reflux. Asprating into your lungs while you lay flow or sleep can lead to pneumnis. It’s a small change that can make a big change.
XOXO
DeAnne
USAGURL said:
Check it out right away. I had 2 instance of aspirating food and pills from this symptom–stupified the doctors who gave me all kinds of tests. I had two bronchoscopies to remove the pills and a piece of “In & Out Burger.” Turned out to be Sjorgren’s. We lupeys can get secondary autoimmune diseases. See Tez’s link, she always finds great ones.
Watch out for yeast infections in your mouth. Yeast is opportunistic and loves dry mouths. Also, teeth rot from dry mouth too.
Once diagnosed with Sjogren’s, I took a medication called Salagen (Pilocarpine). I take it 5-6 times a day to help stimulate the saliva I have left. Have to suck lemon drops or chew sugarless gum during the day. At meal time it works very well, but still have liquids handy . Pretty expensive med.
Be careful. Food and liquids and pills can end up in your lungs like it did for me.
thanks for that info for me as well...since i figured mine was from dry mouth and i just swallow water after a bite.So i might actually have it going on with me as well.
I do know that when i went with my brother to have it done, they did not do it they way they are now but that was 20 yrs ago. He was awake kind of...i hold his hand while they slowly stretched it 3/4 of way down...took about hour since was slow going.
Even then...he still had horrible time eating foods and yes he was very skinny. I apologize as i had not thought it was lupus related and see it can be now. My nephew has psoriatic arthritis and he has exactly like my brother but even his case is not as bad since he does not vomit at most meals like my poor brother did. it just got to be accepted as normal thing for poor guy...
THey made such strides since he died or since i was diagnosed even...gives me great hope for those young now that they might find a cure for you!
Gehlay said:
hello! Thank you for your feedback. Ill try to have it checked by my docs :) Jenniferforhealing said:
I have this problem. For me, it is caused by acid build up from GERD & Barrett's Esophagus...which narrows the esophageal tube. I have to have my esophagus dilated every so often as this occurs. It is done through an upper endoscopy. It is due to Lupus/Sjogren's. I suspect you may be dealing with the same issue if you have been diagnosed with either or both. Talk to your gastro doc about this. The dilation does wonders!
Sorry i'm late replying my friend...not to good at the mo the same as we all.
Oh Gehlay please be straight with them because they should consider your health besides meds and not being truthful with them..other issues could be occuring which they and yourself know nothing off, then your meds come seconds in being discussed and nobody in life as to take meds they don't want to and if you want your pred either lowered or want off it, your specialist should be working with you properly.
Sjogrens and is bad and i'm not going to lye but it's to what extent you have, with me it's affected my eyes, mouth, organs etc the list goes on and it's over taken my body besides the Lupus but you really should be tested to make sure.
This pic and link if you want to read it says what it causes, it's as bad having Lupus but you have to keep high maintenance on yourself for what it takes from we.
Gahlay...sorry with how my reply as showed at the bottom, so please excuse is :)
Gehlay said
Hello Terri - To be honest, I try to not tell my doctors of how I truly feel sometimes.. :) I know I could be a bad patient at times... My last check up I told them I was ok and symptoms free so they could eliminate my pred meds... I was able to request removal of plaquenil but the pred is still in my company. My esr is still out of the normal range so my doctor maintained my pred prescription. How I long to get rid of pred from my daily life but I guess it will take a while. And now I cant afford to hae one more illness (sjogrens - this sucks as i read about it :(. Love Gehlay
Tez_20 said:
Hello Gehlay,
I'd ask about seeing if you do have sjogrens plus Ann is right where Ulcers can occur, as like i mentioned earlier there's so many issues which can cause this plus DeAnne as also given some great advice on how to help it.
I would definitely ask though about sjogrens :) xxx
Sorry to hear you suffer this also...it's a terrible thing and really hurts when it happens plus i hope your keeping ok best possible with your health.
Love Terri xxx
stormgirl said:
Hi,
Wish I had some tips on this but I do experience this as well but usually when a flare is begining for myself. Hang in there friend.
