I pray for us all AnnA. But until we will keep the faith. I too have cataracts, which is totally new to me at my age (51), since I have had lupus for four years. Don't get discouraged and don't let anything or anyone discourage. Hold tight to God and keep on pushng on, and we here on LWL will keep on pushing on with you. Please pray that I get approved for my Social Security, I can't even walk some days because my legs hurt so bad, even when I am trying to sleep. I guess it the myositis. Many blessings and hugs!!!!
fighter...my thoughts are with you and fingers crossed it works your way with the social security with how ill you are.
Tez xxx
well, just about the time I think I'm getting use to this nightmare of a condition a new symptom or issue arises-so no I can't get use to this, each week, month or year something else unfriendly show's up knocking:(( I just try and remain as positive as possible and try to think that as bad as this crap is other's out there are worse than I.
Excuse my frence,,, BUT HELL NO.... I can never get use to this
amen sister! the other day my uncle told my cousin that she "likes to have surgery"
What!?@!
she was so mad and i know just how she feels. (i think she has lupus but her tests come back neg...that is familiar, right?)
yeah..we are tough and we do what we have to do, but we don't "ask for it" as some nincompoops think.
Hi Ann,
It says so much about it but i do need to see my GP about what levels i'm at and i would'nt be surprised if mine is low because come winter i'm in doors alot and come summer i can out 10mins the most and skin starts burning with my DLE.
Well i was born and bred in england and never knew to 34 languages for rain but there's most likely is if i go through different areas in england.
I'm just pleased for you yourself getting the benefits you want from learning about it. xxx
Ann A. said:
Hey Tez – the organization that advocates on behalf of vitamin D research in the UK is called the Vitamin D Association. http://www.vitamindassociation.org/
The video that you watched was from their 2011 conference. The other presentations from that conference are also available online. Have fun. http://www.vitamindassociation.org/events.html These videos do offer information to explain a great deal about health.
I am learning much about vitamin D in the UK from watching these videos. Dr. Oliver Gille is a special delight. When he talks about the weather (the English language has 34 words for rain) and compares the vitamin D related health issues in southern England with those in Scotland his brilliance really shines through. You will find his Sunshine Map of of the UK interesting. And I have to confess that I would probably be willing to try a deep fried Mars bar.
http://www.youtube.com/watch?v=XxMCuzZvZkQ&list=PLA825936E3D3C3DED
I am off to bed now. I will check in with you tomorrow.
Hi Ann A., I am so sorry you have to put up with these idiots, but we all have to everyday. These ignorant people make me so angry at times. I often think if they had to go through one tenth of what we do in one day they wouldnt cope. I wouldnt wish Lupus on anyone. But sometimes i think if someone just had it for a couple of hours to know what it felt like they would soon be begging for mercy. And as for saying you should be "used to it!". Thats the thickest and most ignorant comment i have heard in a while. I do know people like this myself. They just dont engage their brains before opening their mouths. I have a neighbour who is like this, she just says what she thinks before she actually thinks, so "think" is probably the wrong word, hehe. Anyway apparently she is always putting her foot in it with everyone. Trouble is because when its happening to us personally, we cant see that, and we feel so hurt and upset by these idiots comments. If they did think about what they said before saying it, like with what this person said to you, she would of reaslised that was a totally unkind and insensitive thing to say to you, as you have been struggling for forever. And if she was a true friend or a caring person, she would offer to help you with something, no matter how small it might be. Although coming across people who offer help of any kind are very few and far between nowdays sadly. Thats why for me, it is such a wonderful surprise when anyone does anything for me, no matter how big or small, i have so got used to doing everything for myself now, totally independant, it makes it so much harder accepting the help doesnt it?
