Mia it's funny Jen mentioning them and you've been put on them today...well i'm wishing you mate all the very best of luck for tomorrow.
Love Terri :) xxx
Mia said:
I saw the homeopath today and she put me on vitamin d drops and tomorrow I see the rhuemy wish me luck ;)
Terri,
Thank you for the link concerning possible treatments, it was very helpful and informative.
Dee
Tez_20 said:
Hello dee,
Thank you for updating we all on what's been happening with yourself and lets hope the bloods come back confirming something one way or the other so you know personally why your suffering.
I'm not working at all now my life stopped at 18 and i'm now 44 but with how we suffer working will put a strain on you mentally and physically and we've so many members who have totally stopped through this issue...your daily life should be paced slowly so your body does'nt get pressured.
Regarding steriods they don't suite me either and i refuse them...Plaquenil is a none steriod drug which is excellent for DLE/SLE which so many of us are on, i take 400mg daily, it's surposed to take upto 6mths to work but myself and other members have seen the difference at 3mths it's all down to the individual.
There is stronger drugs which are steriod based but you need to see what your rheumo says first and how bad you've got it and this link below mentions drugs for Lupus and which are steriods and which are'nt.
http://www.arthritisresearchuk.org/arthritis-information/conditions...
Regarding home remedies and herbel medications which PHELP as mentioned...these always need to be checked first with your consultant and they're known for reaction with some Lupus suffers.
If i was you when you see your rheumo i'd push for Plaquenil.
Love Terri xxx
Hi Mia
Oh that's good news - hopefully it will work for you too : ) What I forgot to add is that I take three drops a day just with my other medication, but I believe it's still quite a low dose.
Hi Terri,
Thanks for your comment! I was given mine from my doctor - I think they ordered them in. It's the only thing I've ever got over the counter (still with a prescription) at the doctors.
Hi Dee
I've found Plaquenil has made a huge difference for me. Plus anti nausea tablets and initially anti imflammatories. I'm also on a very low steroid dose, but it's the plaquenil that I was told would hopefully settle the Lupus.
Hi Dee,
Your treatment options depend on your specific symptoms and it varies from person to person. As a foundation however, if you feel that you can't take meds, I would recommend adopting an noninflammatory diet (food choice has a huge impact on Lupus) and add lots of green veggies and some fruits. You can juice them if that makes it easier for you to consume a large amount. The chlorophyll in plants is very similar to our blood and helps to cleanse and balance us at a cellular level.
Another basic option is to add a high quality fish oil for omega 3s, as well as flaxseed ( I like it ground up to add to salads, yogurt, etc.), as well as using Turmeric and Ginger. This may help with joint pain ans swelling.
Also, many people mentioned vitamin D. So many people are vitamin D deficient, so it pays to get your levels checked. However, when you look for a supplement, make sure to get D3, instead of D2. Vitamin D3 is what our bodies naturally make when exposed to the sun and it fuels so many of our internal processes. However, many supplements are D2, which while Ok, is not as potent as D3. This may be why some of the posters have been supplementing, but their levels have not yet normalized.
Phelp had some great suggestions. I also use pure shea butter, which can help with inflammation of the skin and also provide much needed moisture. However, I have found emu oil to be even more potent. When I was first diagnosed I had a very red and raised butterfly rash, along with skin lesions and horrible cystic acne. The emu oil was the only thing that worked and worked well! It is a natural noninflammatory and is also antibacterial and antimicrobial, so it actually helps to keep the skin germ free while it heals.
Hope this helps,
~Kay
Hi dee, make sure you do your research and get a good doctor. I am on Plaquenil, Cellcept and Gabapentin which seems to have my symptons under control. I have lupus glomerulonephritis. Which type do you have?
Dee
I agree a lot with Kay, veggies n fruit, but stay away from nightshade veggies. Turmeric and ginger, cumin most Indian spices, I don’t always cook with them but take a tsp ever couple of days. Green tea I do decaf at night, also vit d, a joint supplement and watch your meat intake. This all helps, lately I have taken oil of oregano, which also seems to help. It is a slower process and I still have pain but I try to stick with it. Any processed food is hard enough to digest, and with a disease that acts on foreign objects such as lupus, u have to feed as natural as possible. I also do not eat wheat or gluten, which really helped in the beginning of my lupus diagnosis. I hope this helped!
Hello dee,
Your welcome and any drug your not sure about just ask me and i'll check for you to see if it's a steriod or not.
Love Terri :)
dee said:
Terri,
Thank you for the link concerning possible treatments, it was very helpful and informative.
Dee
Tez_20 said:Hello dee,
Thank you for updating we all on what's been happening with yourself and lets hope the bloods come back confirming something one way or the other so you know personally why your suffering.
I'm not working at all now my life stopped at 18 and i'm now 44 but with how we suffer working will put a strain on you mentally and physically and we've so many members who have totally stopped through this issue...your daily life should be paced slowly so your body does'nt get pressured.
Regarding steriods they don't suite me either and i refuse them...Plaquenil is a none steriod drug which is excellent for DLE/SLE which so many of us are on, i take 400mg daily, it's surposed to take upto 6mths to work but myself and other members have seen the difference at 3mths it's all down to the individual.
There is stronger drugs which are steriod based but you need to see what your rheumo says first and how bad you've got it and this link below mentions drugs for Lupus and which are steriods and which are'nt.
http://www.arthritisresearchuk.org/arthritis-information/conditions...
Regarding home remedies and herbel medications which PHELP as mentioned...these always need to be checked first with your consultant and they're known for reaction with some Lupus suffers.
If i was you when you see your rheumo i'd push for Plaquenil.
Love Terri xxx
Hello Jen,
Your welcome because adding info can help so many other's struggling with less drugs that's not helping them and at the moment Mia is going through alot also for diagnosis and hopefully this will help her.
Well it's helped you getting that from the doctor's...my doctor is great because when they said my eyes was dry off the sjogrens...i brought drops from the opticians...then asked my dermo to confirm they was ok and he refered a letter onto my GP and when i went for my prescription the drops had been altered, i asked over the pharmacy about them, they're only expensive ones he's prescribed with no added preservatives to hurt my eyes.
Love Terri :)
AussieJen said:
Hi Mia
Oh that's good news - hopefully it will work for you too : ) What I forgot to add is that I take three drops a day just with my other medication, but I believe it's still quite a low dose.
Hi Terri,
Thanks for your comment! I was given mine from my doctor - I think they ordered them in. It's the only thing I've ever got over the counter (still with a prescription) at the doctors.
I forgot to say I always wanted to avoid meds, but some people just can’t. Some meds help Slow down the degenerative process to our joints, organs, etc. then a lot of symptoms diminish You really have to take your doctors information and add on your own it is difficult, western medicine meshed with eastern medicine, along with a healthy life style. I definitely agree with what you put in your body affects everything.
Have a great day!
Hello dee,
Sue is so correct in everything she put on how the meds help we and like i said early it's all about co-operation and working with your rheumo but letting him/she also know you don't want steriods which i told mine the same and sorting out the best med otherwise to suite you. :)
See a rhumetologist asap. That is the best thing you can do for yourself right now. And then from there they will direct you to the right doctors and physicians that you need to handle your form of lupus. As you may know there are many types of lupus.