I am new to the group but have received the warmest reception. I am wondering what types of doctors you see for your Lupus, or your Lupus symptoms.
I have been seeing a Neurologist for almost two years...because I was told for almost 2 years that I have MS, oh, and I was also told that this was all in my subconscience (both wrong, of course!!!!)...I also see a pain management doctor, a urologist, neuro opthamologist, psychologist, ENT, pulmonologist, and a pcp (which I am not sure where his head has been lately). And now I am also seeing a Rheumatologist, of course!!!
I am wondering if any of you see a Neurologist and Rheumatologist, and/or what other doctors you may still see.
ENT, neurologist, 3 different orthopedists, hematologist, infectious disease, rheumatologist, soon to restart nephrologist. Wish they had ONE doctor to take care of everything
I see the following doctors and they all have a part in my treatment. Pulmonologist, Neurologist, Rheumatologist, hematologist, General Practioner , Vascular Doctor and Dermatologist.
I have neuropathy in my legs and feet also have been having issues with my arms feeling heavy and my hands and fingers going numb (dropping alot of things). I can't stand my Rheumatologist and am in the process of finding another one. If I had to choose between the two doctors I would pick my neurologist 100% of the time...
aboutmygirls said:
So you both still see a NEUROLOGIST, even though you see a RHEUMATOLOGIST.
Do you mind if I ask what type of neurological problems/issues either of you have?
Sorry, I dont mean to be nosey but I am just frustrated with EVERYTHING and trying to figure out my next move.
Thanks for the replies....and have a wonderful day :)
I have a large MCA aneurism and a complex migraine disorder - my rheumie had referred me to a neurologist for help when I had acute problems (now under control)- now he acts only as a consultant For the diagnosis of MS the neurologist is considered the expert and in your case you probably need both actively involved since you have multiple auto-immune problems
i see an internist as my main doc, a pulmonologist, rheumetologist, orthopedic surgeon, psychiatrist, counselor...hmmm neurologist but am without one right now---need one for the restless leg syndrome and to keep migraines away
Hey Janice....do you know what helps with my restless leg syndrome? HONEST TO GOODNESS....xanax!!!! And it doesnt even have to be a high dose...just a lose dose works.
I started getting restless leg syndrome...but all over my entire body....when I took prednisone. I suffered from it for years and never said anything to a doctor. One day my pcp was prescribing a round of steroids for my asthma and said "you might get restless legs on this"....I have had asthma since I was 12 and was experiencing this for years so I told him this and he said....xanax will stop it. I couldnt believe how well it worked. I now take xanax for depression and anxiety also....but I dont have rls anymore :)
Have you ever been on xanax???
janice said:
i see an internist as my main doc, a pulmonologist, rheumetologist, orthopedic surgeon, psychiatrist, counselor...hmmm neurologist but am without one right now---need one for the restless leg syndrome and to keep migraines away
Wow i didn't know about this. I have the worst case of rls---it is so painful! And like you I didn't get help for it for a long time. i didn't think there was a tx for it bc my mom had it for ever and back then there was nothing we could take. when i got it i would get up and take a hot bath and that worked for a little while. But mostly I just cried till around 5 am and then i would fall asleep for a couple of hours. I finally went to the doc and started requip. Finally! relief.
But I don't think I have any xanax treatment to compare it to. I have had prescription for it but not in a while---they don't want me to take it bc they are afraid i will get addicted.
Requip works very well, but i have had to increase it and am on such a high dose I am afraid that someday they will have to try something else...i will keep this in mind! thank you for sharing!! rls is awfulllll, right?