I have alot of complex health issues to do with the Lupus and can totally empathise with you on what you are saying. I am having a huge flare at the moment, and its driving me crazy. I cant even remember what time i have taken my tablets, so i am writing down each time i have taken anything, as i am so scared i might make the mistake of taking too many, as i have done that before when i havent been with it. I ended up sleeping for nearly two days solid, it was quite scary. Everything is more of an effort than usual, its bad enough when i am ill with the Lupus without having more of a flare on top of the usual. I dont ever really have a remission period. I just get times where my ESR might be a little bit lower than it was before which does help, but its never low enough to say wow i feel good, which does get me down obviously. I try and distract myself if i start to feel low, as thats the last thing i want on top of everything else, but sometimes it cant be helped. We are both strong women, and thats why we have come this far so far. Well done for keeping strong, even if you might not feel like it at times. I am waiting for when my doctor gets back off his holiday which will be the beginning of May, then i can get some help, if i get much worse i will have to go to the ER which i really hate doing, so keep your fingers crossed and say a prayer i stay stablish until i can get a doctors appointment or even some miracle happens where i start to pick up again, that would be good, hehe, i'm hoping, eh, hehe. Anyway my friend, you take care, dont let the ignorant idiots get you down, you are stronger than that, look after yourself, thinking of you, love and hugs Astrid40xoxoxo
Astrid,
I hope you had a good rest the othernight and your flare as eased a little but i read what you sent Ann and just be careful with your meds mate if you can the way your feeling. xxx
astrid40 said:
Hi Ann A., I am so sorry you have to put up with these idiots, but we all have to everyday. These ignorant people make me so angry at times. I often think if they had to go through one tenth of what we do in one day they wouldnt cope. I wouldnt wish Lupus on anyone. But sometimes i think if someone just had it for a couple of hours to know what it felt like they would soon be begging for mercy. And as for saying you should be "used to it!". Thats the thickest and most ignorant comment i have heard in a while. I do know people like this myself. They just dont engage their brains before opening their mouths. I have a neighbour who is like this, she just says what she thinks before she actually thinks, so "think" is probably the wrong word, hehe. Anyway apparently she is always putting her foot in it with everyone. Trouble is because when its happening to us personally, we cant see that, and we feel so hurt and upset by these idiots comments. If they did think about what they said before saying it, like with what this person said to you, she would of reaslised that was a totally unkind and insensitive thing to say to you, as you have been struggling for forever. And if she was a true friend or a caring person, she would offer to help you with something, no matter how small it might be. Although coming across people who offer help of any kind are very few and far between nowdays sadly. Thats why for me, it is such a wonderful surprise when anyone does anything for me, no matter how big or small, i have so got used to doing everything for myself now, totally independant, it makes it so much harder accepting the help doesnt it?
I have alot of complex health issues to do with the Lupus and can totally empathise with you on what you are saying. I am having a huge flare at the moment, and its driving me crazy. I cant even remember what time i have taken my tablets, so i am writing down each time i have taken anything, as i am so scared i might make the mistake of taking too many, as i have done that before when i havent been with it. I ended up sleeping for nearly two days solid, it was quite scary. Everything is more of an effort than usual, its bad enough when i am ill with the Lupus without having more of a flare on top of the usual. I dont ever really have a remission period. I just get times where my ESR might be a little bit lower than it was before which does help, but its never low enough to say wow i feel good, which does get me down obviously. I try and distract myself if i start to feel low, as thats the last thing i want on top of everything else, but sometimes it cant be helped. We are both strong women, and thats why we have come this far so far. Well done for keeping strong, even if you might not feel like it at times. I am waiting for when my doctor gets back off his holiday which will be the beginning of May, then i can get some help, if i get much worse i will have to go to the ER which i really hate doing, so keep your fingers crossed and say a prayer i stay stablish until i can get a doctors appointment or even some miracle happens where i start to pick up again, that would be good, hehe, i'm hoping, eh, hehe. Anyway my friend, you take care, dont let the ignorant idiots get you down, you are stronger than that, look after yourself, thinking of you, love and hugs Astrid40xoxoxo
