I was visiting my dad the other day and he made a passing comment to my mom that I didn't want to get better. I was diagnosed with lupus about a year ago and I'm doing much better, but I am not near as active as I used to be. I try not to say anything to my parents or sister about it because they seem to think it's just what the doctor diagnoses you with when he really can't find anything else. It's sad to feel I can not go to them for support if and when I may need it. Anyone else have similar problems?
I'm so sorry you heard that comment. that's very disappointing from your father.
Thank you Scott.
My mom tells me on bad days to ignore it and it will go away since she has fibro SHE knows. ok i have fibro, lupus, endometriosis, chronic migraines, and 2 boys (2&3). she was diagnosed with fibro 3 years ago with no kids at home. yes fibro hurts but she wont even listen to me. i want to bang my headhead against the wall!! good luck you definitely arent alone
Thanks Taesra! Misery does love company. I grew up in a family where you were not allowed to feel bad. It was considered a weakness. My sister was told she might have lupus about a decade ago due to joint pains, but she actually had arthritis in her knees. I've no doubt she is the one that has been giving dad her definition of lupus. I know for a fact she has never suffered a day with the debilitating fatigue. She is always on the go. She just asked me if she could stay here for a couple of weeks during the day after she has knee surgery for me to take care of her. No mention of whether or not I'd be able to. I hope you are feeling good today!
Taesra said:
My mom tells me on bad days to ignore it and it will go away since she has fibro SHE knows. ok i have fibro, lupus, endometriosis, chronic migraines, and 2 boys (2&3). she was diagnosed with fibro 3 years ago with no kids at home. yes fibro hurts but she wont even listen to me. i want to bang my headhead against the wall!! good luck you definitely arent alone
I can relate to this because my family sems to feel as though this is something I can cope with by myself
I'm sorry fearful...sometimes I think that if I was destined to have an illness, why couldn't it have been something more people understand.
fearful said:
I can relate to this because my family sems to feel as though this is something I can cope with by myself
Thank you you guys and girls are giving me strength today I am full ofm anxiety and panic and I also think I am having what do you call it ? a flare up? I'm not sure am new to this.
i understand! I seem to always feel yucky, but I've been laid out for a few days with what I assume is a flare. I'm a newbie at this as well. Hope you get to feeling better soon!
fearful said:
Thank you you guys and girls are giving me strength today I am full ofm anxiety and panic and I also think I am having what do you call it ? a flare up? I'm not sure am new to this.