Feels like ive been hit all over my body with a hammer

How r u feeling now? I know I made it sound simple when I wrote about taking a bath, to help ease the pain, but I do know how awful the pain can get. Sometimes I have headaches that r so awful I ask my partner to squeeze the side of my head or use a wood clamp (which he refuses to do the latter) just to ease some head pain. The body pain is unbearable & I have tried every drug out there, but the side affects can be worse.

I've heard, read & talked to people who used stem cell therapy, both fetal & adult combined, & had very good results. The problem is fetal is not allowed in this country, (even though the fetal cells come from waste material) & the cost of this treatment is at least $30,000.

I am now mostly praying for comfort. Praying for the pain to ease & praying that all of us who suffer from this awful disease, r cured!!!!!

Peg, the bath was a great suggestion hun. Epsom salt works wonders on joints. Also, I know you have probably heard this before and were weary but try WD-40. It is all natural, plant based ingredients and I have heard it works wonders on joint pain. I also go to the Dollar Tree in my area because they have icy hot back and body patchs for only a dollar. They are amazing. Aleve used to help me but I can’t take NSAIDS anymore due to my kidney issues. You can take a suppliment for joint health as well. I hope you all start having better days soon. Good luck and stay blessed.

Hi Destiny-wow-----WD 40!! No, I have not heard using this can be helpful.... I don't think I would chance using it, 4 I react to so many things, so I have to do Keno testing on myself first.

I do use Lidoderm patches & they help a lot.

Ok so most stuff I do research. I didn’t research the WD-40 though. It is true that it contains natural ingredients but some, the propellant is flamable so I wouldn’t recommend it now that I read that sorry. I guess some people are willing to risk it to find relief. However, the rest of what I talk about, I do take the time to read stuff over so I am aware of what I am suggesting. I’m slipping today, that’s
for sure.

Hi Kel

I am in the exact same situation. I have to drive so far to see my rheumy. Then its charity so appointments cant be scheduled the way they r suppose to. I have to wait two and three months between appointments. It is taking forever! Also I was on awaiting list for almost two years before I got in. They are only in clinic once a week from like 7:30 to 8:45. So they only see a few patients a week, its absolutely ridiculous. By the way I have to deal with this because im on disability and have Medicaid for insurance. There are no private Rheumy's that take the medical card around here. I live a few miles north of Lake Charles Louisiana. Where are you from Kel ? I pray that maybe one day someone will see one of my posts or reply's about my situation and be able to recommend a doctor who does take the medical card at a private office , im willing to drive around 2 hours. I don't really need to be diving that much really but I will. When I drive while the sun is out bright it effects my eyes and they for some reason keep forcing shut. I'll fight and fight to keep em open. I will be wide awake , not sleepy r anything. Anyhow I pray blessings and peace over ya'll in the mighty name of Jesus Christ (:

kel said:

thanks, i live in a pretty small town not many doc's around here i'd use i have to drive 21/2 to 3 hrs to see my rheumy

Destiny Scott said:

Meant garbage can ugh. Gos bless dear

My two cents:

Prednisone can absolutely cause or increase muscle pain and spasms

Fibro, in an of itself, can cause what you are describing and so can lupus

Also, a brewing infection will make me feel like that too. Due to my immunosuppression, infections/viruses make me feel like I've been hit by a truck for a few days before the obvious symptoms of the infection/virus hit

I do have a couple suggestions that will sound like the stupidest thing you've ever heard in your entire life. I know because when it was suggested to me, I was convinced no one who was suggesting it to me could possibly understand the pain/fatigue i was going through or else they wouldn't have made such a stupid suggestion. BUT----I tried it. And it wasn't such a stupid suggestion after all. It did help:

Try a yoga class. Specifically, a yoga class targeted for seniors. Can often be called "gentle yoga" or "chair yoga". Just tell your instructor ahead of time so you can ask for modifications.

I had never done yoga in my life. I don't have enough energy most days to do the simplest things like take a shower, or walk a block. But I drug my butt to a yoga class, and it wasn't exactly pleasant at the time, and I felt like a fool because I was the youngest person in a class full of grannies who seemed to have the flexibility of dallas cowboy cheerleaders compared to me. But it helped. It helped so much I did it again!

And...even better...pool exercises/aerobics. Low impact but very helpful, especially if you can follow it up with a whirlpool or sauna. I felt like a different person. At a local YMCA, they even have a specific pool "fibromyalgia" and arthritis water aerobics. You have to do it slow and ease into it over a span of weeks, otherwise it will cause tremendous initial pain as your body won't be used to it.

Another thing that is helpful are these things called trigger point balls and foam rollers. They are used often in physical therapy. You can substitute "lacrosse balls" or tennis balls for the specific trigger point balls in a pinch. There are various exercise methods built around the use of these balls as a myofascial release mechanism. One is the MELT Method, there are also videos on these on youtube to show you how to use. Don't get me wrong, they HURT LIKE THE DICKENS when you are using them, like yelp out loud hurt. But afterwards you can often tell an improvement, at least I have.

Another thing that might be helpful is a good massage therapist. Just any-ole massage therapist will not cut it, you want one trained in myofascial release and fibro techniques. I tried massage and it was not helpful and was about to give up, when by happenstance, I got an AMAZING person at the spa I went to. He did a massage with partial myofasical release, part swedish, and incorporated eucalyptus oil and ended with biofreeze. It was like heaven--my muscles were singing Hosannah! Sadly, for me, he quit and I haven't been able to find anyone else quite as competent yet.

I tried to talk to my doctor about prednisone and all she cared to reply was: prednisone is an anti inflammatory. Why do I feel worse then? I was just in the hospital a whole week. Was out and got sick again. More infection and at a loss. To top it off, my doctor finally got a referral for.me but it was to my old rheumatologist who is too far away. Waiting game stinks when you feel so awful. I am hanging in there. The best thing I can do. I got a new, long haired kitten for.my birthday. No matter how nad I feel, he puts a smile on my face. Glad for sweet blessing.

Destiny - You are the one who always has wonderful information and is so supportive. I am so sorry the tables have turned and you are in pain and feeling awful. I wish there was something I could say other than I'm thinking of you and sending you love and healing...Susan

Destiny Scott said:

I tried to talk to my doctor about prednisone and all she cared to reply was: prednisone is an anti inflammatory. Why do I feel worse then? I was just in the hospital a whole week. Was out and got sick again. More infection and at a loss. To top it off, my doctor finally got a referral for.me but it was to my old rheumatologist who is too far away. Waiting game stinks when you feel so awful. I am hanging in there. The best thing I can do. I got a new, long haired kitten for.my birthday. No matter how nad I feel, he puts a smile on my face. Glad for sweet blessing.

Aww thanks so much Susan. I try to stay positive and supportive. This disease cam get the best of us at times. It’s smart to have something to fight for or help you through your battle. I am blessed to have my wonderful children and I love my pets. This kitten keeps a smile on my face, no matter how awful I feel. Thank you for the support too. It’s always nice when you know, people care.

<smile>