Is anyone taking Benlysta? Can you tell me how it's worked or how well you have tolerated this medication?
hello.
I am on benlysta since Jan... i noticed immediate postive reaction. for me, it does exactly what it is suppost to. it slows the joint dammage down by bloing a lot of the cells attacking.
i dont have a lot of pain in my joints anymore when doing regular upkeep; walking, eating raw or healthy foods, sleeping more.
In my opinion it doesnt help if your acitively doing things to improve life with lupus. but if u do....its a great medicine to support and slow the immube system down.
I actually can tell physically the week before that its time for an appt...because i begin having flares... soit definitely works for me.
and i am african american. they said before this meds wasnt good for us. but that wasnt the truth.. they didnt have enough blacks teting the meds....to say it works for those of color.
but as a woman.. it has helped my ife tremendously/.
our insurance changed recently...so i am dealthy afraid to the issu of cost. I saw a statment for 1200..... and wondering if there is a mistake..
my old ppo insurance paid 100% except coay of 55.00
the meds are 5000.00 there is no way i can cover 1000 each treatment...hoping this issue is resolved soon.
Thank you for your in site on this! I have been flaring recently and wanted to discuss this with my rheumy tomorrow. I'm so glad it is helping you. I was worried about the cost. The drug company did send me an info packet. You may want to go to www.benlysta.com and look into their program they have to assist with co-pays or cost of the medicine. :)
LIFEwithLupus said:
hello.
I am on benlysta since Jan... i noticed immediate postive reaction. for me, it does exactly what it is suppost to. it slows the joint dammage down by bloing a lot of the cells attacking.
i dont have a lot of pain in my joints anymore when doing regular upkeep; walking, eating raw or healthy foods, sleeping more.
In my opinion it doesnt help if your acitively doing things to improve life with lupus. but if u do....its a great medicine to support and slow the immube system down.
I actually can tell physically the week before that its time for an appt...because i begin having flares... soit definitely works for me.
and i am african american. they said before this meds wasnt good for us. but that wasnt the truth.. they didnt have enough blacks teting the meds....to say it works for those of color.
but as a woman.. it has helped my ife tremendously/.
our insurance changed recently...so i am dealthy afraid to the issu of cost. I saw a statment for 1200..... and wondering if there is a mistake..
my old ppo insurance paid 100% except coay of 55.00
the meds are 5000.00 there is no way i can cover 1000 each treatment...hoping this issue is resolved soon.
i did use this last year -- but never actually used" it-- since my insurance was 100% -- but definitely willretry this year. i do not want to stop this medicine. It is really working for me. i do the treatments right there in the rhuemotologust office
Dobby said:
Thank you for your in site on this! I have been flaring recently and wanted to discuss this with my rheumy tomorrow. I'm so glad it is helping you. I was worried about the cost. The drug company did send me an info packet. You may want to go to www.benlysta.com and look into their program they have to assist with co-pays or cost of the medicine. :)
LIFEwithLupus said:hello.
I am on benlysta since Jan... i noticed immediate postive reaction. for me, it does exactly what it is suppost to. it slows the joint dammage down by bloing a lot of the cells attacking.
i dont have a lot of pain in my joints anymore when doing regular upkeep; walking, eating raw or healthy foods, sleeping more.
In my opinion it doesnt help if your acitively doing things to improve life with lupus. but if u do....its a great medicine to support and slow the immube system down.
I actually can tell physically the week before that its time for an appt...because i begin having flares... soit definitely works for me.
and i am african american. they said before this meds wasnt good for us. but that wasnt the truth.. they didnt have enough blacks teting the meds....to say it works for those of color.
but as a woman.. it has helped my ife tremendously/.
our insurance changed recently...so i am dealthy afraid to the issu of cost. I saw a statment for 1200..... and wondering if there is a mistake..
my old ppo insurance paid 100% except coay of 55.00
the meds are 5000.00 there is no way i can cover 1000 each treatment...hoping this issue is resolved soon.