Hello Trisha,
That's ok mate and you can't reply while your working and then you need rest when you get in.
Well i've been on a pill box for 4 times a day since i was 18, i think we all get there in the end Trisha.
Regarding how fare the disease affects us we'll never know and for how long it's been eating at we but all we can do is carry on fighting.
Hugs Terri xxx
sunrisetrisha said:
Hello All,
Sorry I missed this discussion yesterday, I miss so much being at work : (
I recall posting something about the frustration of taking so many pills and having to have a pill reminder to keep them all organized when I first came on here. 5 months ago I didn't take anything, now I have a pill minder box like my mother's.
This disease is so unpredictable and different for each of us. My symptoms are not as pronounced as others, but I don't know what the disease has done internally. Its possible that I could have gone my whole life not knowing I was seriously ill. There is alot of adjustments we have to make with this, coping with diagnosis, then it would be bad enough having friends and family tell us "you don't look sick" and also have a doctor that can't make up his or her mind.
Mia, it sounds like your doctors aren't playing well with others, because the rheumy wasn't the one that first diagnosed it, the cardiovascular dr did? That's just my take on it.
Mia, where can we get the personal medical journal you talked about?????? that is so cool!
Hang in there, we are all here together in this.
Love, Trisha