Has anyone been diagnosed with Hepatic Adenomatosis out there? If so, what in the world did you do? I was on a standby transplant list when I was diagnosed and I was removed from the list because they will not liver transplant with an auto immune disorder? I kinda hope nobody can relate only because that would mean they were sick and in an impossible situation.
Hello Kim,
I've not been diagnosed with this but there'll most likely be a member who as and hopefully they can help you.
I am sorry about your liver transplant being refused...i know i don't need a liver transplant like yourself but i have a tumour on mine where they can't do nothing at the moment and the pain at times is terrible.
Hepatic Adenomatosis is a tumour on the liver like myself...i hope the link below helps.
http://www.uptodate.com/contents/hepatic-adenoma
Love Terri :)
Kim i forgot to mention this earlier, the reason they refused your transplant having an autoimmune disease because Lupus would see it as a foreign body and how it fights our own bodies it would have done that to another liver :)
Hi kim,
You got my mind going about this and i've looked through my hospital notes and i have a Hepatic Hemangioma.....at the moment mine keeps collecting blood and gives off stabbing pain.
Yours and mine sound similar :)
http://health.nytimes.com/health/guides/disease/hepatic-hemangioma/overview.html