Hello, wearing white long slevee shirts help, just make sure that it is very lite weight. And spend your time out at a minimum that will also help. Don’t try to spend a lot of time out all at one time, put some rest time in your outing. Take breaks where ever you are, go inside and rest , then go back outside. It take the stress off …Beverly L.
Hi, do know the name of the wipes? There are somedays that I make myself take showers, and it really is painful to stand most of those days. I want to take a sit down bath so bad, but of course I can't get out the tube, it is like my body says,"No I don't want to stand up, just sit , and stay. " The last time I took a bath , my daughter had to help me get out of the tube, that was so funny, we both laughed so hard , until I started to cry. We both could not get me out of the tube!! But we did and that was the last time for me to sit in the tube, so Please remember the name of the wipes? I think this is something that I want to invest in, Thanks... whathappensinvegas said:
Grandma,
They make some very good real cloth disposable washcloths for those days when you cannot shower. Some days I simply don't have the energy, but like you hate not taking a shower. CVS also makes a foaming shampoo that does not require rinsing and works surprisingly well. It has really helped with my hair loss as my hairdresser told me that washing every day was contributing to the loss. When I do shampoo I use a very good shampoo and it's starting to look a lot better.
grandma14 said:A nurse told me that lupus would be very hard on my skin. She said that if I could stand it I should take a shower only every other day and slather myself all over with a very good lotion every day (I use Curel). Sometimes I can't stand not having a shower but I use very little soap and then unscented Dove. I cannot stand to go more than 2 days without shampooing my hair even if it means having the itchy scalp. I have a problem with fatigue anyway but being outside does make it worse. It doesn't matter if it's sunny or not - if I go outside then I'm out like a light.
Hello, is there a medicine for this? I have this also, but my doctor never have given me anything for it. I do and have asked but he just say it will go away by it self. So yes , I just take that answer . But really - is there something for this?? Please let me know, Thanks…Beverly L.
Corrina said:
I get itchy skin also. Feels like I itch everywhere. The more I scratch it the more it itches and swells up. I have taken allergy meds to help. also using Ice or hand sanitizer. I guess the alcohol helps relieve the itch. Not sure why it happens but it does.
I also so a comment on HBP and raynauds. I have raynauds and just started having hbp. I am going to ask about the medication for raynauds. Worth a try. Thanks for posting.
I have raynauds and hbp. One of the drugs I take for hbp is Norvasc, it is a calcium channel blocker. And since starting it my bp is normal and my fingers are not purple. It stops the vaso spasms in the capillaries. When the capillaries spasm it doesn't allow blood flow to the finger tips resulting in cold purple fingers. My hands are still cool but nothing like before. :)
Wendy
Corrina said:
I get itchy skin also. Feels like I itch everywhere. The more I scratch it the more it itches and swells up. I have taken allergy meds to help. also using Ice or hand sanitizer. I guess the alcohol helps relieve the itch. Not sure why it happens but it does.
I also so a comment on HBP and raynauds. I have raynauds and just started having hbp. I am going to ask about the medication for raynauds. Worth a try. Thanks for posting.
I used to take glucophage. Unfortunately not only did it not help with my weight, but it also made me sick to my stomach. It got to the point where I would vomit so violently, I couldn't even move from the bathroom floor. I don't want to go through that again.
Ann A. said:
Hey Natestiredmom.
How are they treating your PCOS? Did you see what someone wrote on the discussion yesterday about how they are now treating PCOS with glucophage? Seems like the glucophage would help with the weight loss. Might be something to talk with the doc about. Sorry that you are dealing with so much and I am pretty sure that another med is not on your wish list.
last night I went for my walk, but made sure to slather up in sunblock and had on a long sleeve shirt. My walk was probably no more than half hour to 40 min. What a difference it made! While I'm very tired this morning and moving slow, I don't feel half as bad as I have felt when I tried doing the same thing without protecting myself.
Christy said:
Yep, as I'm slowly learning if I don't cover up and take care of myself ill feel sick, skin is itchy for days and ill get a low grade fever.
