I just want to feel normal I’m a single mom and it’s hard to take care of her when I don’t feel good and I hate when people tell me to just work through it I jus need some words of encouragement from people who understand how I feel
There’s no working through it. Let’s say a healthy person has 100 units of energy to give a day. When you have lupus you might only has 30. You have to learn to spend that energy wisely. Our bodies are using our immune systems to destroy us. It might help to compare it for people like when they have a cold and they have no energy because their body is fighting the illness. Our illness is our body fighting itself.
I know how it feels when people around you are insensitive to what you are going through right now even though I am not a mother which poses additional challenges. My world has been turned upside down since I was diagnosed with lupus, scleroderma, pulmonary hypertension and all the side effects that go along with the meds I take. I have learned to "keep my circle small". I only have people around me who are in my corner whether family or friends. If a person is negative even the slightest bit---I filter them out of my life. It's not easy but it has to be done. Sometimes they have no clue they've been "filtered" but when I look at them and hear their words they don't touch my heart. I tend not to go into details about my health and I don't seek their advice. On the other hand I have loving dear family and friends who I cry to, talk to, and who will be there even if they don't understand fully.
But most importantly, I'm trying to build my faith in God's ability to restore, protect and comfort. He and his son Jesus are truly the only ones that know how I feel better than anyone else. Revelation 21:3,4