Hi Tez_20, Thankyou for your lovely message and pretty card, that really means alot to me. Especially at the moment. I am trying to be organised. Every time i do take any meds now i write it down immediately. I dont think and hope i wont ever make the same mistake again of taking too much. I had to go to the chemist to pick up a prescription. They have a chair in there, and these two women were standing in the way of it, really healthy looking women. Anyway neither of them wanted the chair, so i asked politely if they would mind out the way, so i could sit down, you should of seen the look they gave me, they literally looked me up and down, it was really wierd. I think they might of been outsiders if you know what i mean. They looked as though they had a real attitude problem even though one of them looked as though she was in her late 40's. There is nowt as queer as folk as i often say, hehe. The weather here has been up and down and wet and windy, and i am sure that affects our pain levels, i have been in more pain. When ever i spoke briefly to anyone, they were all saying the same thing that they felt all achy etc. I am sure when its damp we are worse. My skin has now decided it is going to break out in this wierd like eczema. One arm is worst than the other. I could scream at the moment. Thankyou for being there for me. I am sure i will get through it, i always do. One lovely thing that happened though was, the other day i had been speaking to the lady who works in the newsagents who i know, but not that well. Anyway i had mentioned about the fact i read to distract myself from how i am feeling as she asked me. Anyway, today she rushed out the back, i thought what on earth is she doing as i was about to pay for my goods. Anyway she came back and gave me to free quick read books that were being given away as freebies with the newspapers last week. They had a couple of spares, and she thought i might like them, that was really thoughtful. Anyway once again, thankyou so much for the beautiful card, and wishes, take care, look after yourself, thinking of you too, love and hugs Astrid40xoxo
Tez_20 said:
Astrid,
I hope you had a good rest the othernight and your flare as eased a little but i read what you sent Ann and just be careful with your meds mate if you can the way your feeling. xxx
astrid40 said:Hi Ann A., I am so sorry you have to put up with these idiots, but we all have to everyday. These ignorant people make me so angry at times. I often think if they had to go through one tenth of what we do in one day they wouldnt cope. I wouldnt wish Lupus on anyone. But sometimes i think if someone just had it for a couple of hours to know what it felt like they would soon be begging for mercy. And as for saying you should be "used to it!". Thats the thickest and most ignorant comment i have heard in a while. I do know people like this myself. They just dont engage their brains before opening their mouths. I have a neighbour who is like this, she just says what she thinks before she actually thinks, so "think" is probably the wrong word, hehe. Anyway apparently she is always putting her foot in it with everyone. Trouble is because when its happening to us personally, we cant see that, and we feel so hurt and upset by these idiots comments. If they did think about what they said before saying it, like with what this person said to you, she would of reaslised that was a totally unkind and insensitive thing to say to you, as you have been struggling for forever. And if she was a true friend or a caring person, she would offer to help you with something, no matter how small it might be. Although coming across people who offer help of any kind are very few and far between nowdays sadly. Thats why for me, it is such a wonderful surprise when anyone does anything for me, no matter how big or small, i have so got used to doing everything for myself now, totally independant, it makes it so much harder accepting the help doesnt it?
I have alot of complex health issues to do with the Lupus and can totally empathise with you on what you are saying. I am having a huge flare at the moment, and its driving me crazy. I cant even remember what time i have taken my tablets, so i am writing down each time i have taken anything, as i am so scared i might make the mistake of taking too many, as i have done that before when i havent been with it. I ended up sleeping for nearly two days solid, it was quite scary. Everything is more of an effort than usual, its bad enough when i am ill with the Lupus without having more of a flare on top of the usual. I dont ever really have a remission period. I just get times where my ESR might be a little bit lower than it was before which does help, but its never low enough to say wow i feel good, which does get me down obviously. I try and distract myself if i start to feel low, as thats the last thing i want on top of everything else, but sometimes it cant be helped. We are both strong women, and thats why we have come this far so far. Well done for keeping strong, even if you might not feel like it at times. I am waiting for when my doctor gets back off his holiday which will be the beginning of May, then i can get some help, if i get much worse i will have to go to the ER which i really hate doing, so keep your fingers crossed and say a prayer i stay stablish until i can get a doctors appointment or even some miracle happens where i start to pick up again, that would be good, hehe, i'm hoping, eh, hehe. Anyway my friend, you take care, dont let the ignorant idiots get you down, you are stronger than that, look after yourself, thinking of you, love and hugs Astrid40xoxoxo
First I want to say to Tez, that the gift you sent astrid40 was absoultely beautiful and who could be more deserving of such a gift. And my thanks to both yourself and AnnA. for the vote of confidence with the social security. I will get mad and I will keep on fighting, because that is my money and I worked hard to put it there for such a need. even though there were times when I couldn't work due to my handicapped daughter as she has severe cerebal palsy. Many blessings and hugs.
