Good morning. I haven’t been on in a while. It’s been a very busy summer. Thankfully the myfortic is working and I don’t get the sun rash. Its also been helping me to feel much better.
However, the migraine issue is very bad right now. I had been putting off the Botox treatment until I had one in the middle of the night that made me throw up. It was horrible. I went for the treatment last Monday. It was more painful than I expected. I’ve been poked prodded etc so I really thought no big deal. When they did the injection in my temple…I screamed and saw stars. She hit something…maybe “the” nerve that is causing pain. I don’t know but I’ve had one giant migraine since. I don’t know what to do. I’ve asked her and she says the med hasn’t kicked in yet. It’s worse than it was before through.
Has anyone had this treatment? What was your experience?
Hi there. I truly can relate, and am sorry for what you’re going thru. I had continuous migraines for well over twenty years. Botox has changed my life. It DOES take a couple weeks to kick in, initially, but after two years of getting the injections every three months, I’ve found it works cumulatively. So it’s getting to be more and more helpful. I also get the shots in my neck and shoulders, which has made all the difference. Best of luck to you. Hang in there, I’m hoping it will make as great an improvement to your life, as it has mine.
Omg Jen, you poor thing, I really feel for you. A few months ago I had my second ivig therapy and had the worst reaction, migraines for two straight months. I used tramadol and maxalt, which always works. Maybe that will help you. Hang in there.
Thanks Ann. I was feeling good. Guess I spoke too soon. Lol. Yes I’m still going to the barn with my daughter. It’s my sanity! Even managed a vacation with the family to Mexico. I was petrified I was going to end up in a flare. It was stressful but I managed. No flare! I’m feeling better mentally and physically…but we know how they go hand in hand! Gonna try to keep it this way as long as I can and keep pushing. Today was actually a teensy bit better on the migraine front so I’m hoping and praying the Botox is kicking in. The dr keeps saying give it time. I’m scheduled for round 2 in oct. Hopefully I will be able to lower the prednisone by then…fingers crossed!!!
Ann A. said:
I have not had that treatment BUT IT IS GOOD TO HEAR FROM YOU ZEUS’ MOM. I have been wondering how were you are doing and if you are getting to the stable and being with your daughter when she rides. Glad that your sun sensitivity is better. Sorry that you are in pain now. I got nerves burned a few weeks ago and they just figured out they were dead two days ago.
I’m glad to hear it worked for you. They did do my neck n shoulders also. No wrinkles in the forehead so at least that’s a plus!!! I’m hopeful it will work. It just set off a migraine cycle soo bad. Today is slightly better…we’ll see.
marlener said:
Hi there. I truly can relate, and am sorry for what you’re going thru. I had continuous migraines for well over twenty years. Botox has changed my life. It DOES take a couple weeks to kick in, initially, but after two years of getting the injections every three months, I’ve found it works cumulatively. So it’s getting to be more and more helpful. I also get the shots in my neck and shoulders, which has made all the difference. Best of luck to you. Hang in there, I’m hoping it will make as great an improvement to your life, as it has mine.
I’ve never tried maxalt. Dr said maybe to consider pulse therapy on the prednisone. I’d rather not.
Flygirl said:
Omg Jen, you poor thing, I really feel for you. A few months ago I had my second ivig therapy and had the worst reaction, migraines for two straight months. I used tramadol and maxalt, which always works. Maybe that will help you. Hang in there.
I have had the Botox treatments several times now ( every three months for a year) it didn’t kick in for a couple treatments so I was skeptical , but then it started relieving my migraines… My neurologist said we had to take a break as it is not recommended for more than one year. I was doing Really well, but after about 6 months the headaches started coming back . My neurologist and I agreed to start the treatment again . I will say, the injections are very painful … But it’s brief and it’s worth it.
Maxalt (Rizatriptan) is a God send for me. Use it as soon as the migraine begins. After two months of misery, I did go on a Prednisone taper and it helped. The third month was much better but still needed the maxalt every few days. The bummer about it is the insurance will only allow 8 per month. Those suckers are $37 each, so as you can see I ran out quickly. Now I keep a reserve! Maybe the pred might give your brain a reboot.
