Thanks everyone.
I have always drunk a lot of water - at least 1.5 litres every day. Have added raisins, cabbage, spinach and generally, a whole lot more veggies to my daily intake, as well as 1-2 slices of whole grain bread.
I have stabilised enough to go from 1 to 2 Plaquenil per day. I would like to genuinely thank everyone for the impute. While I am still somewhat fluctuating between running to the loo and begging to go to the loo, my stomach is obviously a lot more stable than what it was when I asked my initial question. Neither constipation nor diarrhea is extreme nor as painful to endure. I think we have a success!!!
Hi!, why do your doc have you taking them at bed time? My doc , told me to take mine in the morning and if I forget to take it that day-1st thing the next morning take it ! It has reallyyyyyy helped me! But as the saing say, what may work for me , Might not work for you !!! And nothing beat a failure but a try! So you also have to feel your way through with your meds/times. Just a little advice…Beverly L.
I take twice a day now. With Breakfast and with dinner. Initially was only dinner, don't think I would have coped taking at breakfast in the beginning as I would have spent all day in loo!!!! But stabilising now which is GREAT. Cheers
Hi noahandme
know what you mean about spending the day in the " loo". You have to be creative and take the pills when you are going to be near the bathroom. I've been on plaquenil since dec I take 3 per day. I told my rheumy that the bathroom time is better than the mouth sores Trade off I guess
Cindy
I have taken Plaquenil 2xs a day for about 5 years. It has never caused me any stomach problems at all. It has helped my Lupus symptoms and plan to continue taking it.
I had a lot of constipation, and nausia when I was on Plaquenil. About a month into it I broke out in full body hives, apparently I was allergic to it and my body was reacting crazy because of it (as if it doesn't act crazy enough)
My first Rhemy told me there was no other treatment.
I since left that doc and found a MUCH more educated one, and he moved me over to Quinaqrine. There is a lot of mixed reactions to the drug from people, but for me it helps. I don't have as many of the stomach issues that I had before and the symptoms have gotten less and less the longer i take it.
Hope things start getting better soon.
The Dr. has started me on the plaquenil again after 3 years......I too have started with the 1/8 dose and no problems so far.....I only started it 5 days ago............I have a question for you artchick......how often did you increase the dose and did you alternate twice a day or just increase the once a day dose...........just curious.....that's for any and all info.........
artchick said:
I started with an 1/8 of the dose along with nexium everyday and slowly bumped it up. Not a problem. Now I can take it without any nexium and no side effects.
Hi
I had that problem for 6 months. I told the dr it was better than the mouth sores. Recently I had a sigmoidoscopy and the gasto dr put me on probiotic (LSV #3 (over the counter) and I haven't had diahrea since. It's been a month now. Maybe you could try that. Idon't think it would hurt.
Good Luck
Cindy
smoky mtn snowflake
I started on 2 plaquenil a day and he increasd it t 3 a . day in 3 months.
Cindy
THANK you freightliner............had not thought about a probiotic........it might help.......thanks so much for your reply !!! Blessings :)
freightliner said:
Hi
I had that problem for 6 months. I told the dr it was better than the mouth sores. Recently I had a sigmoidoscopy and the gasto dr put me on probiotic (LSV #3 (over the counter) and I haven't had diahrea since. It's been a month now. Maybe you could try that. Idon't think it would hurt.
Good Luck
Cindy
Oh man. I’m suppose to be starting this medicine soon and am a luttle worried now. I swear by probiotics but do have horrible stomach issues still.
I get terrible pains after I eat so tge doctor put me on sucralfate, bentyl prilosec and pepcid. It seems to be helping a lot. I will continue to take probiotics because they are a wonderful help.
I hope that you straighten out soon dear. Let us know if it helps. Stay blessed.
Hi smoky mtn snowflake I told you the wrong name Its VSL#3
I had to order the VSL#3
at Sams It is an over-the-counter med but it needs to be refrigeated so its a special order. It was 43.45 for a 2 month supply.
I hope it works for you.
I had a biopsy and have active colitis.
Hugs
Cindy
THANKS so much for the info.......I will check it out ......thanks again :)
freightliner said:
Hi smoky mtn snowflake I told you the wrong name Its VSL#3
I had to order the VSL#3
at Sams It is an over-the-counter med but it needs to be refrigeated so its a special order. It was 43.45 for a 2 month supply.
I hope it works for you.
I had a biopsy and have active colitis.
Hugs
Cindy
Plaquenil has been one of my meds for 3 years Feb., I have not had no problems with it -for me I really like it!..Beverly L.