Remember to take breaks and go inside, drink alot of water. Wear a big hat and sunglasses and just trot around like a movie star!!
I saw a Vascular Surgeon yesterday that my Rheumy sent me to, not sure why?? He said I do have Raynauds and just added to keep taking my Procardia and start taking baby aspirin, after my TMJ surgery next week though. I too have the constant itching that's driving me crazy and didn't think to ask him but I go back tomorrow to see my Rheumy and will definitely ask her. I will also get her final diagnosis if I have Lupus or not. I can't imagine her saying I don't with all that is going on with me that is right down the list of Lupus symptoms. The trip to the various doctors I see is a two hour drive so I'm really feeling it today! I could barely get out of bed this morning with soooo much pain in my back and legs.
Does anyone here have trouble with a bad taste in your mouth all the time?? I eat peppermints like crazy and drink something all the time to try to moisten my mouth and help with the taste but nothing works. It used to be just in the morning for awhile and I thought it was because I had my mouth open a lot when I slept but now it's all day and driving me nuts! If I didn't have my pain meds I probably would be spending the day in bed, miserable. Is it a possible side effect from the Procardia as that's the only new med that I'm taking.
Also in one of the many blood tests the Rheumy took at the beginning of my visits to her, a certain white blood cell called MGUS showed up. I did read that it can be associated with auto-immune disorders like Lupus so I was wondering if anyone here also has this. I have to be checked out every 6 months now by an oncologist to be sure it doesn't turn into bone cancer. I have so much pain in my left leg too that of course I think of that MGUS and wonder if there's more to the pain than Fibromyalgia or Lupus.
Hi, Thanks Ann A, I have one , it is okay !!!! i do use it sometimes, exspecially when am on that thought of wanting to just sit in the tub. ....Beverly L.
Ann A. said:
@ Beverly,
I don't know if this is something that you can use. If not please ignore it.
Because of the knee replacement surgeries and the broken leg, I have experienced not being able to get in and out of the tub or to stand up and shower. During those times, I love my transfer bench. One set of legs goes in the tub and the other set on the floor. I back up and sit down and then bring my legs into the tub (and yes my daughter has had to move them in an out for me) and I have had to avoid wetting one leg. So I use a handheld shower head so that I can direct the water where I want it.
Ok, my appt. with my derm is another 2 weeks away, but I'm curious about this redness. The thing is, it doesn't itch and actually doesn't appear as prominent if I'm either inside or wearing sunblock on my face. But if I'm outside for as little as 10 min without any protection on my face, sure enough a red splotch appears only on the right side of my cheekbone. It looks like i have a sunburn. Does a lupus rash act like that? Does it start slowly or come on all of a sudden? Does it come and go depending on where you are (indoors or out?) Boy this is frustrating!!
For me this is yes to all your questions. I get rashes WITH sunblock. I have areas where it never goes away or gets better. Oh, and I have never been told to see a dermatologist. I had one doctor that I love tell me that it was up to me if I wanted to see a dermie and see if there was anything to help. I had asked him. In his opinion he hadn't seen much help in his patients that went to a dermie. He told me to look at it only from my viewpoint as to whether a little help meant a great deal to me or not. For me at my age, with my problems it just doesn't matter. I have lost all resemblance to the young Rita. I was thin, good bod, energetic, fun, and a go getter. This is fat Rita with facial paralysis due to Bell's Palsy, back problems, knee problems plus lupus, etc. I am NOT feeling sorry for myself but I am realistic. I still am fun but not in the same way. I can't walk a whole lot some days depending on the weather, etc. Sooo, what you are facing...if it is lupus rash....may or may not be helped a lot. If it is not helped a whole lot then there are those of us who will be your support as you learn to adjust. I am lucky because I have a husband, 3 sons, 2 wonderful DILs, 4 grandchildren, other family and tons of friends who could care less what I look like as I try to look my best. Both of my extended family (including in laws) have been the greatest to me. I have learned that everyone does not have this support so I try to reach out to help others going through whatever their crisis or issues happen to be. Hang in there Natesmom. No matter how you look, you are very special! Hugs, Reet