Hello Fighter,
Thank you so much on the gift i sent astrid because she's ill at the moment and such a lovely thoughtful person, you all are and it was the best thing i did hunting for this forum.
It will be a fight regarding the social...fingers crossed i hope it's not but sometimes it can be an issues besides a strain for people and such as yourself with this ontop.
All my love to you and your daughter as i've a cousin who as cerebal palsy but she struggles but to what degree now i don't know but what your daughter is going through is so hard...bless her and yourself for the love and support you give her.
Tez
fighter said:
First I want to say to Tez, that the gift you sent astrid40 was absoultely beautiful and who could be more deserving of such a gift. And my thanks to both yourself and AnnA. for the vote of confidence with the social security. I will get mad and I will keep on fighting, because that is my money and I worked hard to put it there for such a need. even though there were times when I couldn't work due to my handicapped daughter as she has severe cerebal palsy. Many blessings and hugs.
Hi Ann A., Thankyou for your lovely message. Thankyou so much for the prayers too. Aww, what a shame about the dancing. Its good to watch it though, it can give so much pleasure. Its so uplifting. I do really miss it, its an amazing feeling. Its like nothing else really matters if you know what i mean. You forget everything else. It is such a feel good thing. I always couldnt wait after school when i had evening dance classes. That was my dream to start my own dance school, i never did. At least i managed to teach though at a dance centre. Aww, i can just imagine your daughter trying to get up there and join in. I am so pleased she loved it. I hate it when children are made to do these things, because the parents are trying to live their lives through the kids, thats so sad. Its great to see when the children go because they want to, you can really see the difference of course. I know you dont spend alot of time with these idiots, its not like you. You are a very strong lady. These people just encroach into our lives at times, and because we are so nice, we think we will give them a chance, sadly they always seem to try and be hurtful and upset us. I have this neighbour who can and is so rude at times. I darent even leave my back door unlocked as she will just knock but walk straight in as though she owns the place, amazing isnt it really. Dave says he thinks she is still living in the times where people used to do that. Thats fine if she was family or my best friend, but she is neither, so why do it?
I do have one lady who is helping me still, she is doing it out of the kindness of her heart, she is at Uni, i think i may of said about her before. I am still filling in the financial assessment forms they have sent new ones out, I have had the care plan now, so we are getting further, but it has been six months so far, thankyou for asking though. It takes ages in the Uk when you need care. I dont know if you remember in January i think it was when i had the Pneumonia and MRSA, you would of thought they would of sent someone in then. NO, they cant, as they need all the paperwork done, and they wont as they wont pay for agency staff either as it costs more, which is understandable. The trouble is the govement has made so many cuts over here, that its a miracle if anyone gets any help, so i am really really over the moon and so grateful to be approved for some. I know i am one of the lucky ones compared to some. Anyway my dear friend, you keep strong, look after yourself, take care, bye for now, love and hugs Astrid40xoxo
Ann A. said:
Thank you Astrid,
I want you to know that whenever I watch dancing, I say a prayer for you. I have never been a good dancer. I was born with too many misalignment issues. But I love to watch dancing and to think about how great it would feel if I could move like that. The first time I took my daughter to the ballet, I was on crutches. And it was a good thing that I was. I had splurged on front row center tickets. I had to use the crutch to keep her from trying to climb up onto the stage. So I had no choice but to put her in a class. So I go to the dance whenever I can and when I cannot go, I watch dance videos. There are ballets, especially contemporary, on my bucket list. I do not reay spend a lot of time on the stupid people. I can wipe them out with one performance by anyone on my list of favorite dancers.
