Thanks to everyone for the encouraging words. I am hoping the Cybalta works. My fiance helped me get to this site and the stories here really help with all the things we go through with this disease. Sometimes just knowing someone else understands me, makes things better.
My Rheumy told me that Lupus doesn't cause pain. I looked at him as if he had three heads. If Lupus dosen't cause pain, then why am I on narcotics? Am I crazy?
Tez_20 said:
Hello Shely,
Sorry i can't help you regarding your meds as i've never taken them plus don't have fibro either but either way with those meds it's like your on a losing battle.
Why does'nt your rheumo just treat you for Lupus with medication as Lupus and fibro besides Lyme disease they're all identical with symptoms, the only thing different where lupus is cncerned rheumo's like to see positive bloods before treating it mainly.
You could always ask about this when you next see your rheumo.
"NO WAY ARE YOU CRAZY" .....and don't start thinking that way either.
It sounds to me like your rheumo's got some marbles missing mate never heard nothing like it in my life....well the way rheumo's treat we and try to make we look soft we all mays well throw in the towel and say we're ok besides other's saying it.
I had it with with my first rheumo, we was forever having words then the cheeky s-d sent a letter to my gp complaining about me using medical terms i ah no thicko, nore are you.
I'll give you some good advice if that's how he looks at Lupus in general...seek a 2nd opinion as you'll get no where otherwise and we do suffer pain in different amounts but enough to lay we up half the time.
Oh mate my heart goes out to you and i'd definitely think about looking for another.
Cymbalta is really the only med that worked for me ( and I tried numerous medications ). It took me awile to get used to it and I had to start at 30mg and work my way up to 60 mg. Now, if I miss a dose I am miserable. It does cause some weight gain, but at some point you have to weigh the pro's and con's and, for me, anything that can reduce pain without making me feel completely "out of it" is worth the slight weight gain.
Shelyrbeane said:
Thanks to everyone for the encouraging words. I am hoping the Cybalta works. My fiance helped me get to this site and the stories here really help with all the things we go through with this disease. Sometimes just knowing someone else understands me, makes things better.
I have been on Cymbalta for nearly 3 years, not for lupus but for a back injury. About 6 months ago I stopped to see if some side effects were being caused by the med. It was a miserable month. It has been one of the best meds to help me both with pain and depression. Good luck with it, and please let us know how it works for you. I do think you will find some relief.