I really pleased you've adjusted well to not taking it and each day that passes by you find your mind and body does'nt call for some drugs which you know as much as me, i think you've done great since you added the thread.
Oh bless you Ann for lying there and checking the most important issues before you move, now when i wake everyday it's to see if i'm paralized in my legs or body and i always speak to my dog to make sure my speech is ok before i move, unless i wke with spasms.
Ann do you think you'll be ok doing the Healthy Weight management, as you mainly cover vitamin D but i wish you well with it.
Well you did well doing it twice to the corner just don't get overdoing it mate but between doing things it's what interst you the most and i can see since i joined your so dedicated to your studying and lectures.
Yes let me know how the wii goes because that does exercises, we've never had one but ste's son as one and showed we what it contains and it looks good for doing it in your own home in private...the exercise my rheumo told me i could only do was swimming and i told him straight i've been banned out of public baths through my seizures and he said it would help strengthen the muscle wastage...i think it's abit late Ann since having it in my early 20s.
Ann i just love to see how things are going and tonight (Unshoreandscared) as been put on vitamin D 1000 miligrams and as found her energy and fatigue level alot better and i said your links are great on showing what it's all about, when i see my GP i'll ask him to test me as the dermo as recommended this.
Lovely to hear off you my dear friend and your the best with the info you throw up for member's it's "ACE".
Ann A. said:
Hey Tez 20 Terri,
It is becoming easier and easier to skip the pain medication because the habit of doing so several times a day is being eroded. It is just no longer a part of my routine.
Today I slept in until about noon. Then I didn't actually drag myself out of bed until 12:30. Sometimes, I just like to rest for a few minutes and be grateful that my lungs are functioning and my heart is beating and then my kidneys remind me that they too are functioning and I rush to the loo.
The assignment for my next class is to create a community education course on Healthy Weight Management. The assignment requires a great deal of detail and a lot of it is clerical rather than intellectual. So, I spent three hours on clerical works.
Then at 4:30 I went for my walk. Once again, I just went to the corner and back. But today I did it twice. It is warm outside - very warm. I need to so some housework. But the story of my life is that when it is a choice between housework and studying, I always go for the studying.
But when I checked my email this afternoon, I found this article on fatigue anf lupus. After reading it, I know that trying to get some exercise is the right thing to do and that I should probably turn on the Wii. I will let you know how that goes.
Love and thanks for checking in - you are the best!!!
I think t's brillaint how your going to do nothing but vtamin D onto the forum and you mentioned qualification's and that's what you'd tok up but my god i did'nt realize how much you'd studied and the qualifications you'd passed, that's one excellent goal and achievement in life pls it will help member's to understand it alot more cncerning health with Lupus...i'd never really tok no notice just thought another vitamin but those links you added for me realy opened my eyes on the issues of vitamn D.
It sounds like you've had a rough time with your life otherwise and the amount of falls would'nt have helped in the meantime but i always put credit where it's due and reading yor cmments on what you've suffered besides the studying your ding now ad besides coming off the drug...your one strong lady wo can throw alot of encouragment and strength to us all and since joining it's been a lovely pleasure being a friend to you, as your so understanding on the issue of lupus and going through so much yourself.
It's funny you on about dogs, i wished bruno could talk because when i talk t him it's like his eyes show the understanding.
I woke this morning able to walk but i'm abit worried about my left leg it keeps swelling the same as wheni had the DVT and the pain does hurt but at the moment i'm sitting outside it's nice and cool, trying to master my notebook more as i'm used to working off a large pc screen.lol
Enjoy your day Ann and all my love to you xxxx
Ann A. said:
Dear Tez, I have made a choice to only talk about vitamin D on this forum. I have completed 10 graduate level courses in this area as well as a number of certificate courses. When I have completed two more classes and a thesis, I will have finished the requirements for this Master of Science in Health and Nutrition Education. They have required me to learn about all of the macro and micro nutrients as well as a great deal about food and the food related behavior of human beings. Earlier in my life I was trained as a medical sociologist. I have done research, taught undergrad and grad classes, and provided community workshops on topics in this area for 40 years. So designing the course is not a big intellectual problem. One day one step one dull ploddy piece after another.
For many years I was awakened because my pluera were inflammed and I could not breathe or because my heart could barely beat because my inflammed pericardium was smothering it. Then for many years the pain in back and hips was so strong that as soon as I woke up, I had to get up. But my stenosis was so bad that I had to check to make sure that my right leg was not going to collapse - wr are not going to talk about how many times I fell LOL.
Speaking to the dogs is a smart idea. After my Mum had her stroke, her dog understood her better than the humans did. May you wake up sound of limb and tongue in the morning.