DID YOU EVER GET THE IN HOME HELP YOU WERE PROMISED?
Hi fighter, Are you okay my friend, i just saw your lovely message about the card etc, are you having abit of a struggle. Sorry i dont mean to butt in, i am just concerned. I hope you are okay darling., You keep hanging in there girl, you can do it. Take care, love and hugs Astrid40xoxo
Tez_20 said:
Hello Fighter,
Thank you so much on the gift i sent astrid because she's ill at the moment and such a lovely thoughtful person, you all are and it was the best thing i did hunting for this forum.
It will be a fight regarding the social...fingers crossed i hope it's not but sometimes it can be an issues besides a strain for people and such as yourself with this ontop.
All my love to you and your daughter as i've a cousin who as cerebal palsy but she struggles but to what degree now i don't know but what your daughter is going through is so hard...bless her and yourself for the love and support you give her.
fighter said:First I want to say to Tez, that the gift you sent astrid40 was absoultely beautiful and who could be more deserving of such a gift. And my thanks to both yourself and AnnA. for the vote of confidence with the social security. I will get mad and I will keep on fighting, because that is my money and I worked hard to put it there for such a need. even though there were times when I couldn't work due to my handicapped daughter as she has severe cerebal palsy. Many blessings and hugs.
sheila w I love that button... where did u get that.
Hi Draginfli,
Have they tested your Magnesium level as "Magnesium deficiency" can cause your Vitamin D and Potassium levels to be low also.
With Lupus these are the 2 main things which are affected, as Lupus struggles to keep them at their proper levels...i've looked several medical sites up which say the same.
Ann studying it though may give you more info concerning both but i'd definitely ask about your Magnesium level.
Tez xxx
My Potassium level 2yrs back came in high and the nurse plus doctor accused me of eatting to many bananas the best thing is i don't touch fruit but apparently you can make potassium to high then it affects your kidneys, i surpose it's eating the right food but certain levels daily, here's the main foods though for potassium.
Dried herbs, Avocados, paprika and red chili powder, cocoa powder and chocolate, fruit-dried apricots, prunes, zante currants and raisins, pistachios and other nuts, seeds-pumpkin, squash, sunflower and flax, Fish-pompano, salmon, halibut and tuna, beans, dates.
dragnifli some of those foods would double me up in stomache pain with my IBS but regarding the vit D i hope Ann can help you soon.
I'm going to admit here what i eat daily, no breakfast the thought makes me feel sick, 12 jaffa's for dinner, 5pm dinner-salads mixed with jacket potatoes, chicken, curries, etc as my hubby does the tea and believes in the right things and an hour later 7-8 turkish delight slices plus i smoke through my depression and do up to 20 a day. xxx
draginfli said:
Tez -
YES - I remember some things being said about my Magnesium level being low too - but there was much more discussion about the Vit D and then MUCH more about the Potassium. The Potassium was a really, really big deal, but no one told me to take it as a supplement or anything. I don't drink milk or lactose products - a bit sensitive to those ya know. Maybe I need to look and see what else can give me Vit D and Potassium? Try to make myself eat and eat those things? I'll do that since I can't test my levels. Maybe I'll feel a little better too. Ann said something about Nutrition being a good key or something.
Thank you! Draginfli
Hello Ann,
I hope you did'nt mind me replying to draginfli about the potassium.
I've just been reading your reply and how you mentioned (estrogen and testosterone) the brain surgeon i was under put me on tablets for estrogen as he said i carried to much testosterone as i suffered badly with my monthly's but those have been stopped now through an operation and also having PMT but it never worked and he had to fetch me off the tablet.
I looked at the links you put down in your last message from the seminar...i looked and read the first link and watched the video of the Uk on the 3rd link but on the 2nd which one is the main one down in month to watch, as i know i could'nt do them all through concentration. xxx
Ann A. said:
There are really only two ways to get vitamin D. The first is from exposing your skin to ultraviolet B rays between 270-300 nm. UVB rays at the correct wave length are only available year round to people who live below the 37th parallel. This means that they are available all year round in some places in the US but no place in the UK. Very few people with lupus can stay in the sun long enough to synthesize enough vitamin D. The other way to get vitamin D is to take supplements. There are few foods that contain vitamin D and it is not possible to consume them im amounts that are large enough to supply a sufficient amount of vitamin D.Vitamin D is not really a vitamin, it is a hormone (a steroid hormone like estrogen and testosterone) and that is why it is so important.
