I’m still in Baltimore but leaving tomorrow. … saw dr carol ziminsky head of rheumatology and her P.A.1/2/2014…The we’re both very nice and extremely concerned for my situation… they didn’t come right out and say it but I don’t think either of them think I have lupus. .she said right now she could tell me a 150 diseases its not but as of right now isn’t ready to diagnose me with a named disease/syndrome. .they both agree what ever I have is very serious and want me to have lung, liver biopsies, maybe even bone marrow as soon as I get home. .she did observed I have "laxity of ligaments"she could tell by the way I sat with my legs criss crossed with my knees and hips touching flat on the exam table. apparently that’s not nnormal range of motion unless you are or were a gymnast and especially not for someone with my cartilage deterioration…she also saw it in my fingers… it’s an important observed, most EDS patients have it… hopefully it an important piece of my puzzle… the dr ordered 20 labs so we’ll see if her blood work is more telling but I told her what my dr at UM already knows, I look almost normal on paper lol…my b fiance over heard the dr and P.A. talking about me while I was getting dressed and he was was waiting outside the room. . There were saying how serious my situation is,obviously I know this or wouldn’t have been referred to them but it still sucks to hear. … The only time I’ve been upset or cried this trip was when her P.A. asked "if we can do 1thing for you, what would it be?"I said "please save me then I started balling. … I really feel like I’m be heald at gun point, begging for someone to come get me away from my crazy attacker:(I’ll be on the phone with my rheumatologist as soon as soon as I get home , I’ll have more info then. . I’m a week over due for cytoxin but not really sure if my dr will have me continue on it. … so many uncertainties 
I'm glad your trip seemed to be worth it. I hope they can uncover some answers for you. Keep us posted.
It sounds like they are on the right track to helping you. It is so frustrating waiting on test and blood work.
Praying for you! :)
I almost cried when I read your story. I well understand about searching for answers. I hope they can tell you something definitive when they get your labs back. Try to hang in there. Keep us posted.
Certainly will keep you in my prayers
Hi
I will keep you in my prayers.
I’m so sorry to hear how tough your struggle is, and so glad to hear you’re under the care of such insightful and caring doctors to work not only on solving the case, but also with you on understanding and managing with it! The quich identification and explanation about your ligament laxity shows they are sharp and want you to know what they are finding. Their attention to seriousness will lead to persistence… Keep up your strength and faith in a solution, and it’s okay to feel scared and express it like you did in their office! Wishing you comfort while you wait for answers.
It sounds like they will lead you on the right path. At least they covered so many tests I'm sure you will have an answer soon.
Keep you in my prayers.
Hugs!
You're in my prayers.