As part of the Lupus Foundation of America's efforts to bring down the barriers of discovering more effective and tolerable treatments for lupus, the Foundation is working through its Center for Clinical Trials Education (CCTE) and Lupus Research Registry to distribute information about clinical research studies currently seeking volunteers. As part of our mission, we want to inform you of the chance to learn more about clinical research participation and specific studies seeking participants in your community.
Physicians in your area are currently seeking volunteers to participate in a new clinical research study.
The ILLUMINATE research studies will help researchers learn more about an investigational study drug being evaluated for individuals with systemic lupus erythematosus. To find out more information, including the eligibility requirements for volunteer participants, go to the study website www.illuminatestudies.com or to the Foundation's CCTE website at http://www.lupus.org/clinicaltrials/Illuminate.html.
You can join the Foundation's Lupus Research Registry to be alerted to additional research opportunities.
Kind regards,
Leslie Hanrahan
Vice President of Research and Education
Lupus Foundation of America, Inc.
Please check out all of the studies going on.....in the magazine ..there are 2 full pages with small type of all kinds of studies there they need volunteers...some pay some do not. They are all over the US. Some tied into colleges and other are private. By how many almost every state must have at least one..if not smaller states, I am sure near by state is having one. They do pay for transportation to get there and back ...plus you can write that off on your taxes...just keep mileage.
One is on if SLE if it is genetic disease or not...and having had half brother who had auto immune but we do not know what kind....no other person on that side of family has it ....sister has RA so might tie us in..but both parents are extremely healthy. But i know many people believe it is..this is perfect chance to find out if it is?
My nephew is in medical research with his main research now in auto immune....speaking with him, it so clear how little they actually do know...that is why we have one drug for SLE in all these years and even that one has very serious side effects. Many are pharmaceutical companies but who cares if we find a cure. Just check out all the studies and one near you might appeal.
Now if you look at all studies being done on cancer...well multiply almost by 100 at least! That is why it is so important if people can and do volunteer...and many are like treating depression in SLE with out drugs...i love to volunteer for that group..but it is in different state...and i still did..since some do not care. We just do not have support Cancer has and yet many of us suffer all our lives and many Cancer patients suffer a year than go back to their lives!..DUE TO ALL RESEARCH!!
So look and see if any really fit how you have lupus...i realized one might be how i have it which is very atypical and realized this am that i should check and see if it is still open and if it speaking about how i have SLE.
Since so many of us have it in different ways....how you have it may help others like you. Maybe there are not that many like you. If drug came out to help you than possible with tweaking it could help more of us!
I know that SLE is not killer like other diseases...but people do die from complications it creates.
Just check all of the clinical trials going on please....I know doctors are stump about how to treat me..and i read things my rhem should have known...i could have it found the research..and i paid dearly for it.
So it will help you down the road and rest of us...so please look! thank you lg