Hello MoeMoe,
I am pleased you know how to deal with the Tramadol as i was just concerned about you plus what i've read about the medication :)
I've got tanned skin from birth which i read Lupus can cause as the rest of my fmily have pale skin...still rub the sunscreen on you and where light cotton clothing which still covers your arms, i know it's a nightmare but like yourself winter and summer i live the percentage you've stated in doors, there's no pleasure when you really think about it.
You never know who's around the corner because as the saying goes "There's someone for each and everyone of us" regarding coping with kids it's how bad your are which as to be looked at...i've never been blessed wanted kids bad at 29 and i did get so depressed but i go over it by your age and i'm now 44 and with how i am, i'm glad it never happened.
All my love to you :) xxx
MoeMoe79 said:
Thanks you for the great advice. The tramadol I have stopped before and I was ok. It's not easy but when I start noticing I'm better I take less and I can get off it after a week. If the withdrawals give me heart palps I take a Benadryl and it relaxes me.
I've never burned in the sun and I have olive skin but now I feel my skin burning like you said. I have to start wearing sunscreen too but someone told me its bad for me. I live in California so I spend most of my time inside and when it's over cast ill go in the backyard and get done fresh air.
I stay positive 90% of the time but sometimes I loose it and get so angry. I'm 33 and all my friends are married with children and I have no one and no kids. Not that having one now while the lupus is out of control would be a good idea. Sometimes I think I should be alone because I couldn't be the wife and mother they would need me to be.
Tez_20 said:Hello MoeMoe,
Sorry to hear about your hands but i'm the same where my raynauds is concerned and still snowing here is'nt helping one bit.
I hope the plaquenil helps soon, sometimes it just takes that bit longer for some members...i take paracetamol which only edges my pain like yourself but just be careful regarding Tramadol..you may wish to read this dicussion on them which Bobbie started a while back.
http://forum.lifewithlupus.org/forum/topics/kicking-tramadol-any-idea...
I know it hard but if you can fight getting depressed all the better as Lupus thrieves of it and you will feel symptoms more harder.
Well at least your taking protection with the heat but if you do sit out keep to the shade but if you feel your skin burning or irritation starting get inside these are always the signs.
Just hearing off you my friend helps we all know your ok otherwise.
Love Terri xxx
MoeMoe79 said:Thank you all for the wonderful comments. I read each one and could only reply to a few. My hands start hurting when I type. I can usually sit on the computer for a couple mins but then I have to soak my hands in paraffin wax.
I got really bad 3 weeks ago and things are going down hill fast. I lost it last night and cried my eyes out. I stay positive and I know in 6 months the plaquenil will kick in and I'll feel better but it doesn't help me now. I am in so much pain and pain killers only take the edge off. I refuse to take anything stronger than Tramadol. I'm trying to not get depressed but man this sucks lol
I went and got a hat and I cover myself up when I go out but I'm hot and annoyed and feel stupid. But better that then a fare I guess. I got a shower seat and that helps a lot too.
I just miss my old life and I'm shocked this is who I have become.
Thank you all again! I may not always be about to write you but I read all your posts and I give all my love back to you!!!!
Terry :) xxx