It's so great you know yourself and your body so well.
I have to learn how to listen to my body when I don't feel like talking to others or being around people. You're right. No body wants to be around someone who is 'in a barrel'... crabby or moody. And prednisone... well, it affects me that way. So when I get like that, I just need to be alone. And I have to remind myself that's it's okay.
Thanks for the encouraging words.
Faye said:
Mechelle,
I love all the poems and writings that have been put on the site of your discussion. Just so you know, the first hour of my day is my trickiest! Bob answers the phone calls, and by the end of the hour I am ready to face the world! My friends laugh and say I don't sound sick, to which I reply..."great, no one wants to talk to someone in a barrel!" I wouldn't have any friends if I stayed in my "wake up" state. Ha...I love to be cheerful and lift others. That helps my state of mind tremendously!
That was beautiful, Lia. Tell me about your pets. How many do you have and what are their names?
lia mason said:
THERE ARE NUMEROUS PEOPLE AND THINGS THAT MOTIVATE ME FIRST GOD WHEN HE WAKES M UP IT MOTIVATES ME TO MAKE ANOTHER STEP YOU MAKE ONE HE MAKES ANOTHER, MY MOM IS MY MOTIVATION HER WILL TO GO ON EACH DAY TO GO WHEN SHE CANT GO KNOW MORE, THE THINGS GOD HAS GIVEN ME THE OPPUTUNITY TO ENJOY MY HOME, NOT MY HOUSE MY HOME THEIRS A DIFFERNECE, MY PETS I HAVE OT TAKE CARE OF THEM , I LISTEN TO MUSIC AND SING SOMETIMES TOO. TO KEEP THINGS IN PROSPECTIVE MOTIVATES ME AS WELL TO KEEP UP THE THINGS GOD HAS GIVEN ME THE OPPORTUNITY TO HAVE , MY GRANDMOTHERS FAITH SHE HAD WHEN SHE WAS LIVING MY AUNTS PAITIENCE MOTIVATES AND MY GIRLFRIENDS RESILENCE TO BOUNCE BACK HER WILL TO GO ON EACH DAY AND NOT GIVE UP. FROM LIA.
Meeks, that's too funny about tea solving all problems! Good way to put it! ;)
I have never tried milk in my tea, but I need to. Do you have a special biscuit recipe I can try? I can't cook.. but I will try it!
I drink green tea sometimes.. and add a ginger lemon mix to it. I have to be careful because I'm not sure what the sugar content is, and I'm currently taking insulin.
meeks said:
milk and one sugar :) with a side of biscuit! ... tea resolves all/most problems!
how about you Mechelle?
Mechelle said:
Meeks!
Tea and breakfast.. that sounds like great motivation! ;)
How do you drink your tea?
HUGS!!
meeks said:
music is great! ( I like the posted song as well and shall add it to my playlist) Normally i find tea and breakfast is a great motivator!
What motivates me, after restlessness through the night lately and it's always motivated me...is when i actually wake and feel motion in my legs and no paralization because whatever i suffer daily, that just makes my day knowing i can function without my wheelchair and get about on my own.
I am mainly motivated by my children, and I have been even prior to my diagnosis. I live for them, and I am working hard to make sure that they will have more opportunities than I did when they get older. I want them to have the best childhood, and the best life possible. There has been many days when I felt like I just couldn't go on any more, but I feel like no one else will care about their best interest more than I. I couldn't imagine my children struggling for a meal, or being unkempt because I decided to "throw in the towel". I don't even think my children know the capacity of my illness, and I prefer to keep it that way as long as I can. I had a hard childhood, and I sometimes feel like this is the reason why I struggle so much as an adult. I definitely don't want that for them, and I want to live to see them become the best they can be.
