What can I do to have more energy?

I woke up feeling really weak… My arms and legs are heavy… I feel like I want to just sleep… I had to go home from work… I don’t know what to do… My son is mad at me because I had to go home and lay down… He said I messed up his summer :frowning: I feel so bad…

Hi Shae,

To rebuild what energy you can is get as much rest as you can and by your symptoms it sounds like a flare may be coming on...and i'm so sorry t hear what your son said.

You definitely need though to pace your daily life into a routine which helps your body...i mentioned this i think to you before because you was worried at school then...alot of member's have done it and found it better.

Do takecare and all my love Terry xxxx

I’m sorry you are feeling so bad. I’m actually in the same boat! I have been feeling horrible since the 4th of July. I went out in the sun, and forgot to put up my umbrella for a 10 min walk. I had on pants at the time, and sunblock, but with the high temps it didn’t work. So I started flaring, I lost my appetite,and was in so much pain. Today I woke up and watched some tv, my son had to make me lunch, and I only ate half. I took my meds, and went to sleep. I just woke up, I feel a little better but still achy. I wish there was something that we could take for energy. My iron is low, so I take iron twice a day as my doctor prescribed, but if I’m flaring it’s no help. I was under the impression that steroids would give you back your energy, but I’m staying away from them until it’s a must. When I’m feeling this way I just try to do less, because I usually feel horrible after I over do it. I’m sorry to hear about your son. I try to talk to my kids about what I’m going through without scaring them, and I’m finding it difficult to get them to understand. If I find any helpful tips on energy I will post them for you.

He is 11 years old and he always thinks his summers messed up when things don’t go his way … Lol… I came home and tales to him and then rested, I feel a little better… You are right I’m going to have to take my time and not over do things… I’m going to cut down my days at work and when I start feeling bad rest…I have always been active and over do everything… But it’s getting to me… Thank u:) I talk to my husband and he try’s to understand… But he doesn’t …

Can anyone explain what is going on inside our bodies when we feel so tired and brain dead?

Oh Bless you Shae....about talking to your hubby (but he does'nt).

Shae i used to be active like yourself and with OCD ontop does'nt help one bit and in the last 12mths alone lupus as took me down and i'm very weak now...it took some mastering on my part to slow my life down but i've got there and also manage, so please try and do the same and if you need to rest then rest as it's very important to us all. xxx

I’m scared, there are days that I can’t even think,I can’t even remember a conversation … It’s like I’m talking and oh look a kitty! Wait what was I saying? Lol … Also my husbands says stuff like you were ok when you woke up… How can you be sick now ? Can your body feel like that so fast? He makes me feel like I’m crazy …my daughter is 18 years old and is like wow mom your in bed again? Well she is in nursing school so I made her print info about lupus and to her to tell me what she thought about it…, well she is off my back and being niceThank God… Thank you everyone it’s good to know that I have friends in my life that understand…

I think that the men in our lives just need a little education on the subject, because I’m going through the same thing in my new relationship. I guess they feel as though we don’t look sick, that we are fine. They have a misconception of what illness looks like. I have been seeing my boyfriend for the past 7 months, and he gets upset when my house gets messy. I tell him sometimes I can’t run after everyone like maid, I have to pace myself. I hope eventually he gets that. Men can be so chauvinistic sometimes, they feel like woman are supposed to be cooking, and cleaning, every free minute of the time. I do all of this,and I work full time, and I’m raising two kids on my own. When you throw Lupus in the mix, it’s a lot harder to be “Superwoman” all the time! I was married prior to my diagnosis, my husband and his family treated me the same way, and eventually he left. I realized at the end of the day I can’t kill myself to please everyone, those who love and understand will stick it out and adjust.



Shae Marie said:
I'm scared, there are days that I can't even think,I can't even remember a conversation ... It's like I'm talking and oh look a kitty! Wait what was I saying? Lol .... Also my husbands says stuff like you were ok when you woke up.. How can you be sick now ? Can your body feel like that so fast? He makes me feel like I'm crazy ..my daughter is 18 years old and is like wow mom your in bed again? Well she is in nursing school so I made her print info about lupus and to her to tell me what she thought about it.., well she is off my back and being niceThank God.. Thank you everyone it's good to know that I have friends in my life that understand..

Shae, my symptoms are so much like yours. I'm always throwing words into my sentences that don't make sense!
Shae Marie said:

I'm scared, there are days that I can't even think,I can't even remember a conversation ... It's like I'm talking and oh look a kitty! Wait what was I saying? Lol .... Also my husbands says stuff like you were ok when you woke up.. How can you be sick now ? Can your body feel like that so fast? He makes me feel like I'm crazy ..my daughter is 18 years old and is like wow mom your in bed again? Well she is in nursing school so I made her print info about lupus and to her to tell me what she thought about it.., well she is off my back and being niceThank God.. Thank you everyone it's good to know that I have friends in my life that understand..

Hi Shae,

Although my hubby loves me to bits when i first started having troubles with remembering more...i had the same words throwed at me on certain occassions and the air ws blue in the home and i did turn nasty but since attending appointments and also reading about Lupus and what i have plus oddd comments he see's on the site, he understands now and what annoys me is my hearing is mashed up besides from the seizures so with remembering and earring properly it makes me feel like an idiot some times.

