Having SEVERE Migraines with dizziness and vomitting every 4 weeks! ANY HELP much appreciated

Hi Everyone!!!!

My name is Lucy and I am 24 years old. I got diagnosed with Lupus SLE just under 5 years ago and throughout the last 3 years I have also been diagnosed with

- Underactive Thyroid

- Chronic Urticaria – This affects my face ( eyes,nose and lips ) sever swelling sporadically, and I get a burning sensation when change of temperature or bathing

- High Blood Pressure (only recently as ive seen my weight climb over the last 2 years due to prednisolone)

I am continually trying new medication for various symptoms, the most recent being the sever migraines that I get for 6 days every 4 weeks (usually around my menstrual cycle)

I am on the following medicine right now

plaquenil 200 mg 2x a day – Lupus SLE

prednisolone 7.5mg daily – Lupus SLE

thyroxine 150 mg daily - Underactive Thyroid

ramipril 2.5mg daily – High Blood Pressure

citirizine 10 mg 2x a day - Chronic Urticaria

Telfast / fexofenadine 180mg 2x a day - Chronic Urticaria

montelukast 10mg daily - Chronic Urticaria

amitriptyline 10mg daily - Migraine

I have recently been prescribed amitriptyline 10mg daily for the migraines, has anyone else been on this drug or anything else for migraines or head pains.

I have never joined a support forum or spoken about the medicines I take or the conditions I have.


X Lucy

I was on amitriptyline 10mg for vascular headaches. It helped, but it did give me very weird and vivid dreams at night. It think it took about 2 weeks before my headaches were completely gone. Sounds like yours are hormonally based though. Hope the amitriptyline works for you like it did for me!

Thanks for this.... I am on sooo many medicines its hard to keep track on what causes what!!!

I started taking them 2 days ago so fingers crossed this works for me...

I didnt use to get the migraines but they became more severe 4 months ago.

Thanks for your support!!! x Lucy

Ballerina8876 said:

I was on amitriptyline 10mg for vascular headaches. It helped, but it did give me very weird and vivid dreams at night. It think it took about 2 weeks before my headaches were completely gone. Sounds like yours are hormonally based though. Hope the amitriptyline works for you like it did for me!

I find that taking paracetamol together with ibuprofen and heaps of water, then getting in bed with the lights off is the best way to survive a migraine attack. I always get mosaic vision or lose my peripheral vision when they strike. I just try to sleep it off. It is thought that being underhydrated can trigger them.

I have had severe migraines along with my period most of my adult life. None of the migraine medications I have been prescribed have worked very well. I usually end up taking Excedrin and Ibuprofen and keeping an ice pack on my neck to numb the pain a little. Here are two things that worked for me. 1.) When I was taking birth control pills, the doctor just had me skip the last week (the one where you should have your period) and just go on to the next pack. That way I ended up only having a couple of periods a year and without the hormone shifts, no migraine. 2.) When I completely stopped taking birth control pills, I stopped having migraines along with my period. Now I usually only have a migraine a couple of times per year.
Since you're experiencing these migraines around your period, you should talk to the doctor about ways to adjust your hormones, since that's what is setting them off.
Good luck! I know how hard it can be to deal with this.

Great job documenting everything!
I’ve had migraines for years and was dx. with lupus in 1995.
During menopause I went to a Neurologist specializing in headaches. Mine still come in cycles. I keep hydrated, and the Dr. has me increase my prednisone for two weeks and then taper. I use ice packs and lay down in a dark room.
Everyone is different and it is helpful to work with a specialist to find what works for you. If you have a large teaching hospital within driving distance, my suggestion would be to get a referral to a Neurologist there.
I will keep you in my thoughts.
Feel better!

I’ve suffered from migraines also. The only thing that helped me was two excedrin migraine and a strong cup of coffee at beginning of pain. Old fashion alka zeltzer and coffee also helps relieved the nasaus


When you have Lupus you feel like you are the only one going through all of this nasty pain, its not nice that you all experience it too, but it terms of support, its good to know that I am not the only one!!