Such a touching reply and it's lovely to hear how you want the best for your kids, even though your struggling like you are...full admiration goes out to you. xxx
RisaRae said:
I am mainly motivated by my children, and I have been even prior to my diagnosis. I live for them, and I am working hard to make sure that they will have more opportunities than I did when they get older. I want them to have the best childhood, and the best life possible. There has been many days when I felt like I just couldn't go on any more, but I feel like no one else will care about their best interest more than I. I couldn't imagine my children struggling for a meal, or being unkempt because I decided to "throw in the towel". I don't even think my children know the capacity of my illness, and I prefer to keep it that way as long as I can. I had a hard childhood, and I sometimes feel like this is the reason why I struggle so much as an adult. I definitely don't want that for them, and I want to live to see them become the best they can be.
RisaRae.. that is SO moving. I'm printing this out.. so when I do have children (or adopt), I will remind myself of all the things you've mentioned.
You are a trooper. Wow. Keep pushing. And I pray the struggle won't last always.. that you'll find relief.. rest.. and peace.. and that you, too, will become the best YOU can be.
Thanks for sharing,
Mechelle
RisaRae said:
I am mainly motivated by my children, and I have been even prior to my diagnosis. I live for them, and I am working hard to make sure that they will have more opportunities than I did when they get older. I want them to have the best childhood, and the best life possible. There has been many days when I felt like I just couldn't go on any more, but I feel like no one else will care about their best interest more than I. I couldn't imagine my children struggling for a meal, or being unkempt because I decided to "throw in the towel". I don't even think my children know the capacity of my illness, and I prefer to keep it that way as long as I can. I had a hard childhood, and I sometimes feel like this is the reason why I struggle so much as an adult. I definitely don't want that for them, and I want to live to see them become the best they can be.
That is so awesome, Terri!! Wow. Such a good way to look at it. Thank you for sharing. You all make me realize how blessed I really am.
Tez_20 said:
Hi Mechelle,
What motivates me, after restlessness through the night lately and it's always motivated me...is when i actually wake and feel motion in my legs and no paralization because whatever i suffer daily, that just makes my day knowing i can function without my wheelchair and get about on my own.
We all know Lupus gives we all such an hard time to different extents in each and everyone of us but there's nothing we can do except live our lifes as best as possible, mentally fight our days through even though it's an hard ride....because whatever we hope and wish for, we can only get that by doing our best...a large 80% of the group including myself have been handed a TASK and it's how we deal with it, that makes our lifes.
"Life in general is a never ending Test"
Love Terri xxx
Mechelle said:
That is so awesome, Terri!! Wow. Such a good way to look at it. Thank you for sharing. You all make me realize how blessed I really am.
Tez_20 said:
Hi Mechelle,
What motivates me, after restlessness through the night lately and it's always motivated me...is when i actually wake and feel motion in my legs and no paralization because whatever i suffer daily, that just makes my day knowing i can function without my wheelchair and get about on my own.
I have three pets cee cee he is a lab mixed with golden retriver he is 13 now I had him ever since he was a pup,two cat when they were kittens, one name is patches she is calico and the other one reminds you of morris she is gold and white, I try to give this stray that comes around something to eat when I can afford it, he lays out in the yard at times like this is his home.
Mechelle said:
That was beautiful, Lia. Tell me about your pets. How many do you have and what are their names?
lia mason said:
THERE ARE NUMEROUS PEOPLE AND THINGS THAT MOTIVATE ME FIRST GOD WHEN HE WAKES M UP IT MOTIVATES ME TO MAKE ANOTHER STEP YOU MAKE ONE HE MAKES ANOTHER, MY MOM IS MY MOTIVATION HER WILL TO GO ON EACH DAY TO GO WHEN SHE CANT GO KNOW MORE, THE THINGS GOD HAS GIVEN ME THE OPPUTUNITY TO ENJOY MY HOME, NOT MY HOUSE MY HOME THEIRS A DIFFERNECE, MY PETS I HAVE OT TAKE CARE OF THEM , I LISTEN TO MUSIC AND SING SOMETIMES TOO. TO KEEP THINGS IN PROSPECTIVE MOTIVATES ME AS WELL TO KEEP UP THE THINGS GOD HAS GIVEN ME THE OPPORTUNITY TO HAVE , MY GRANDMOTHERS FAITH SHE HAD WHEN SHE WAS LIVING MY AUNTS PAITIENCE MOTIVATES AND MY GIRLFRIENDS RESILENCE TO BOUNCE BACK HER WILL TO GO ON EACH DAY AND NOT GIVE UP. FROM LIA.
