# What happens next?

**URL:** https://forum.lifewithlupus.org/t/what-happens-next/416
**Category:** General
**Created:** [March 22, 2012, 11:03pm UTC](https://forum.lifewithlupus.org/t/what-happens-next/416 "2012-03-22T23:03:32Z")
**Posts on this page:** 7
**Page:** 1

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### Author: ![Harley](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/harley/32/492_2.png) [@Harley](https://forum.lifewithlupus.org/u/Harley)
#### Post date: [March 22, 2012, 11:03pm UTC](https://forum.lifewithlupus.org/t/what-happens-next/416/1 "2012-03-22T23:03:32Z")

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I have been taking plaquenil, prednisone, and imuran. Nothing seems to be working. I am just wondering what might come next or of there’s anything I should suggest to my doctor. Thanks

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### Author: ![Laura](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/laura/32/340_2.png) [@Laura](https://forum.lifewithlupus.org/u/Laura)
#### Post date: [March 23, 2012, 4:09pm UTC](https://forum.lifewithlupus.org/t/what-happens-next/416/2 "2012-03-23T16:09:17Z")

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Have you talked to your doctor about Benlysta?  
I tried imuran, celcept, methotrexate, plaquenil, prednisone, dapsone, etc etc.  
The only drug that was mild enough and that I had any help with was plaquenil …until Benlysta.  
I’ve been on Benlysta for 4 months. My hair is growing back like never before.  
I don’t have anymore fevers or joint pain.  
See if they think it will work for you. 🙂

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### Author: ![Beverly\_L](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/beverly_l/32/142_2.png) [@Beverly\_L](https://forum.lifewithlupus.org/u/Beverly_L)
#### Post date: [March 23, 2012, 10:39pm UTC](https://forum.lifewithlupus.org/t/what-happens-next/416/3 "2012-03-23T22:39:32Z")

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Hi Harley, am currently taking plaquenil and prednisone ,they seem to help me . I've been on them since Feb. 7,2011. Just write everything down ( at what time the pain starts / and how long it last , how it make you feel , what you were doing when the pain started , etc..) this might help the doctor when you go to your visit ... Also try not to over due it , limit your daily activites and get some rest in between doing chores.. Well hope there is nothing major wrong with you , but go see the doctor as soon as possible okay ??? And don't forget to rest and take it easy, talk with you later ....Beverly L.

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### Author: ![haitianbarbie88](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/haitianbarbie88/32/148_2.png) [@haitianbarbie88](https://forum.lifewithlupus.org/u/haitianbarbie88)
#### Post date: [March 24, 2012, 1:02am UTC](https://forum.lifewithlupus.org/t/what-happens-next/416/4 "2012-03-24T01:02:52Z")

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Im on the same exact meds! My rheumy just put. Me on prednisone only for a mth to c if it helps… It’s been two weeks and it hasn’t gotten better. She told me that cellcept would be next… I hope you get to feeling better soon…

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### Author: ![haitianbarbie88](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/haitianbarbie88/32/148_2.png) [@haitianbarbie88](https://forum.lifewithlupus.org/u/haitianbarbie88)
#### Post date: [March 24, 2012, 1:03am UTC](https://forum.lifewithlupus.org/t/what-happens-next/416/5 "2012-03-24T01:03:30Z")

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Im on the same exact meds! My rheumy just put. Me on prednisone only for a mth to c if it helps… It’s been two weeks and it hasn’t gotten better. She told me that cellcept would be next… I hope you get to feeling better soon…

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### Author: ![janice](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/janice/32/150_2.png) [@janice](https://forum.lifewithlupus.org/u/janice)
#### Post date: [March 24, 2012, 1:41am UTC](https://forum.lifewithlupus.org/t/what-happens-next/416/6 "2012-03-24T01:41:57Z")

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wow/... i am going to ask about bensyta

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### Author: ![Unshoreandscared](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.lifewithlupus.org/unshoreandscared/32/241_2.png) [@Unshoreandscared](https://forum.lifewithlupus.org/u/Unshoreandscared)
#### Post date: [March 25, 2012, 6:21am UTC](https://forum.lifewithlupus.org/t/what-happens-next/416/7 "2012-03-25T06:21:29Z")

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I take planquenil and prednisone (when needed) too much prednisone is not good for my body. I build up tolerances to the medication and then it does not work. I have been using the prednisone when I feel tightness in my chest and start to wheeze, I take a prednisone and lay down then within 10 minutes or less, the wheezing stops and then within 5 minutes the tightness goes away.

I told my RA in case I was doing something wrong and she said "Interesting, using prednisone as a rescue, is it working?" I said "Yes" she said "then continue, good for you" and I have since mentioned it on a phone interview for the doctors at Hopkins whom are seeing me soon and they had the same exact reaction "Interesting, prednisone as a fast acting rescue med". So, this is what I am doing and it is working. But, don't change your medical regimen without asking your doctor, please! I am just a rogue patient.... LOL

Hope you get better.
