Oh boy! From August to November, I was in pain everyday, went to the ER about 2-3times, they could not tell nothing each time I went. So when December came my body just could not take Nomore pain I did not get out of bed for nothing , only to go to the bathroom, maybe get something to eat and drink, and go right back to bed, sleep was my only comfort. Around Christmas , I just could not handle it any more , my son made a appointment ,and off I went. It took about 3months for them to tell me…Beverly L.
It took seven years for my doctors to make a diagnosis of SLE. I played golf one Sunday, like I had hundreds of times before and laid down to recover from the ordeal. It ususally takes about five hours to recover from the heat and exhaustion of playing 18 holes for me. However, this time I didn't get up. I had terrible headaches, vomiting, diarrhea, and was delusional. After 10 days of this, my wife called 911 and then I woke up 14 days later in the hospital. The doctors at the time said I was suffering from renal failure and severe dehydration. They sewed a valve in my neck, did dialysis for 3 days and coaxed my kidneys to come back online. Out of the blue, play golf and end up in the hospital for 28 days. Three years later, out of the blue again, I spent two weeks in the hospital for DVT (blood clots) in the left leg. Extremely painful, couldn't walk and ended up in the emergency room again. I have been on Warfarin for 5 years now. During that time, I did have three different family doctors, because my insurance kept dropping my doctors from the plan. Low and behold, last summer, I began to feel sick. I didn't want to leave the house or go to work, or attend any fun or family activities. I was reading about Nick Cannon (Mariah Carey's husband) on the internet. He had suffered the same maladies that had nearly killed me twice. So, on my fourth family doctor, I demanded that blood tests be taken to determine if I had Lupus. Turns out my ANA was sky high, my dsDNA was also sky high, I had a low C3 & C4 and a low sed rate. All indicating Lupus. It then took me six weeks to see a rheumatologist where he prescribed Prednisone. I took it for three months and I felt better. I took 12 weeks FMLA sick leave and when I went back...I started having anxiety attacks. I have lost all my confidence and I am considering leaving my profession of 23 years of being a middle school teacher. My rheumy refuses to help me with the mental problems and says go see a psychiatrist. I do feel like I am losing my mind....slowly....but if the Lupus is causing this shouldn't my rheumy help? A sedative so I can sleep would be a good start.
Oh my!, hope that stop soon. Living with Lupus , is a job within itself,smile. There is no fun at all for any of us! Nothing works out the way we want it to, and your doctor should refer you to doctor to help you with the mental part of this Lupus stuff…Beverly L.
Chrshrt said:
It took seven years for my doctors to make a diagnosis of SLE. I played golf one Sunday, like I had hundreds of times before and laid down to recover from the ordeal. It ususally takes about five hours to recover from the heat and exhaustion of playing 18 holes for me. However, this time I didn’t get up. I had terrible headaches, vomiting, diarrhea, and was delusional. After 10 days of this, my wife called 911 and then I woke up 14 days later in the hospital. The doctors at the time said I was suffering from renal failure and severe dehydration. They sewed a valve in my neck, did dialysis for 3 days and coaxed my kidneys to come back online. Out of the blue, play golf and end up in the hospital for 28 days. Three years later, out of the blue again, I spent two weeks in the hospital for DVT (blood clots) in the left leg. Extremely painful, couldn’t walk and ended up in the emergency room again. I have been on Warfarin for 5 years now. During that time, I did have three different family doctors, because my insurance kept dropping my doctors from the plan. Low and behold, last summer, I began to feel sick. I didn’t want to leave the house or go to work, or attend any fun or family activities. I was reading about Nick Cannon (Mariah Carey’s husband) on the internet. He had suffered the same maladies that had nearly killed me twice. So, on my fourth family doctor, I demanded that blood tests be taken to determine if I had Lupus. Turns out my ANA was sky high, my dsDNA was also sky high, I had a low C3 & C4 and a low sed rate. All indicating Lupus. It then took me six weeks to see a rheumatologist where he prescribed Prednisone. I took it for three months and I felt better. I took 12 weeks FMLA sick leave and when I went back…I started having anxiety attacks. I have lost all my confidence and I am considering leaving my profession of 23 years of being a middle school teacher. My rheumy refuses to help me with the mental problems and says go see a psychiatrist. I do feel like I am losing my mind…slowly…but if the Lupus is causing this shouldn’t my rheumy help? A sedative so I can sleep would be a good start.
I've been seeing doctor after doctor for about 15 years, all kinds of probable diagnosis that turned out to be false. I was finally diagnosed last year.