Hi everyone !!!! Hope that everyone is doing-okay !!!!!!!!!!!smile This is a good topic to talk about. Well for me i think both are good ( the peers and the doctors ) !!
Talking with my PEERS:
1. Gives me moral support , "that help me to deal with how serious my condition & pain are and will become . "
2. Helps me to deal more clealy that Am Not Alone , with the suffering and times when noone else knows (have a clue), of what am going through...
3. Shared experinces of the effects of the situations of emotion and mental stress that comes along with Livng with this LUPUS disease.
4. Knowing that there is someone else , somewhere is having the same problem as me, makes me feel better sometimes and that goes back to number 2. ... smile
5. How another dealt with the pain, gives me insight of what i can & will not do to have such pain ( perpares me mentally -if it was to happen to me .. you know the possiblity !!!!) , even if it dosen't happen .
6. COMPASSION!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! and it's great that the support is there (well here ).
Talking with the Doctor's :
1. Information from the start with me helped to calm me down!!!!!!!!!!!! When the doctor gave me the diagnoise , i was so out of it; not understanding NOTHING- it was hard - my doctor showed me alot of Comfort...
2. They helped me to manage this LUPUS stuff with surety that it was up to me to live a normal life , with the understanding that there will be GOOD days and BAD days , and there will be days that the PAIN would make me ,(in my words LOSE MY MIND!!!!) hard to bare.
3. The first meds., that were given to to me were totally not for me !!, but the doctor came back within 2weeks, with the ones that am taking to this present day, is part of my plan of Hope to fight this LUPUS stuff!!!! and am VERY Thankfull for this .
4. The visits are also good , they get me in and get me out!!!! , (because the air condition , is a KILLER for me .... LOL), they understand that it hurts my body soooooooooooooo bad !!!!!
5. I have no complaints , my team of doctors , nurses, and the staff have been GREAT since Feb. 7, 2011.
Well thanks for the time , of letting me share my words and feelings and hope that have relief for some . Taking the time to understand and expressing what is going on with you ( myself), helps alot !!! There are those that do care and will care, if you LET THEM!!!!.... Beverly L.