What is it like being a parent with lupus?

Hi!, it is okay we all have those days! Smile when you are able to communicate , we will be right here, rest and take care…Beverly L.


lillianb22 said:

Thank you everyone for your responses. I have had a horrible flare this week (still really bad today: last two days have been horrendous migraines, so I have been avoiding screens!)-- and so this week I have not had energy to get to the computer as much/ write you all back for your generous and thoughtful replies. It means alot to me that you have all opened your heart and be so open about discussing this sensitive topic- I cannot tell you all how much it has helped me to get an understanding of what everything may be like for me in the future… since being diagnosed, everything has been so uncertain (which is terrifying, and so hard to live with)… when before, I was a totally atypical planning type person. Thank you all for your comments, I am really grateful. Hope you have a spoon filled day tomorrow. Hugs-