My daughter and I both suffer from migraines, mostly around our periods. I have found Midrin (prescription) works for both of us. Midrin is a combination of acetaminophen, dichloralphenazone, and isometheptene.

Hi art chick, is that a pain killer?

it is a migraine medicine that is a combination of three medicines: one is tylenol, one is a sedative and one causes narrowing of blood vessels according to Drugs.com. I've been taking them for about 20 years. They used to prescribe it as taking 2 pills the first dose, then 1 every 6-8 hours. For my more severe headaches, 2 usually put a big dent in the headache, then within the next day or two I'd knock it down the rest of the way.

I used to experience horrible migraines and a severe flare once a month during my period. At least once during that time I ended up in the ER. My doctor recommended continuous birth control. I spoke with my dermatologist at the Mayo and she agreed. It has helped me so much. During migraines I take Excedrin migraine, lay in a dark room, put ice on my neck and have lavender close by. The smell helps with my nausea.

I empathise with your migraine pain. They are absolutely awful to deal with. I am currently on relpax for them by my neurologist. You have to be very careful of other drug interaction and monitered but it is one if the only meds that seems to give me some relief. Please let continue to reach out to us…

I have been having two types of what the doctors describe as migraines, although I would not have thought it was that. Two very distinct types of headaches--one is beyond horrific, and when I stand up I almost pass out afterwards. The other one is less acute, but it is constant and unrelenting, which makes it almost worse. I can't think, I don't want to move, I just dream about guillotines so that I can chop my head off and stop the pain LOL.

I screwed around with my rheumatologist and had a shitty primary, who I got rid of and got a new crackerjack primary, who has been very helpful with the headaches.

Previously I tried Fioricet, Percocet after onset of headaches. They both had some help with the lesser headache--would relieve, some but not all of pain. It was hit or miss which one would work, or if either would work.

I was also prescribed Dialtizem, which is a blood pressure medicine that is supposed to help with the Raynaud's I have also. It is supposed to help with headaches, although I didn't see much benefit with that.

The new primary doctor prescribed me a lower dose of amitriptyline (as a preventative), which at the dose he prescribed helped some, but not significantly.

The primary referred me to a neurologist who specializes in headaches, and she was amazing.

She gave me several options, the first was increasing my dose of amitriptyline. I did that, and it seems to help, but the problem is that after taking amitriptyline the night before, I sleep ALL day long the next day--like literally until 7:00 p.m., feeling like I'm under anesthesia. Not good.

She also prescribed Maxalt to try to take when there is a severe headache. They are really strict with this because they dont want to cause rebound headaches, so they only prescribe a maximum of 12 pills per month, 2 per day, 4 per week. I had mixed results with this. The first time I took it, totally resolved the headache fairly quickly and had no side effects whatsoever. The second time I took it, I got severe Raynaud's symptoms (my hands and feet were so cold I thought I had frostbite), and didn't help that much with the headache. The neurologist mentioned that it may cause problems with Raynaud's.

Another option was Topamax-- which I haven't tried yet because the doctor discussed that it could cause an increase in depression, which right now, I really don't need because I have been feeling low lately

Another option she prescribed, which I am amazed at, is Namenda, an alzheimer's drug. It is off-label use. They have a starter dose pack. I am on day four now. The first day I took it, I had had a chronic headache for 12 straight days and thought I was going to lose my mind. I woke up the next morning with no headache. I have had no headache for each of the four days I have been on it. It, so far, has been amazing. It is also alleged to have great effects on adult add.

Finally, the neuro said that if nothing else works, then we can look into botox injections, which she said is really the gold standard and has a high success rate. She said though that it can be difficult to get the insurance to cover and expensive, so they try to cycle through all the other options first.

From my personal experience, I can also add that during a bad flaire, putting biofreeze on the back of my head and then laying my head on a heating pad is kind of a distraction from the headache pain. I usually put lavender and peppermint on my heating pad, and that actually has helped.


I am certain that this has occurred but you really need to have your hormones checked. I am not a doctor, but a woman that experiences some of the same issues.