My Ana for lupus is positive but all of the tests for the most common kinds are negative…any ideas of what else there is?
ANA is not a Lupus test, but is a puzzle piece for several things. The one that comes to mind first is Sjogrens. There are a number of other arthritis types as well
Not saying that it isn’t possible but I’m not even 40 yet. And of the symptoms…I have the prolonged fatigue and joint pain…pain usually in my legs as if someone is poking my bones with needles and sometime driving extremely long needles up the leg while scraping along side the bones. I am getting pain in ovary area that reals like at times really bad menstrual cramps but had ultrasound done and was told that there is no ulcer and everything looked beautiful…get the same pains that I get in my legs also in my feet. I am looking for any ideas and one hell of a support system for I am scared and not just for me but I have 4 beautiful children that need me and I have gone from feeling on top of the world to feeling like a complete waste…I have gone into a downhill spiral in the past year…and became an emotional wreck…that isn’t me and I am trying to reach out which is not my norm.
Auto-immune arthritis and related disorders have NOTHING to do with age. That pain in the "ovary area" is very indicative of enthesitis that comes with a couple forms of arthropathy. its also called Adductor enthesitis (entheses), Pubalgia ( can have a tear, a strain or a enthesitis with Calcification, of an inguinal nerve in the lower abdominal regions: perineum, groin,hips and the thigh, or is actually starting in the lower back by the SI joints and radiating down or outward.
In women of age forty or so it can also signal the start of ankylosing spondylitis. You need to get with a very SHARP rheumatologist
Thank you and now I need to do some more major research on those words you just used. I appreciate any help i can get at this time.
TJ1 Are you a physician?
Hello Wolf1029, I am new to group but would like to share my story! I tested ANA positive a year ago. I had joint and muscle aches as well. My rheumy ran a lupus panel and everything came back negative. I was given a fibromyalgia diagnosis. My urine always tested positive for blood and protein, and my rheumy just told me at the time that she would just keep her eyes on it. I stopped seeing my rheumy for about 6 months due to financial issues. On Saturday of this month my family and I visited Wild Adventures and while I was there I noticed a rash appear on my cheeks not painful though. After arriving home I became overly tired. A tired that I had never experienced. I went to a walk in clinic and I told the doctor about the rash and that I had a positive ANA from a year ago. He checked my CRP levels which came back elevated. My knees elbows fingers and shoulder was very achy and I had a low grade fever. He told me that I have lupus and he prescribed steroids to me. I had been dealing with the ill feelings for a very long time especially fevers sometimes they were low grade fevers. Just recently I developed two bald spots in my head and now I’m just losing hair all over. It’s thinning out really bad. I feel that sometimes you just have to wait and see if the ANA does become something because ANA alone is not enough for a diagnosis. Just make sure you keep a journal of all of the symptoms that you are having. Good luck!!!
Hi Wolf 1029 -
I will get pains in my ovary area also. Was having abnormal paps so we did a check for cancer and I also did a ultrasound, it came out normal.
I am wondering if it might be a part of a flare because I feel it most when I don't feel good, otherwise I don't feel it?
I haven't been diagnosed with Lupus for very long (6 months) so I can't give you any advise but wanted you to know there was someone else having the same issue.
I was advised to journal my symptoms and I find it helps a lot because you can take it to the doctor with you and that way they will keep an eye on things.
Sometimes it seems like we must deal with pains for awhile before the doctors "get" it.
There are alot of other tests they can do, however have you gone to a gyne for the ovary pain, what you describe sounds similar to my experience close to the time I was diagnosed with lupus, it turned out to be endometriosis, something I understand now is extremely treatable, 35 years ago it wasn't. I guess you could say it was my first clue that I was autoimmune its worth looking into. I hope you get the help you need good luck to you
Hopeful brought up endometriosis and I wanted to add a couple of things in case this is what you are feeling. I had severe endometriosis, for 20 years I lived with the pain. It does feel like severe menstrual cramps during your period and than in between your cycle. The pain would come and go. An ultrasound can not detect endo, only through a surgery can they see if you have it. As the endo gets worse the pain grows in intensity. I hope this helps.