You will know right away if you 'like' them, trust them, they are like a friend with fabulous coping skills. Shame we have to go this route yet, but they can also help you with chronic pain, and all of the other stresses that go with these ever challenging diseases.
I love your beach picture! It is one of my goals, to once again have the ability to get in the car and go to the Ocean. With this back of mine, I am in agony going 5 minutes away to the Doctor or the grocery store! So glad you are still able to go and enjoy! Nice to talk with you!
NuDirection said:
I used to try to preoccupy myself but the thing I love to do which was crochet I no longer can do as much as I used to, I'm trying to over compensate but watching the grands but that only tires me out. Anyway I'm glad to have made a new friend. Thanks again for the kind words you wrote.
RisaRae said:
I know exactly how you feel. I feel like since I told my friends that I have Lupus they don't include me any more. At times I do feel lonely, so I tend to preoccupy myself with things I enjoy. I let my friends know, I can still go out, just not as much, and not to forget about me. Reach out to your friends and family so they can hear from your mouth how you feel, and that you want to see them. Don't wait for them to reach out because they may just be to self involved to realize that they have been neglecting you. If after all this if it doesn't work, get out there and meet knew people when you can. Make some new friendships. You are already in a great place! This is exactly why I joined the community. I could use some new friends! Don't let Facebook bring you down, because it's not real when you look at it. Half of my "friends" are people I don't even associate, and a lot of people use it to self glorify. It's not reality.
Wheather it was a bad day or not...there's no excuse in reality for your family to deaf you but you know as much as me, it happens and it's them loosing out and they don't realize it, all because they can't face illness.
You'll keep going and fighting on your own as i've been in that same boat myself several times...did'nt know i had the lupus then but i still had bad seizures to deal with and i was on my own and i always used to think if i come round it's a bonus and if i don' well that's it and then there was my paralsis the strokes left me with and i got more help of outsiders finding me bad then any of my family.
The sayings alwys been bloods thicker than water but through years of experience i've found outsiders and friends can be better to you and i would try councilling as it may get out your system what you feel and it also helps to know it's going no furthur.
Your strong mate and was on a downer we've all been there and where are we now still carrying on and fighting each day as it comes....and if you need to look at an issue there's "sunshine" she is out there bad but she's fighting and through her strong determination will pull through and she's holding onto our support to do it.
That's why i believe in "There's always someone worse than yourself" believe in that and you'll become a strong person Nu.
Love you to bits mate as you know. ((A massive hug to you)) xxxx
NuDirection said:
Thank you Terry for all the kind words that you have given me. You have been someone that I look forward to hearing from because I know that you will have something inspiring to say. Glad to have you as part of my family.
Tez_20 said:
Hello Lia,
Well said mate for Nu to reflect on besides other member's.
It is a shame as you can see Nu is missing her family but at the end of the day who's really losing out, her family because i only know Nu by chatting on the site and becoming good friends and to me she's one in a million and as always got so much to offer.