Possibilities versus the I am not able to's



Hi, you sound like me-there are days that I just want to die but I can't . Am not going to allow Lupus take my Life away from ME!!! That is not going to happen , God has a much better plan for us , we have to stay strong and fight Lupus !!... Hang in there and know that your are never alone ...Beverly L. lizluvsu said:

What is feeling normal anymore? I would not know. I feel I am awkward and lopsided half the time.

I have good days and than there are days when the pain just wrestle with me. I am not a huge fan on taking medications because you don't know what makes you worse, the side effects of the medication or the aches and pains from living with lupus. I love getting out enjoying the fresh air and watching the trains traveling through. This morning, I have pain in the back of my neck, stiffness where it is hard at times to hold my neck up. I pray and thanking God for each new day that I have good days. Hugs to you Morgan.

Hi Beverly,

I thought you'd laugh at it mate and i hope your health is'nt to bad.

Love Terri xxx

Beverly L. said:


That very cute.LOL....Beverly L.
Tez_20 said:

Hello Morgan,

If i was'nt so ill my OCD would become a cleaning job don't worry on that score because in the UK now, people with the disorder are going around cleaning other people's homes besides the streets.

It's one mentally torturing disorder especially when your limited in what you can do, so i try daily to keep on top of things but the best buy my hubby did was buying a light weight vacuum cleaner smiley 1.25kg in weight, oh yes it's brill mate happy emoticon

Oh would'nt live be great if we all had our energy back to normal just like this washing dishes smiley

smiley gets a big hug emoticonTerri :)



Hi, sorry that has taken time to reply! My computer is having problems at times -sometime it let me respond and other time it do what it want! LOL. That is a good way to put it-weeding out the ones that are for you, that helps you to be less Stressed, and make resting more relaxing!!! Stay pain free ! Hope that your Mother Day was comfortable ? I enjoyed the day in bed-really relaxing and eating all day!! It was very good, talk with you later...Beverly L. Morgan said:

thanks to all who have posted. love to learn from you all, and help

others. score, thanks to you all. this is a group response, broken down

by name, easier than making many replies.

REET - how wonderful that you can be so creative. may your move go

smoothly, and, wish i had sisters. That you are close and support one

another is so terrific! pace yourself please? if i had to move right now,

think much would be hauled off by my favorite charity.

BALLERINA, you take what classes? zumba? amazing. the water ones

would give resistance to help with muscle strength, the chlorine would

do me in though. and to think, was once a water polo player, and

competitive swimmer!

KEEP you said you paint anything. can you do decorative painting such

as the fool the eye stuff or, others? what's you favorite type of paint?

water based latex my fav, but dry time so fast hard to play with on a

canvas. sometimes make keepsake boxes, add detail by embellishing

with purchased rub on paint images, and decorativewood pices, etc.

Ann A, spending time with the grands - FUN! all mine are still little. (2

and under) Thanks for sharing the link to the blog, intend to read it.

What kind of writing do you do? tried my hand at a couple of novels,

then realized with young children, touring to do book signings and

conventions was not possible, and very much needed to do well in my

favorite genre. The men cooking? your family sounds awesome.

LIZ you are a very creative person. Quilting was never one of my skills,

couldn't stick to precise detail work. Have seen shows on tv about the

big quilt shows, amazing works of art. You said the D word. do audio

books help? the local library would have them if you wanted to listen as

you were going about your day. You are welcome to come teach my

dogs new tricks, they just look at me and laugh, lol.

BEVERLY, t.y. for the rest reminder. seem to be sleeping in shifts. 3

hours here, and hour there, ver y pooped out. I appreciate you being

supportive! you said don't STRESSS? uh, making a note, but reality very

different. have learned to say no, people around me thrown for a loop,

and since have changed the rules, finding out who really cares and

who was toxic and using me, so weeding them out! hoping to add

finding positive and stable new friends to my activity list.

TERRI hugs right back to you! So glad you approve. OCD. that stands

for Obviously Clever Diva, right? lol. you are welcome to come clean

here any time, not my strong suit. Could use someone to scrape the

70's popcorn ceiling off so the dust bats had nowhere to hang out.....

love and hugs all around, and for anyone here who is a mother, happy

mother's day.

Morgan

Hello, I sit at home, try to read, play games when my computer is not acting up, my husband doesn't choice to understand how much pain I'm in, he is a clean freck and wants me to clean the house up everyday, also he has Parkinson and a lot of my day is trying to understand what it is he feels I should do, when he has a hard day at work and can not stand because his balance is off or he need me to talk to the doctors on his behalf I drop everythingt to do for him, I asked him the other day if he had read anything about Lupus his response was no, because he is always bring home information on his illness, When the weather get's wet and rainy I have more bad days but he doesn't choice to want to hear that, my depression is gettting worse, i feel if I could go back to work that maybe I could feel some self worth.