Hi Tootles,
I had to stop keeping intouch with other friends from the staffy site i was with through emails and many more, i only keep to the sites now :)
Tootles said:
Thank you tacteach. I am preparing to take the plunge. There are some days I get so confused trying to respond in an email and have deleted more than I can count just to retype something that doesn't sound as much like someone in first grade. Thought process is slowing going .... Thank you for your support!
Hi purplebutterfly,
How you feeling now mate and have you seen the priamry care yet...i'm asking because of time difference :)
This link covers all your symptoms and possibilities that maybe causing it but sjogrens itself can trigger this lot off.
http://symptomchecker.webmd.com/multiple-symptoms?symptoms=difficulty-swallowing|ear-ache|enlarged-or-swollen-glands|sore-throat&symptomids=227|347|92|219&locations=10|4|10|10
purplebutterfly said:
Well the pain and fatigue are horrible. I see my primary care tomorrow it hurts to take a deep breath my ears and throat hurt my lympnodes are swollen. I do not think the infection is ever going to go away. my mouth is terrible dry even with the biotene moth rinse. and apparently I can not spell tonight. I am going to try and catch up on every ones post tonight.
I did see my primary and refused another antibiotic till I see the labs tomorrow. He said sjogrens to as a possibility. I see my new rheumy Monday her office called today to say they had all my records and she is reviewing them today and I will receive an email today with her summary of the review and the labs and such she will do Friday at her office so she will have the results Monday. I actually feel a little better today even with the rain. I think I am coming to terms with not working anymore. Tez you are great tootles I think we will be fine not working.
Hi purplebutterfly,
Thanks for letting we know mate and you did right refusing the antibiotics and really they should know better as they'll drop your immune system really low.
Well i'm pleased you'll have the results soon and it does sound like you have sjogrens to me, as it usually follows on with Lupus for a large majority of people but it's another A1 Disease like Lupus and no cure, it's b_ggering me up i know that....do you want me to add a link on it from the sjogrens site covering all issues on it as i don't mind.
I'm pleased your feeling better, the other night here it thundered bad and christ the pain from my neck down my spine was bad and ste my hubby thought i may have broken something.
I came to terms with not working 12yrs ago when i met my hubby because before that i did'nt want to live, add to many years of illness and not working the lot felt pointless, now i look at life different.
Cheers mate and the same to you :)
It's okay to whine. Whine and then keep trying. I know it's really hard to pull back from work because so many people define self partly by what they do for a living. Is it possible for you to work part-time or by contract when you feel up to it? Good luck, take care!
I am an lpn and most places here are not hiring them now last year I tried to find something part time or prn and after finding out about the lupus during the interviews nobody called me back. I spoke with my doctor about this at the first of this year and when I was taken off work a couple of weeks ago he said no that he wanted me off completely that he may reconsider in a year after I have had time to get every thing undercontrol but he did not think I would ever go back.