Magnesium (Mg) and potassium are both minerals which in very small amounts are essential to human health. The two minerals are known to interact. Some of the research that I have been reading strongly support the need to correct Mg deficiency in order to correct potassium serum levels. I don't know which of them really comes first. It may be a chicken and egg kind of them.
But when I keep my Mg level up, I do not have such a problem with the potassium. I like to get my magnesium by soaking in Epsom Salts rather than taking a pill. I always to remind myself that too much magnesium, doesn't matter if you take it by mouth or through the skin, acts as a laxative. Potassium - sodium balance is very important in maintaining blood pressure but since they add salt to almost all refined and processed foods but not potassium, the balance is often thrown off. Potassium in found in lots of fruits and vegetables and nuts.
http://www.ext.colostate.edu/pubs/foodnut/09355.html
I will be happy to provide additional references upon request and I have been sharing more of them in my blogs.
draginfli said:Ann,
My Vitamin D and Potassium levels are always low. I live in texas and avoid the sun (even with sunblock) and the heat (winter AND summer) as they equally just increase my fatigue and exhaustion. Good thing we all have central air here. I also get heavy discoloration on my face from even the winter sun after just a short minute or so. I have a cousin who works for a dermatological supply company (plastic surgery etc..) and she has sent me some RX grade (expensive) system to reduce the discoloration - it works pretty well. The heat also causes me to get weird rashes that come and go - some kind of 'wart looking' type thing. Anyway, my doc has mentioned my low Vitamin D levels, but has shown concern about the my low potassium levels. I had a surgery scheduled once and after checking the potassium, they rescheduled for 2 days and kept me in the hospital increasing my potassium level prior to the surgery. Are the two related? They both turn up low during my blood work. Vit D and Potassium? Do you know? I guess I could look it up on line, but you seem to know about it in association with Lupus.
I can't have my levels checked right now as I'm waiting for Social Security Disability and I have no money left and no insurance at this point. Just wondering what you or someone else might know. Thanks
Ann A. said:Hey Tez – the organization that advocates on behalf of vitamin D research in the UK is called the Vitamin D Association. http://www.vitamindassociation.org/
The video that you watched was from their 2011 conference. The other presentations from that conference are also available online. Have fun. http://www.vitamindassociation.org/events.html These videos do offer information to explain a great deal about health.
I am learning much about vitamin D in the UK from watching these videos. Dr. Oliver Gille is a special delight. When he talks about the weather (the English language has 34 words for rain) and compares the vitamin D related health issues in southern England with those in Scotland his brilliance really shines through. You will find his Sunshine Map of of the UK interesting. And I have to confess that I would probably be willing to try a deep fried Mars bar.
http://www.youtube.com/watch?v=XxMCuzZvZkQ&list=PLA825936E3D3C3DED
I am off to bed now. I will check in with you tomorrow.
I say Ann i love how your bringing it onto the forum....very proffessional mate. x
Ann, I'm not a thicko.lol but if you've done blogs on this and you print so proffessional about when answering dragnifli, the way we suffer with concentration is it best for me to read your blogs do you think??
Tez_20 said:
Hello Ann,
I hope you did'nt mind me replying to draginfli about the potassium.
I've just been reading your reply and how you mentioned (estrogen and testosterone) the brain surgeon i was under put me on tablets for estrogen as he said i carried to much testosterone as i suffered badly with my monthly's but those have been stopped now through an operation and also having PMT but it never worked and he had to fetch me off the tablet.
