I'm glad you are have a great Mom helping you! Our children are never to old not to need our help. I am always there for my 3 sons and their families even if it is just a shoulder to lean on and an ear to listen. I so hope things turn around for you now. Hugs
I was hospitalized for Interstial Nephritis. I also have Lupus. You should see a Nephrologist for your Kidney Lupus. Cellcept is for Kidney Lupus. that I take, I also take Prednisone. Sounds like you need a new Rheumatologist. I'd file a complaint with your insurance co, your treatment is appauling. My Rheumatologist does not act as a PCP so calling your PCP might be a good idea first. I'm so sorry, this is all too common. Alot of Dr's are not up on treatments for Lupus.
Hi, sometimes these doctors don’t know nothing-they are still trying to figure out this Lupu stuff just like us, day by day, person by person!! Am going on my 3-4year of dealing with Lupus and my doctor has told me some what the same thing. He want me to take only half of the prednisone, (cut the little pill into), of course it is so small , I take the whole pill every other day as a whole. The pill crumble when I tried that. So I just take it whole every other day! My doctor told me it will help in the long run! Cause the Lupus is not as active, it is under controll!!! But if it was under controll Why do I still have Pain? He can’t never answer that!! So am just going to keep what is BEST 4me-he is not the one dealing with those days when I hurt!! But all the same just keep doing what is Best for you, doctors these days just want the money and play the guessing game! Hope things work out for you, and I will keep you in my prayers…Beverly L.