I was told from the start that I was anaemic because of SLE and that the steroids with help. The sun doesn't affect me at all, so I really don't use sun block although I think I should now that I'm on Cellcept, etc. Being on Cellcept for that length of time, I'm assuming that its a maintenance drug. How long do you remain on it? I'm really looking forward to tapering a lot of my meds. right now I feel like a walking drug store. Lol! Today is the first day since diagnosed with LN that my feet haven't swollen. YIPEEE!
After 5 years of immuran and plaquenil my rheumatologist gave me the thumbs up to taper off of immuran. In the beginning I was on cellcept but changed meds due to wanting to start a family. It seems like a lot of meds in the beginning (15+ pills a day) but has gotten better! Now I only take plaquenil. Hang in there! The beginning was the worst part for me…lots to take in and a lot of info to digest