I looked at the links you put down in your last message from the seminar...i looked and read the first link and watched the video of the Uk on the 3rd link but on the 2nd which one is the main one down in month to watch, as i know i could'nt do them all through concentration. xxx
Ann A. said:There are really only two ways to get vitamin D. The first is from exposing your skin to ultraviolet B rays between 270-300 nm. UVB rays at the correct wave length are only available year round to people who live below the 37th parallel. This means that they are available all year round in some places in the US but no place in the UK. Very few people with lupus can stay in the sun long enough to synthesize enough vitamin D. The other way to get vitamin D is to take supplements. There are few foods that contain vitamin D and it is not possible to consume them im amounts that are large enough to supply a sufficient amount of vitamin D.Vitamin D is not really a vitamin, it is a hormone (a steroid hormone like estrogen and testosterone) and that is why it is so important.
Magnesium (Mg) and potassium are both minerals which in very small amounts are essential to human health. The two minerals are known to interact. Some of the research that I have been reading strongly support the need to correct Mg deficiency in order to correct potassium serum levels. I don't know which of them really comes first. It may be a chicken and egg kind of them.
But when I keep my Mg level up, I do not have such a problem with the potassium. I like to get my magnesium by soaking in Epsom Salts rather than taking a pill. I always to remind myself that too much magnesium, doesn't matter if you take it by mouth or through the skin, acts as a laxative. Potassium - sodium balance is very important in maintaining blood pressure but since they add salt to almost all refined and processed foods but not potassium, the balance is often thrown off. Potassium in found in lots of fruits and vegetables and nuts.
http://www.ext.colostate.edu/pubs/foodnut/09355.html
I will be happy to provide additional references upon request and I have been sharing more of them in my blogs.
draginfli said:Ann,
My Vitamin D and Potassium levels are always low. I live in texas and avoid the sun (even with sunblock) and the heat (winter AND summer) as they equally just increase my fatigue and exhaustion. Good thing we all have central air here. I also get heavy discoloration on my face from even the winter sun after just a short minute or so. I have a cousin who works for a dermatological supply company (plastic surgery etc..) and she has sent me some RX grade (expensive) system to reduce the discoloration - it works pretty well. The heat also causes me to get weird rashes that come and go - some kind of 'wart looking' type thing. Anyway, my doc has mentioned my low Vitamin D levels, but has shown concern about the my low potassium levels. I had a surgery scheduled once and after checking the potassium, they rescheduled for 2 days and kept me in the hospital increasing my potassium level prior to the surgery. Are the two related? They both turn up low during my blood work. Vit D and Potassium? Do you know? I guess I could look it up on line, but you seem to know about it in association with Lupus.
I can't have my levels checked right now as I'm waiting for Social Security Disability and I have no money left and no insurance at this point. Just wondering what you or someone else might know. Thanks
Ann A. said:Hey Tez – the organization that advocates on behalf of vitamin D research in the UK is called the Vitamin D Association. http://www.vitamindassociation.org/
The video that you watched was from their 2011 conference. The other presentations from that conference are also available online. Have fun. http://www.vitamindassociation.org/events.html These videos do offer information to explain a great deal about health.
I am learning much about vitamin D in the UK from watching these videos. Dr. Oliver Gille is a special delight. When he talks about the weather (the English language has 34 words for rain) and compares the vitamin D related health issues in southern England with those in Scotland his brilliance really shines through. You will find his Sunshine Map of of the UK interesting. And I have to confess that I would probably be willing to try a deep fried Mars bar.
http://www.youtube.com/watch?v=XxMCuzZvZkQ&list=PLA825936E3D3C3DED
I am off to bed now. I will check in with you tomorrow.
Ann,
Don't apologise i think it's lovely how something is keeping you really simulated wish i was the same but how i am like so many of you lake concentration i can't take a boat load in.lol
I admit my diet is really bad, i used to eat healthy but as i've gotton older something drives me for chocolate all the time and when i eat it, i get a boost for abit then want more but ste makes me eat a descent meal at night and when he found out about the DLE he told me i could'nt keep my sunbed so that went but he could see marks on my skin when the lamps was on.
The links you've given me now i shall watch tomorrow as i've got a nice quiet day and i can take more in.
Thanks such alot for sorting the links for me. ((Hugs Tez)) xxx