So tomorrow I’ll be attending appointments at UM Selvester from 10am till?? First I’ll see my orthopedic to go over my hip MRI from last week… I know it’s not going be good because the other hip is pretty bad already so I won’t be shocked or surprised. I’m just hoping it doesn’t show osteonacrosis but my dr believes it will this time. .then a nurse will wheel me across the hall to my rheumatologist who is amazing:)ive experinced continued decline physically, neurologicly and in my overall disease since our last appointment 6 weeks ago, I made a list of notes cause I’ll totally forget everything of course lol…then it’s a trips down the other hallway to the infusion room for my 3rd benlysta treatment ,at least we have personal tvs with satellite at each iV chair yaaay !finaly, think I’ll need an xray of the right hip because 2 days after the MRI last week it felt like it came out of socket or fractured somehow. I know this feeling well cause every since my left rotator cuff and labrum tore my shoulder will partially dislocate sometimes .I don’t know…it’s very swollen, bruised and can’t put weight on it without screaming…guess I should have gone to the ER but figured I could wait a couple days to avoid spending hours and hundreds of dollars there when I can just roll down the hall in 1 minute and pay $10 for the same thing at UM lol…I’ll let you all know what happens, wish me luck!!xo
Best of luck Dawn. I hope you new IV treatments help slow down the lupus, and there is good news on your hip. Sounds like you have a great care team! Please do update.
healing hugs,
Louise
Wishing you the VERY BEST today, all good news and that everything goes easy and smoothly...........
sending you HUGS and BLESSINGS and I will be praying for you today :)
Prayers and gentle hugs. I hope everything is going well as I write this.
Hi
I wish you all the luck in the world. By now you have your news. Let us know. We're all here for you.
Cindy xxx ooo
The avascular or osteopathic necrosis sucks! No other way to put it. I am 44 and have it in one knee ( other already replaced but still hurts all the time) and in both ankles . Fallout from Lupus and over 20 yrs steroids. Now they are finding
Protein in my pee tests, too !’ I can relate so much to what you are saying! Good luck and I hope for the best for you!!!
THIS WEEK I HAVE 4 DOCTORS APPTS. I AM SO SICK HAD 2 FLARES OVER THE WEEKEND.
I NEED SUPPORT AND PRAYERS.
PLEASE LEAVE A REPLY.
LOVE MICHELE AND RUSH
AKA MICKEY
Hi, am having the same problem going on, I went last Tuesday to see the rheumatologist and he want me to see orthopedic , but the next appointment for this doctor is not until Feb., that is going to make my appointment with the rheumatologist/lupus doctor in possible-he want me to come back to see him in Dec. and want the results from that about my left hip. I don’t know as of yet what to do, because my doctor is the one who give me my meds.! This is crazy, when the doctors don’t have something open sooner, But am praying that , that other doctor call me with a better appointment in the time frame for my doctor. Hope things work out for you…Beverly L.
Hi Beverly
Did you ask your rheumys office to make the appointment for you at the ortho. Sometimes they can get you in a little sooner.
That's been my experience anyway. It's worth a try.
Hugs
Cindy
freightliner said:
Hi Beverly
Did you ask your rheumys office to make the appointment for you at the ortho. Sometimes they can get you in a little sooner.
That’s been my experience anyway. It’s worth a try.
Hugs
Cindy