Yes, I have suffered from migraines for years. They began at the same time I started having a scalp rash. Neither of these have been connected to my autoimmune issues as of yet, but from what I've been reading lately about Lupus, could be related. My migraines are with aura, I lose vision and occasionally also speech. I get numb along parts of my body, usually only on one side. The aura starts about 20 minutes before the pain. I also have nausea and vomiting. The acute migraine lasts about 6 hours that I spend in vomiting and dosing often in the fetal position, somehow that seems to help. No medications have ever been effective for me except sedation. For two days after the acute migraine I feel like I've had a party bender and have a wicked hang-over. I have lingering nausea and difficulty focusing my vision. My cognitive function is also reduced. Over the years I have identified several triggers including progesterone fluctuations, light, nitrates, sesame, and wheat. I wear special glasses to block certain light spectrums, a tint called FL-41. It helps, though does not completely control the migraines. The combo of diet and glasses has reduced my migraines more than any prophylactic medication every did.
The migraines are debilitating and there is unfortunately no cure, just learning how to use the 20 minutes of aura wisely to prepare for two days out of commission. I have 4 little ones and one on the way....no sick days for mom! When my husband has been deployed I would put all the kiddos in a room armed with snacks and lay in the door way. I knew they were in a safe place and would be able to know if they left. Life is hard!
Hi there sunlover1978, Migraines, migrains, migrains , OH BoY !!! I hate them with a passion.. Mine are not as bad as they use to be , but as though you say 2days , takes away alot,exspecially whe there are kids involved-smile My kids are now grown but i totally relate to you . When i was in my teens and twenties, i could not handle no noise period, the smallest sound when having a migraine would drive my CRAZIE!!! Once i went to the doctors , and of course they thought that my storywas a lite over the top of how it would have my screaming in PAIN , but one day my sister viedo taped my ( without me knowning) , it was so funny when i saw it , man the this i said to people who didn't know i was haing a migraine ,were a bit rude!! Sorry to those thatthis apply to !!!! i was not in my right state of mindat those moments is what i woul say to them, after i saw it. Moving on the doctors ran sooooooooooooo tests, i thought that i ws a pin cushion-LOL At first there was nothing that i coul relate to that would trigger them -they just came! Then one nite - i think i was around about 25 /26 , my youngest son fatherin i were moving into our own apartment , my eyesigh went away totally, i thought that i was being punished for something i had no clue of . At that moment (ken) , was so afraid , he called 911, by the time they arrived i had passed out , woke up in the ER and was crying like a little baby , not knowing what had happened and didn't know what was going on , (ken) was trying to help me to clam down but that didn't work - I just wanted to SEE . The doctors came in and right then they took meto me to have a cat scan , well waiutng for the results and the doctor to come back into the room - i wanted to leave and just deal with it at home , but as soon as i stop talking ths doctor came in ,saying" Ms. Mitchell , what do you eat ? ( now at this pnt am like What do i eat ?? what does that have to do with my head an being able to see?, he says you are eating to much salt !!! Salt that is why i can't see ??!!! Yes his says. For years before this happened , if i would have known that i would ave stopped eatting salt !!! LOL Now at the age of 44 , i can say hat am doing fine havn't had a server migraine in a couple of years , Thank GOD, and also my eyesight did come back in a couple of hours after that situation happened , me and KEN broke up and now we are the best of friends and are raising a 23year old son, whom has our 1st grandson. But back to the story point , try limiting your salt intake this MIGHT help , it worked for me and still to this day i rarely use salt, Ms. Dash has been there for me on everything!!! Hope that this helps and dont give up .... Beverly L.
P.S. sorry so long-SMILE
sunlover1978 said:
Yes, I have suffered from migraines for years. They began at the same time I started having a scalp rash. Neither of these have been connected to my autoimmune issues as of yet, but from what I've been reading lately about Lupus, could be related. My migraines are with aura, I lose vision and occasionally also speech. I get numb along parts of my body, usually only on one side. The aura starts about 20 minutes before the pain. I also have nausea and vomiting. The acute migraine lasts about 6 hours that I spend in vomiting and dosing often in the fetal position, somehow that seems to help. No medications have ever been effective for me except sedation. For two days after the acute migraine I feel like I've had a party bender and have a wicked hang-over. I have lingering nausea and difficulty focusing my vision. My cognitive function is also reduced. Over the years I have identified several triggers including progesterone fluctuations, light, nitrates, sesame, and wheat. I wear special glasses to block certain light spectrums, a tint called FL-41. It helps, though does not completely control the migraines. The combo of diet and glasses has reduced my migraines more than any prophylactic medication every did.
The migraines are debilitating and there is unfortunately no cure, just learning how to use the 20 minutes of aura wisely to prepare for two days out of commission. I have 4 little ones and one on the way....no sick days for mom! When my husband has been deployed I would put all the kiddos in a room armed with snacks and lay in the door way. I knew they were in a safe place and would be able to know if they left. Life is hard!
I have found some relief from caffeine and over the counter migraine relief pills. But when they get really bad, I close my eyes and pray for mercy.
Some people believe that certain foods may be triggers. You might keep a journal to see what potential triggers you may have.
I pray you find what works for you.
Hi Worshipgril, yes prayer goes a long way , keep doing what you are doing , (PRAY-Jehvoah,GOD) is the HEARER of all Prayers.
I have had them since I was 6 years old. All the females in my family had or have had them. I suffered for years. Then I found a neurologist a couple of years ago and she prescribed Frova. It works miracles!!!!!! It is not a narcotic. I had tried all the others, like Imitrex, Maxalt, etc and none of them worked. Rel-pax works pretty good also, but Frova has the best success rate for me. I used to be in the ER for an IV at least once a month for years for my migraines, but I have only had to go in 3 times in the past 2 years since starting the Frova. That is a huge step for me! I hope this helps!!!!
Yes migraines, can be a killer !!!! I don't have them as often as i use to "Thank GOD" . Mines were so bad that i would black out for a couple of hours and wake up not knowing what happened !!! But now i just don't tire out or do a lot of things ( mostly relaxe and don't stress) . I've never had to go to the ER for them and my doctors never gave meds., for them either , i just would go with the follow of dealing with them !!! Hope that you are okay , talk with you later.... Beverly L.
I too have them all the time, sometimes for 3 or 4 days...the only thing that works is hydrocodone for me but they took them away said i was getting addicted, I WOULD like to see them have headaches all the time.. so bad ur crying...and 1 pain pill would knock it for me.. but no, now i have to suffer, till i find a new doc..anyways i have had them since i was a teen and they keep getting worse..and im so tired and sleepy all the time...i have a headache now, wish i had a pain pill..