I guess those of us here can laugh at ourselves and it's acceptable, but I noticed when I made a joke about my brain to my daughter, she got very uncomfortable. She thought I was being hard on myself, when actually I was making light of my idiocy. Praise God and his helpers on this earth for bringing this group together.
Draginfli said:
Kadeeeee,
I know it isn't funny, but you did make me laugh - because I agree with you! Of everything it IS my brain that I miss the most too!!! :)
I do take the anxiety meds when I feel myself not wanting to accept me and go to my happy place! :)
BTW - Do you guys have any indoor water parks in the area? Something like that? Not that my body could do any of that - but you know what I mean? Maybe at least you could be there?
Draginfli
Kadeeeee said:
Oh, I forgot, In the beginning, she gave me steroids for I think a week. Haven't taken them since. There are numerous others intermitently (sp) for symptoms control. My memory is ridiculously nonexistent. I was once quick witted and able to think on my feet. Of everything, I think I miss my brain the most!
I agree - my sons feel that I am smart, sharp and extremely witty. They love me very much and feel that I'm putting myself down when I refer to my "brain fog". LOL They can't see all that I'm missing though. Like I could never, ever perform my high tech job right now and odd things just totally stump me sometimes. I'm a computer whiz, but even some of that stumps me now. I guess I'm lucky that they still think that I know more than them!!! Unusual for kids - don't ya think? Bah Ha!
Kadeeeee said:
I guess those of us here can laugh at ourselves and it's acceptable, but I noticed when I made a joke about my brain to my daughter, she got very uncomfortable. She thought I was being hard on myself, when actually I was making light of my idiocy. Praise God and his helpers on this earth for bringing this group together.
Draginfli said:
Kadeeeee,
I know it isn't funny, but you did make me laugh - because I agree with you! Of everything it IS my brain that I miss the most too!!! :)
I do take the anxiety meds when I feel myself not wanting to accept me and go to my happy place! :)
BTW - Do you guys have any indoor water parks in the area? Something like that? Not that my body could do any of that - but you know what I mean? Maybe at least you could be there?
Draginfli
Kadeeeee said:
Oh, I forgot, In the beginning, she gave me steroids for I think a week. Haven't taken them since. There are numerous others intermitently (sp) for symptoms control. My memory is ridiculously nonexistent. I was once quick witted and able to think on my feet. Of everything, I think I miss my brain the most!
I know exactly what you're saying, before I was able to wrap my head around a concept and with 'patience' come to a conclusion on how to approach it. Now, forget about it! We just hung a new chandelier and now it needs to be leveled. Once upon a time, I would have looked at the angle it's hanging and know how to move the lights so it will hang straight. Now I look at it with total confused anxiety. My husband isn't patient, so I'm hoping my daughters or their significant others will do it for me. I think I'm getting OCD about it! lol!
Tiffany, don't jump to the STRESS out mood .Everything is going to be okay!!! Jehovah GOD don't put nothing on us that we can't bare / or handle. So stay calm and relaxe ... Waitng is hard and not knowing is even harder , but keep you spirits up and keep the FAITH that you have strong . Everything will be alright, am praying for you....Beverly L.
How you feeling now mate since you last posted?...as i know this lots getting you down but we're all behind you with full support mate and i for one will be pleased when you see your rheumo to see what's finally going on as your only young and need to know where you are with your life.
Thank you beverly! You are so right! Sometimes we all just need some encouraging words at times!!! & tez, thank you for.checking on me! I’m feeling ok, not much pain, but very tird! But I’ll take that over pain! how are you feeling? I hope that you are doing well!!!
How you feeling today and i really hope we're helping you in so many ways....i know it's so annoying and it is truly such an hard waiting game for you besides other's and i hope something positive comes of your visit in September.
Myself mate i'm just in so much pain with my legs it's terible besides alot weaker and through these symptoms my patience is getting less "It's an hard life at times".
You takecare mate and thinking about you dearly xxx
how are you feeling? I hope that you are doing well!!!