Hi, how do you feel when we wear the jean shirt? I mean does it feel heavy ? Is it cool for your body ? Because I try that and it get heavy on me, and I find myself coming out of it. So I don’t put it on anymore. Here lately I have been wearing sundresses to have on something very lite , but of course my arms are covered with a long slevee white shirt…Beverly L.
kawena312 said:
Lol no maam. Only a portion of my face is covered…I bought a long sleeved jean shirt to protect the other areas.
Hi, yes it is stressful having to do these things , but it is what we have to do. Hopefully someday we won’t !! But until then try not to over do it , being out in the sun, for along period of time, and don’t forget to cover up!! I think the itching , and everything that you said above will always be part of our life of Living with Lupus. Sorry that this happens but remember that someday (hopefully ) it will be cured!..Beverly L.
Hi Ann A., have you ever had a black screen done? The end of the month is when my eye doctor want me to have this done. If you have what does it do? I hope it is not like the drops that she put in my eyes a couple of months back!! I could not see nothing and it burned my eyes so bad my daughter had to come and pick me up, I could not see nothing, and everything was so bright . Even though she gave me the black glasses I still could not see nothing. So please let me know what to expect if you have had this done, Thanks !!!..Beverly L.
Ann A. said:
Eyes
And if you are taking Plaquenil please read the discussion about Plaquenil and eye exams - very important. It is also important to make sure that you wear sunglasses with UV protection or you will develop cataracts earlier than need be.
Hats
I think how people respond to a sun hat wearing woman is based on the extent to which she is wearing the hat or the hat is wearing her. If she wears the hat like it is a dunce cap and she is hiding behind it and looking ashamed she evokes one response. If she is wearing the hat like it is a personal or fashion statement, then she gets another response. So ladies put on your hats, hold your heads up, put your shoulders back, and strut your stuff like you mean it. You mean that you love yourself enough to do what is best for yourself. There ain’t nothing wrong with a little swag(ger). Some women only wear their crowns to church on Sunday. Women with lupus get be a little majestic seven days a week.
Every year high SPF hats become more easily available. When you are still able to get up and leave the house 46 years after your lupus dx the only question you will have about the hat is - which one am I going to wear today?
Yes being covered up all the time is depressing. But that is what comes with this Lupus stuff!! Funny how we watch others enjoy the weather and we are covered like it is very cold !! I have gotten to where I blank it out of my mind and keep going…Beverly L.
kawena312 said:
Hi siskiyousis, yes I have been seeing the opthalmologist each month. I am currently using a steroid eye drop and restasis every day. I haven’t purchased any sunscreen yet so that should be my next move. I love the summer time and having to be covered up is really depressing.
siskiyousis said:Please go and have your eyes checked as well…i have retinitis …due to lupus and sun really sets it off and i can get migraines from it as well…you need to see opthamologist not optimist…and MD.
He should help you if you have it…but you need sunglasses that are dark as possible and have sides blocked…climber’s glasses have side shields plus block both UVA and B rays! Plus wide brim hat that has at least 3" brim. Plus excellent sunscreen and some of clothing.
Umbrella mentioned also is great idea…i use walking sticks(hiking ones) so umbrella is hard but with large brim it works plus i stay out of midday sun.
Look for sunscreen that has American Cancer seal on it or remember white stuff i just went blank what it is called sur someone can help. Lavera sunscreen has it in it so when you apply it you literally cannot get it all in and white shows for 15 minutes then soaks in…so far it is best!
ISABELLA catalogue carries it…they literally test all their products on themselves or staff…also has great books, house and garden etc…things for soul. If you have children Chinaberry which is how they started is most excellent place to find children’s books, toys etc. They always include few adult books and items in it as well…can find both online. IF you call in, and have question they use to either have read book or used items and if they did not know they would get the person who had…but it has grown a lot so not sure if they still will…
But yes sun…GET YOUR Eyes check…that is something they can control if you catch it early
Oh bless you Ann...your so lovely with what you just said.
Besides yourself there's many members on here i'd love to see and hug as the friendship is terrific.
Ann i'm lost myself mate where my skin's involved also, i've come to the conclusion that i'm "ONE LOST CORSE"
All my love Terri xxx
Ann A. said:
Darhlin Terri,
You my Darling Dear have so much going on besides lupus that I do not have a clue. And I know that it must be terribly stressful. I wish I could just reach through this computer and across the Atlantic and hug you till you yelled for he to stop.
Love you
I am definitely looking into the sleeves