# What type of doctors do you see for your Lupus?

**URL:** https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342
**Category:** General
**Created:** [February 2, 2012, 9:27pm UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342 "2012-02-02T21:27:41Z")
**Posts on this page:** 9
**Page:** 1

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### Author: ![aboutmygirls](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/aboutmygirls/32/444_2.png) [@aboutmygirls](https://forum.lifewithlupus.org/u/aboutmygirls)
#### Post date: [February 2, 2012, 9:27pm UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/1 "2012-02-02T21:27:41Z")

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Hello all!

I am new to the group but have received the warmest reception. I am wondering what types of doctors you see for your Lupus, or your Lupus symptoms.

I have been seeing a Neurologist for almost two years...because I was told for almost 2 years that I have MS, oh, and I was also told that this was all in my subconscience (both wrong, of course!!!!)...I also see a pain management doctor, a urologist, neuro opthamologist, psychologist, ENT, pulmonologist, and a pcp (which I am not sure where his head has been lately). And now I am also seeing a Rheumatologist, of course!!!

I am wondering if any of you see a Neurologist and Rheumatologist, and/or what other doctors you may still see.

Thanks,

Christene

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### Author: ![poobie](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/poobie/32/339_2.png) [@poobie](https://forum.lifewithlupus.org/u/poobie)
#### Post date: [February 2, 2012, 9:54pm UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/2 "2012-02-02T21:54:00Z")

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ENT, neurologist, 3 different orthopedists, hematologist, infectious disease, rheumatologist, soon to restart nephrologist. Wish they had ONE doctor to take care of everything

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### Author: ![Bethany\_W](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/bethany_w/32/91_2.png) [@Bethany\_W](https://forum.lifewithlupus.org/u/Bethany_W)
#### Post date: [February 2, 2012, 11:31pm UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/3 "2012-02-02T23:31:08Z")

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I see the following doctors and they all have a part in my treatment. Pulmonologist, Neurologist, Rheumatologist, hematologist, General Practioner , Vascular Doctor and Dermatologist.

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### Author: ![aboutmygirls](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/aboutmygirls/32/444_2.png) [@aboutmygirls](https://forum.lifewithlupus.org/u/aboutmygirls)
#### Post date: [February 3, 2012, 4:00am UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/4 "2012-02-03T04:00:44Z")

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So you both still see a NEUROLOGIST, even though you see a RHEUMATOLOGIST.

Do you mind if I ask what type of neurological problems/issues either of you have?

Sorry, I dont mean to be nosey but I am just frustrated with EVERYTHING and trying to figure out my next move.

Thanks for the replies....and have a wonderful day :)

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### Author: ![Bethany\_W](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/bethany_w/32/91_2.png) [@Bethany\_W](https://forum.lifewithlupus.org/u/Bethany_W)
#### Post date: [February 3, 2012, 11:07pm UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/5 "2012-02-03T23:07:00Z")

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I have _neuropathy in my legs and feet also have been having issues with my arms feeling heavy and my hands and fingers going numb (dropping alot of things). I can't stand my Rheumatologist and am in the process of finding another one. If I had to choose between the two doctors I would pick my neurologist 100% of the time..._

aboutmygirls said:

> So you both still see a NEUROLOGIST, even though you see a RHEUMATOLOGIST.
> 
> Do you mind if I ask what type of neurological problems/issues either of you have?
> 
> Sorry, I dont mean to be nosey but I am just frustrated with EVERYTHING and trying to figure out my next move.
> 
> Thanks for the replies....and have a wonderful day :)

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### Author: ![poobie](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/poobie/32/339_2.png) [@poobie](https://forum.lifewithlupus.org/u/poobie)
#### Post date: [February 4, 2012, 12:46am UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/6 "2012-02-04T00:46:54Z")

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I have a large MCA aneurism and a complex migraine disorder - my rheumie had referred me to a neurologist for help when I had acute problems (now under control)- now he acts only as a consultant For the diagnosis of MS the neurologist is considered the expert and in your case you probably need both actively involved since you have multiple auto-immune problems

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### Author: ![janice](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/janice/32/150_2.png) [@janice](https://forum.lifewithlupus.org/u/janice)
#### Post date: [February 4, 2012, 1:35am UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/7 "2012-02-04T01:35:37Z")

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i see an internist as my main doc, a pulmonologist, rheumetologist, orthopedic surgeon, psychiatrist, counselor...hmmm neurologist but am without one right now---need one for the restless leg syndrome and to keep migraines away

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### Author: ![aboutmygirls](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/aboutmygirls/32/444_2.png) [@aboutmygirls](https://forum.lifewithlupus.org/u/aboutmygirls)
#### Post date: [February 4, 2012, 5:52am UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/8 "2012-02-04T05:52:27Z")

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Hey Janice....do you know what helps with my restless leg syndrome? HONEST TO GOODNESS....xanax!!!! And it doesnt even have to be a high dose...just a lose dose works.

I started getting restless leg syndrome...but all over my entire body....when I took prednisone. I suffered from it for years and never said anything to a doctor. One day my pcp was prescribing a round of steroids for my asthma and said "you might get restless legs on this"....I have had asthma since I was 12 and was experiencing this for years so I told him this and he said....xanax will stop it. I couldnt believe how well it worked. I now take xanax for depression and anxiety also....but I dont have rls anymore :)

Have you ever been on xanax???

janice said:

> i see an internist as my main doc, a pulmonologist, rheumetologist, orthopedic surgeon, psychiatrist, counselor...hmmm neurologist but am without one right now---need one for the restless leg syndrome and to keep migraines away

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### Author: ![janice](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/janice/32/150_2.png) [@janice](https://forum.lifewithlupus.org/u/janice)
#### Post date: [February 4, 2012, 7:31am UTC](https://forum.lifewithlupus.org/t/what-type-of-doctors-do-you-see-for-your-lupus/342/9 "2012-02-04T07:31:59Z")

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Wow i didn't know about this. I have the worst case of rls---it is so painful! And like you I didn't get help for it for a long time. i didn't think there was a tx for it bc my mom had it for ever and back then there was nothing we could take. when i got it i would get up and take a hot bath and that worked for a little while. But mostly I just cried till around 5 am and then i would fall asleep for a couple of hours. I finally went to the doc and started requip. Finally! relief.

But I don't think I have any xanax treatment to compare it to. I have had prescription for it but not in a while---they don't want me to take it bc they are afraid i will get addicted.

Requip works very well, but i have had to increase it and am on such a high dose I am afraid that someday they will have to try something else...i will keep this in mind! thank you for sharing!! rls is awfulllll, right?
