Thank you for the information, I will check out the websites right now and let you know what I find:)
Tez_20 said:
Hello cammie,
Regarding being positive where Lupus is concerned...don't always suspect it because it's a known fact that Lupus fluctuates our bloods and can cause false readings, that's why it's best to be persistant on re-testing every 6-9mths, where i'm concerned i was born with it and i've had quite a few bloods done and they was positive all the time.
Painkillers will help but don't get over doing them and i know your aching but getting stressed out, Lupus thrieves off this besides depression.
There is also an Arthritis where bloods show negative and it's called "seronegative spondylarthropathies"
You'll find the links below helpful on explaining it and also worth asking about :)
Wow some of that sounded like some of my pains. The heels of my feet have been hurting on and off for the last few months. Not just sore either, actual pain. They did all the glucose tests to include the 2 hour glucose and I am not diabetic. So they told me it must be the lupus. Very interesting. Thanks again for the info.
Cammie2269 said:
Thank you for the information, I will check out the websites right now and let you know what I find:)
Tez_20 said:
Hello cammie,
Regarding being positive where Lupus is concerned...don't always suspect it because it's a known fact that Lupus fluctuates our bloods and can cause false readings, that's why it's best to be persistant on re-testing every 6-9mths, where i'm concerned i was born with it and i've had quite a few bloods done and they was positive all the time.
Painkillers will help but don't get over doing them and i know your aching but getting stressed out, Lupus thrieves off this besides depression.
There is also an Arthritis where bloods show negative and it's called "seronegative spondylarthropathies"
You'll find the links below helpful on explaining it and also worth asking about :)
Cammie your welcome...i've just added this on the sjogrens site also, as it's very important, did your tests come back negative for sjogrens syndrome also or don't you know if you've been tested for that...as that's a follow on A1 Disease like Lupus and a large majority of patients have that besides :)
Cammie2269 said:
Wow some of that sounded like some of my pains. The heels of my feet have been hurting on and off for the last few months. Not just sore either, actual pain. They did all the glucose tests to include the 2 hour glucose and I am not diabetic. So they told me it must be the lupus. Very interesting. Thanks again for the info.
Cammie2269 said:
Thank you for the information, I will check out the websites right now and let you know what I find:)
Tez_20 said:
Hello cammie,
Regarding being positive where Lupus is concerned...don't always suspect it because it's a known fact that Lupus fluctuates our bloods and can cause false readings, that's why it's best to be persistant on re-testing every 6-9mths, where i'm concerned i was born with it and i've had quite a few bloods done and they was positive all the time.
Painkillers will help but don't get over doing them and i know your aching but getting stressed out, Lupus thrieves off this besides depression.
There is also an Arthritis where bloods show negative and it's called "seronegative spondylarthropathies"
You'll find the links below helpful on explaining it and also worth asking about :)
Cammie sorry about the loss of your Chelsea. Pets are family, too and cause us to grieve when they pass away. I noticed you’re thinking about getting a dog and want to find the right breed. Boxers are a beautiful breed, but you’re right to be concerned about getting just the right breed for your circumstances. An energetic dog just may be a little too much to handle when you’re not feeling well. Terriers are known for having LOTS of energy. I have 3 dogs and they all have terrier in them. It was hard to handle all that energy the first few years we had them. I used to wish they would just relax sometimes. They are now 3 or 4 years old and have calmed down except for my smallest dog. He’s a Boston/Rat terrier and has just as much energy as when he was a puppy. Do some research and ask other pet owners what breed they would recommend. I’ve only owned energetic terrier breeds, so can’t make any suggestions. I don’t know if you’ve joined the Animal / Pet Kingdom group on here. It would be a good place to ask for suggestions. Take care.
Cammie2269 said:
my Chelsea passed away a few years ago she was 22 yrs old, I miss her. My boyfriend is highly allergic to cats so there won’t be any kitties in my future. But we have been talking about a dog. Now its a matter of finding the right breed for us. I like Boxers but they are pretty active which may be a problem when I’m not feeling well. Hugs to you to Reet and thanks for taking the time to talk to me:)
The sero-negative spondylitis is rheumatoid arthritis of the spine. I have that as well as Lupus and Sjogren’s. I’m surprised your rheumatologist has you only on steroids. He/she didn’t give you anything else?
Amy i quite agree with you on your comment plus i'm adding a discussion on here about sero-negative arthritis as a few members on the sjogrens site new nothing about it and as you know the more members know the better.
Terri :)
Amy said:
The sero-negative spondylitis is rheumatoid arthritis of the spine. I have that as well as Lupus and Sjogren's. I'm surprised your rheumatologist has you only on steroids. He/she didn't give you anything else?
Hi Cammie
I am also a young adult who suffers from lupus. I am sorry for the loss of your dog. mine just died in June. Hemangiosarcoma - a golden. Anyway I was scared about getting a new dog too, but my new dog named Lily (about 1 and 3 months) is very much a puppy and surprisingly has helped me by keeping me from laying around too much. She does have too much energy though sometimes.
I am surprised that no one will give you pain medication. I have back pain (right now) with my flares as well-although probably not to your extent.
I was given naprosyn 500 and although it kills the kidneys, it works very well. I also have a host of other pain meds from when I got my tonsils out, but I save those for emergencies since they give me bad side effects. Still, I am very surprised that no one has been willing to give you anything. I once went in limping (in terrible pain) to my PCP and she was very sympathetic and gave me Tylenol 3… I wouldn’t anticipate that from any other doctor though. She was VERY reluctant to prescribe it. But I think the really good doctors can genuinely tell when someone is in pain versus just looking for a trip (if you catch my drift).
If you are still in pain, I would definitely see about trying to get in to see a pain management doctor. That, or Id try and explain that you are really not handling the pain well. Perhaps he will prescribe at least naprosyn.
In a sense, I do feel your pain since my kidney dr said poopoo to NSAIDs until I see her next week… It’s been a month and all I have been able to take is Tylenol.
Anyway, I hope you start to feel better very soon. This disease does suck, but with the right team of doctors to back you up, and with this great supportive site, it can be much more manageable.
I wish you the best of luck and health,
Teenlupus101
I reject the whole “it’s not related” comment. I mean, lupus is an inflammatory state. Even if the reason for your back pain is unrelated, the inflammation of your lupus can certainly make it feel worse. My rotator cuff injury was like that. Ortho couldn’t figure out why such a minor tear wouldn’t heal and why there was so much inflammation- a few mos later I was diagnosed with lupus and things started making sense… And getting better!
You’re not crazy
mine just died in June. Hemangiosarcoma - a golden. Anyway I was scared about getting a new dog too, but my new dog named Lily (about 1 and 3 months) is very much a puppy and surprisingly has helped me by keeping me from laying around too much. She does have too much energy though sometimes.