COMPUTERLY challenged? oh thank you s o much, I'm in good company made up new word wise. : ) And if JC could do it, th check it out thing would really help people to know what is happening.
So, we need 1 time good for east coast, 1 for west coast. Do same time and day for each one every week, like a schedule. Example: Tuesday chat Eastern Time 8 p.m Saturday chat West Coast time 9 p.m. just examples, don't know what works best for all, I sleep in shifts, very abnormal.
(maybe later add a late night or across the pond one? Some one PM'd me about a late night one)
Topics -
1. info for newly diagnosed, someone or several there who could do justice to fielding questions would be great
2. an informal get together, laugh, get to know each other
3. signs of serious disease progression or flare, and tips for handling them
4. sharing self helps, from diet, to non heat and sun friendly realistic exercise, etc
5. coping with daily life, learning to say no and put yourself as a priority without feeling guilty,
6 inspiration and motivation sharing time
7. dealing with family matters and concerns in a positive way
8. being your own best advocate (read: how to deal with all the medical madness)
9. obtaining benefits if you become unable to work (disability or SSI, funding for wheelchair modifications to your home if ever needed, and so forth)
10. how to keep a positive attitude, live from a place of gratitude, count your blessings and other coping mechanisms to de-stress
Hands now pooped. Enough from me. Some others I may not have thought of?
Thanks DeAnne, hugs back. You rock.
whathappensinvegas said:
Hi hon,
I know you are having a really difficult time right now, so if you just want to suggest some times and topics perhaps we can convince one of our computer angels (JC...) hint, hint could do that little "Check out" section that I read every day. I am seriously computerly challenged.
Glad you are back with us, sweetheart.
DeAnne
ohsoperplexed said:
DeAnne, agree, use what Ben and JC have graciously put in place. The Newbie topic a great one to start with have noticed many here lately, and know what it is to feel lost, unsure of what to expect. Send me a PM, we can work on the 2 times, and I need a few days, typing through tears now. I'm east coast, you are west coast, so between us we can figure out times, Thank you !
whathappensinvegas said:
OSP sweetie,
You know I will talk anytime I have the time. Let's set up some times starting this coming week. We have several new "lupies" maybe our first chat should be on just "what to expect for a newbie". You know what I mean...the 400 doctors, the gallons of blood taken for tests, what results mean, what to expect physically, etc. Just an idea. If you want to start with something else by all means let's do that. I still think 2 times a week, just because there are some days that some of us can't physically get on the computer.
Let's use what Ben and JC have been so wonderful to set up for us.
XOXO,
DeAnne