Love you also mate nd bruno never hardly leaves my side and all animals are intelligent...Ann i've been resting my leg and it's swelling like mad the only thing i can put it down to is the scleroderma or the sjogrens causing it with my muscle's because feburary this year it happened the same and the doctor got me booked in for a scan the same day because of DVT and that came clear, it's the pain which does my head in.
Ann i'm sorry to hear you had the rickets with the vitamin D as i've heard that rickets are bad....and i hope your cataract surgery goes well...my mom had both eyes done through diabetes, the one was lazered and the other a full op but she found it alot better, so best of luck where that's concern then moving forward somto sorting your weight loss....yes lupus is so unpredictable we never know what's around the corner...well i really hope your able to study ready for january when it starts but try not to mash your brain mate, as lupus does so much concerning our memories.
I know you need to prepare yourself but you have months yet for that...what i'm trying to say is you study vitamin D alot besides try and take it at a steady pace in which you'll know your more or less be prepared for it.
I know what you mean about trying to manage your weight been there in the past and it got me down but the best of luck with it.
Hay Ann, hag i there you can do WHATEVER you PUT your MIND to DOING !!!! best wishes and you are a figther that's Living with LUPUS!!!! ... Beverly L.
Ann A. said:
Dear Tez
Love back to you and tell Bruno love also. Dogs understand more than most people give them credit for. Elevate that leg and take care of yourself!!!!! Bruno needs you LOL and so do I.
When I first started this current course of study I recognized that the next to last class was about weight and energy management. I was still very weak and in a great deal of pain with the rickets (from the severe vitamin D deficiency). So I told myself that I would not worry about my weight until I got to the next class. Well after my cataract surgery I will be there. So, I will no longer be able to avoid managing my own weight. If no other surgeries or illnesses come up (hey I got lupus so I know stuff happens), the class will go live in January 2013. By then I need to look as though I know something about weight management.
I will have the book learning part down but I need to change the way I look. By January 2013, I need to look as though I really understand weight management. So now I have to keep getting stronger and I have to do a better job of managing my weight. LOL - I am going to need some luck. But I am going to give it a try.
Hey awsome AnnA. Good luck on your cataract surgery, and I will be praying for you that everything goes good. Keep me up to date on your progress. Many blessings and hugs.
How is it going without the pain meds? Are you still feeling good or was there a withdrawl period? Or did your pain come back? How many per day did you take?
I have been taking the same dose as you of Percocet for about 7 months-3 per day. I had extreme pelvic pain which led to a hysterectomy. The pain is still there, but not nearly as severe, so I'm tapering down to 2 per day. I was wondering the same thing you were, and what it will be like if I don't take anything. I feel the worst in the morning, and I think ultimately I could get by with just taking one when I wake up, and maybe an NSAID later in the day.
I have also been trying to get off the pain meds, but I am at a 20/500 3-4 times daily (hydrocodone). And my advice is, now that you are only taking 5's it is the perfect time to quit. By the time you get to the dosages I am at it gets more difficult. If I knew how hard it was going to be to get off of them, or if i knew i would just get larger dosages, I would have never started. Now that I have started, for the 6th time to get off of them, my symptoms are ...
extreme lethargy (cant' stop yawning and feels like i haven't slept for days, when i take a pill i get energized)
achy and un-comfortableness restlessness
night sweats (change my clothes 3-5 times per night) i'm only 30
hot flashes
clamminess
Instant fevers
can't sleep well
irritability
fogginess of thoughts, racing thoughts
mood swings
...and probably a few more that I don't even realize are related to the withdrawls. Good luck, I'm here if you have questions or want to talk about what you are going through.
What you've just said to Nicole is great because your treating that tablet, how a smoker would come off fags by doing something to distract what your body wants.
Your so full of determination to go forward to enjoying your life and having you back done and it came out a success..i really hope the op for your eyes work the same.
I fit into a small suitcase now i've lost so much weight if it turns to seeing your hynosis, he/she can stick me in another planet anytime the way i'm feeling...i could scream this end.
Well if it comes to you having a hypnomassage i really hope it works because you've done well besides on your own and i for one know what it's like trying to pull off drugs.
Well you've got a date for your eye...i should'nt worry to much Ann as i've know loads this end have the operations besides my mom and they've recovered well...just keep the bandage on like they say after for the amount of time you need to because if you dabble yourself before hand it can cause infection.
Love Terri xxxx
Ann A. said:
Thanks Tez 20,
You have reminded me that the way I finally got off cigarettes and the way I gave up Coca Cola and all other soft drinks was through hypnosis. So, if I am not satisfied with my progress by the end of next month, I will make an appointment to see my favorite hypnotherapist. She is also a massage therapist and she give a great hypnomassage.