Pets are so therapeutic, I heard! I'm sure you've spoiled your babies! ;)
lia mason said:
I have three pets cee cee he is a lab mixed with golden retriver he is 13 now I had him ever since he was a pup,two cat when they were kittens, one name is patches she is calico and the other one reminds you of morris she is gold and white, I try to give this stray that comes around something to eat when I can afford it, he lays out in the yard at times like this is his home.
Mechelle said:
That was beautiful, Lia. Tell me about your pets. How many do you have and what are their names?
lia mason said:
THERE ARE NUMEROUS PEOPLE AND THINGS THAT MOTIVATE ME FIRST GOD WHEN HE WAKES M UP IT MOTIVATES ME TO MAKE ANOTHER STEP YOU MAKE ONE HE MAKES ANOTHER, MY MOM IS MY MOTIVATION HER WILL TO GO ON EACH DAY TO GO WHEN SHE CANT GO KNOW MORE, THE THINGS GOD HAS GIVEN ME THE OPPUTUNITY TO ENJOY MY HOME, NOT MY HOUSE MY HOME THEIRS A DIFFERNECE, MY PETS I HAVE OT TAKE CARE OF THEM , I LISTEN TO MUSIC AND SING SOMETIMES TOO. TO KEEP THINGS IN PROSPECTIVE MOTIVATES ME AS WELL TO KEEP UP THE THINGS GOD HAS GIVEN ME THE OPPORTUNITY TO HAVE , MY GRANDMOTHERS FAITH SHE HAD WHEN SHE WAS LIVING MY AUNTS PAITIENCE MOTIVATES AND MY GIRLFRIENDS RESILENCE TO BOUNCE BACK HER WILL TO GO ON EACH DAY AND NOT GIVE UP. FROM LIA.
Ann.. that was awesome! I love it! Thanks for thinking of me. :)
Ann A. said:
By now Mechelle you have figured out that I am a Jill Scott fan When this song came up in my mix today, I thought about you - The song is "I Keep." http://www.youtube.com/watch?v=jOWzZ70pu7E
I keep Moving forward, pressing onward, striving further I keep Keep on laughing, keep on living, keep on loving yeah I keep Keep on dreaming keep on achieving, keep on believing I keep I keep smiling when I come thru ...and I cry when I need too.
This morning i did'nt want to shift out of bed...leg spasms murdered me and all day my legs have ached and been swollen....so god knows what motivated me but i shifted myself in the end.
One of my favorites these days is 'Promises' by Skrillex. I like the dubstep element. There's also a remake of 'The Tide is High'-don't know who re-made it off hand. And a remix of "Tiny Dancer". I'm a sucker for re-mixes of old songs. I love ambient music too, if it has good vocals and melody.
My daugthers are 6 and 2. And they are busy bodies-active!!
I don't think the coffee helped that much. Today I had black tea. I don't remember what I ended up doing that day, but I'm sure I got up and around. I didn't waste much time. Maybe that's part of why I'm in this flare again-not resting enough. Too much heat and sun here.
Hugs to you as well-I like your post!
Nicole
Mechelle said:
Nicole,
Thanks for responding! What's one of your favorite songs? And how old are your daughters?
I understand how it feels to not want to get up. But, I also know how it feels to know you have so much to do.. that you don't want to waste the day.
Did you end up feeling better once you had your coffee?
mate on the "Clapping song"...well it's one way of keeping you alive. xxx