Shae to make him realize even more if possible drag him along to every appointment you attend and if it comes to it bring up issues to your specialists infront of your hubby and let them tell him.

My husband now asks questions after they've finished with me and then chat with him because they know it's important to we to have full solid support.

Loads of love Terry xxxx

That is a very good idea, I’m going to get him to come with me to my be next appointment, let him see all the stuff they do blood work, X-rays , and the exam… Let him hear my concerns and the doctors response… Let him ask questions… I don’t think my husband realizes what he says… Till I say something back in a not so nice way… We just got married in November , but before that he was married 27 years and his wife had passed away from a spider bite… So his very protective, very protective … I don’t think he want accept that I’m sick… He is a good man, but all my appointments are in New Orleans … So he freaks out when I go to the doctor… Then I have to hear how I will get shot going by myself… Come on I could get shot if someone is with me… Lol I’m just kidding… I love New Orleans , I was raised here… Then he is set in his ways he thinks I should take a bath by 6:00 pm every night and that I should eat at 6:30 and he picks out a movie for 7pm…,what I do some times is wait 6:30-7 to take a shower to throw him off schedule … Lol :slight_smile: my husband and I ate 7 years apart in age I’m 39 and he is 46 years old… He cooks, cleans, washes and folds clothes… But he keeps a schedule… He plans the time we wake up and does things on the weekend… He like I will give u till 8:10 to sleep and then by 9:10 we should be on the way to the store and we should be back home by noon…I always mess up his schedule and I joke about it , but I think it stresses me out… Before I met my husband I had been single for 10 years…so I’m just the type of person that let things happen naturally … The only thing that I made sure that I kept top is my sons appointments…

I’m sorry I just noticed a lot of errors In my writing , my typing off of my phone and I can’t really see well…

Shae,

Don't worry about errors...look at mine in the reply to you, it's through concentration besides wearing gloves for my raynauds...i do more editing half the time than anything else, so ANNOYING. lol

Shae Marie said:

I'm sorry I just noticed a lot of errors In my writing , my typing off of my phone and I can't really see well..

Shae,

I am pleased you've read and took in what to do with your hubby because he needs to realize and being over protective is'nt the same as understanding your issues your suffering plus you've just pointed out why he's not taking you serious because of his wife dying, he's actually frightened it may happen to you and that's where the protectiveness is coming in....lifes got to be faced if he loves you so much, trying to wrap you in cotton wool and hiding the fact won't help either of you one bit.

Get him to as many appointments as possible and once he's been to several start discussing it, then when your on the site mention what members are going through because my hubby knows quite a few members on here without ever chatting because he listens to me and what i mention on their stories and he'll read their issues if i point thenm out, all this drives him into involvement and if it does work should bring you both a hell of alot closer than you are now.

I'm not being ignorant but i laughed at the schedual lark with him...that needs to be knocked aside abit and only you can do that like your trying now....he's come out of a marriage after years of being with his wife in a great routine by the sounds of it. Age gap makes no difference i'm 43 and ste is 53...10yrs different but there's no schedual in our home as niether of us like that but he does the cooking and other jobs...we should count ourselves lucky we have men who believe in 50/50.

Well i've just read the rest this schedual with him is a belief you can do it and ignoring your ill...yes he definitely needs to attend appointments with you.

Loads of love Terry xxx



Shae Marie said:

That is a very good idea, I'm going to get him to come with me to my be next appointment, let him see all the stuff they do blood work, X-rays , and the exam... Let him hear my concerns and the doctors response.. Let him ask questions... I don't think my husband realizes what he says... Till I say something back in a not so nice way... We just got married in November , but before that he was married 27 years and his wife had passed away from a spider bite.. So his very protective, very protective ... I don't think he want accept that I'm sick.. He is a good man, but all my appointments are in New Orleans ... So he freaks out when I go to the doctor... Then I have to hear how I will get shot going by myself.. Come on I could get shot if someone is with me... Lol I'm just kidding.. I love New Orleans , I was raised here.. Then he is set in his ways he thinks I should take a bath by 6:00 pm every night and that I should eat at 6:30 and he picks out a movie for 7pm..,what I do some times is wait 6:30-7 to take a shower to throw him off schedule ... Lol :) my husband and I ate 7 years apart in age I'm 39 and he is 46 years old.. He cooks, cleans, washes and folds clothes.. But he keeps a schedule.. He plans the time we wake up and does things on the weekend... He like I will give u till 8:10 to sleep and then by 9:10 we should be on the way to the store and we should be back home by noon..I always mess up his schedule and I joke about it , but I think it stresses me out.. Before I met my husband I had been single for 10 years...so I'm just the type of person that let things happen naturally .. The only thing that I made sure that I kept top is my sons appointments..

It sounds like your husband was in the military...or was raised by a military man! lol

Hi Kathy,

Trust you to come up with that.lol....but in one way it sounds like it, unless that's how he lived his life growing up then with his first wife. xxx

Kadeeeee said:

It sounds like your husband was in the military...or was raised by a military man! lol