What happened with this Lupie?
It is still in progress. Drs nurse said she didn’t think they would do anything about it. Wouldn’t write a note, a letter to disability company or call them. Dr got back from vacation, nurse talked to him, and double booked me in to discuss it. Not sure what will happen. Nurses take was stable means not in a flare. Normal conversation in a drs note. The doctor has papers from disability company asking lots of questions to determine disability. I was already put on permanent disability by them 20 years ago. My dr doesn’t do those forms since he is a specialist. I have a new primary who doesn’t have an appt til oct but on waiting list. So that’s a big I dunno.
Well, it’s worse than I thought. Went to rheumy today and told him they objected to word stable. For first time dr asked a few questions about daily life. Then when I reminded him about the word used and the paper he has to fill out, things changed. I’ve been on paid private disability 25 yrs. he said he’d have to look at my labs from today before he filled it out. What? Like labs make a difference in how I feel? Not to mention I have fibromyalgia and lupus and both were the reason for the disabilities. So if I don’t happen to be flaring today, which I think I am, then I can go work? What about the fibro and brain issues? Then to make it worse, I called to update dis insur company. Come to find out, the stable word wasn’t the biggest problem. The dr unbeknownst to me or said during the visit, told them I could do a sedentary job! R u kidding? I have extreme fatigue, can choose either to make dinner or grocery shop, the next day wash my hair or wash the floor in daily choices. My big energy draining activity for the day. I have migraines 5 out of 7 days. I have huge confusion, decision making problems and can’t run my own life . My kidneys work 50 percent, neuropathies, etc etc. is this guy serious? The labs don’t tell him anything about my fibro, brain, IBS, arrhythmias, neuropathies etc. he is blowing this up right in front of me without a blink of an eye! He never even once in past year asked me about my daily living problems in order to make that conclusion. This is not looking good.
I'm SO sorry. It sounds so much like my story. I wonder if a disability lawyer can help you get what you need by telling your Dr. how limited you are or by using another Dr. SO frustrating!
Sorry to hear this is similar to your story. Quite shocking. I can’t afford a lawyer. There wouldn’t be any money for him in solving the case as it hasn’t been cut off yet to get a percentage of the money. I am just shocked a prominent dr doesn’t get the fact there aren’t labs showing how I feel for fibro and I don’t think lupus labs are an accurate description of how we feel either. Time will tell how this plays out. I do have a neurologist and cardiology consult in a few weeks to help.
Lupie,
I'm so frustrated for you. Memories!! You don't have to pay a disability lawyer. They get paid from your first check, and your first check will include all the back pay you are owed, which started on day 1 of when you were too disabled to work. Something is wrong about them relying only on labs. There is a part of the disability called 'FUNCTIONAL ABILITY" that assesses what you are and are not able to do on a daily basis. That is what many of the disability cases are based on. I know whole towns who are on disability, just cuz it's the custom there, and they all claimed "lower back pain". There is no test for them to rely on with back pain. Also, The first time I applied for disability, I was turned down. The denial letter said "Even though we acknowledge that you have 8 serious conditions, any one of which is disabling, we still think you can do office work." SO the next time, I applied with intractable depression, and severe pain that made me need pain meds. No employer is going to hire someone who can't pass the drug test. So I got my disability on depression and this terrible pain. Maybe that's the way to go, but a disability lawyer (that you don't have to pay) could help you with this. That's ALL they do. They know what wording gets a person in or out. You can NOT do office work. Have you ever seen an office without fluorescent lighting? WE CAN NOT BE UNDER THOSE LIGHTS! It's just like the sun, with UVA and UVB. So that's another thing to add to the file. A disability lawyer WILL get it for you. I have heard of people nation-wide who have used Binder & Binder, no matter where they live, and got disability. If you don't qualify for SSI, you will qualify fr SSDI. You can also check your phone book or 411.com for local disability lawyers. Here's a site that tells where all the offices are for Binder & Binder.http://www.binderandbinder.com/Offices/.
Still hoping and believing you will get it! Their 800 number is at the top of that page too.
Great points about tons of stuff I didn’t know!! Thank you. I will check it all out. We have a Binder and Binder here. So I guess 8 problems just not enough huh? Wow. I am soo happy you finally did get it though. The people that don’t deserve it seem to get it easily while those truly sick have problems. Someone I know got disability for being a drug addict!! Really? Thanks for answering my post!
Lupie, I also made up this document to help with all areas of life for people who are in a financial strait, as in waiting for their disability to come through. Your city might have subsidized housing funding available. If it's the type where they tell you where to live, that would be awful, but if it's like my city where you can live where you want, it would be a blessing. Google "My City Subsidized housing". Here is the document I made, I hope some of it helps. There is also social services if you get really stuck.
http://forum.lifewithlupus.org/forum/topics/help-for-low-income-americans
Thank you!
Did you say you live in New Jersey? I can provide you with numbers and websites for legal FREE assistance for people with disabilities!! I asked around and got a bunch for you! Let me know?!
Hi no. I’m not in NJ BUT THANK YOU! I’m in SC. since I don’t get any support from my family at all it’s so nice that yu would look into it. Also, everyone cares enough to reply. Sometimes it’s me against the world but it’s not that way anymore. Knowledge is power too. The fellow with this dr is helping me get a paper case going on the chart of immune system issues. She is more on my side than he is.
Izzy, I'm helping a lady in NJ, she could use that info too, if you don't mind sharing with me too. I'll add you as a friend so you can private message m e or even post it here if you want.
Here is a link to the google drive with all the systems in NJ state wide and then by county: https://drive.google.com/file/d/0B8z4pVG-aFiBOVVPTXhfc01KWXVIUHdjTklDVmdTdDFRQlow/edit?usp=sharing
Hopefully the link will work cause I'm having trouble with Word on my Mac right now, so everything is in Google Drive, sorry! Let me know if you can't access it and I'll repost from another computer!?!
Thanks Izzy! It worked fine!
How did this situation resolve for you, Lupie?