The surgery for my right eye is scheduled for Monday June 4. So, I only have one week to whine about that. Thansk for your encouragement Tez - you do have a gift.
Tez_20 said:
Hello Ann,
What you've just said to Nicole is great because your treating that tablet, how a smoker would come off fags by doing something to distract what your body wants.
Your so full of determination to go forward to enjoying your life and having you back done and it came out a success..i really hope the op for your eyes work the same.
I don't want weight mate my lungs would'nt take it, i was having the crack about me fitting in a suitcase to go with you.lol....i've only know of 2 people who took the bandage off their eyes before time after surgery and through that germs are exposed to the eye and once an infection kicks in it takes a while for the eye to recover and how he's letting you drive the next day your lucky over here they won't allow that, it's over a week before it's allowed so your lucky..."Just behave afterwards" lol
Where you eat on memorial weekend, it's the same day as usual here but silence is put into action at the graves and poppy day is a day of respect, the only trouble here the kids last year vandalized alot of the memorial ground and it was on the Tele...the kids here now adays is like they lost some marbles as the generations keep coming.
Just watch the desserts and you should be ok and thanks for hoping i feel better soon. Love Terri xxx
Ann A. said:
Dear Tez,
I would love to send you some of my excess weight! I promise to be good after the surgery. Everyone here has good stories to tell also. I just hate waiting. It makes me whiney. Right now I have been told to comeback the next day - June 5. And that if everything is going okay, he will okay me to drive. You know I can be still for one day.
Here in the US it is Memorial Day weekend. It celebrates what you guys do on Remembrance Day. Here it is an occasion for much overeating of meat that his been burned on the grill and way to many deserts. So, there will be no weight loss this weekend.
How you've just named all those memorial days for families getting together and to eat...that only event here in the UK is xmas time and all you see after on the tele is loads of dieting programmes to get slim for summer.
In our country Veterans day is took seriously Ann and always as done since the two main wars and there's still a few alive and kicking and there's been some reached 101yrs of age and the queen gives them an award...oh that's well respected here.
Well i hope to god your not thinking of cooking...i know you want to carry on with your life but give your body time to adjust mate.
Loads of love to you my dear friend. xxxx
Ann A. said:
Tez Dear,
We use almost every holiday as a reason to eat. Whenever families come together across households, we eat. The only thing that changes is what we eat. Memorial Day is the first big holiday after Easter. In many places the schools are closed or will be closed soon and Memorial Day weekend is the start of the "summer season." Here, the American Legion distributes poppies for Memorial Day and for Veteran's Day which is in November. <Many people pay no attention to Veteran's Day. But my Dad is a retired solder and my son is a soldier so we celebrate Memorial, Day, Armistice Day, Veteran's Day, and a few others that most people don't know about. My Dad is a member of the American Legion and since I spent a lot of time in the small towns near army bases, I spent a lot of time in American Legion halls. I have a poppy for today. But around here it is the start of the "cooking out" season. Next come the big July 4th Cookout, then the Labor Day cookout. Yes, the holidays are about something. But we use them to get together with our families and eating follows from that.
You are certainly blessed for not having the usual withdrawal symptoms for just stopping Vicodin cold Turkey like that! Yes Tylenol may help, as you not have to detox off of the hydrocodone, but the Tylenol as well. I speak from solid exprience. I was addicted to Hydrocodone for over 11 years. It was ridiculous as I had 3 doctors which would give me 100 with 3 refills etc. I 'played' the pharmacies as that was before they all got connected with the internet. At one point, whenI finally decided it was time to go to treatment, I was 'eating' (not taking them...EATING, between 75-90 PER DAY 7.5!!! I simply could not function without them! Withdrawal was hell. Lower body cramps that would not stop. You feel like you just want to pound your legs with your hands to make the pain go away. Hot tubs helped for 30 mins or so. Feeling as if you have the flu...X 10!! Schreeching diarreah that nothing could help.Weak as a newborn kitten. My skin crawled hot then as cold as an iceberg, all I could possibly think of was how to get out of the treatment center, but I had self admitted and could not leave. Anyone who knows Dr. Bill would know that was obssesion/compulsion) I couldnot sleep! I felt as if I was hanging onto the ceiling with my nails! So hit your knees tonight and say thank you. I will never, ever subject myself to that again. Do research on the computer re: Suboxone. That is what I am taking now. Works lovely. I am not 'high'. It contains 1/4 pain meds and 3/4 Naltrexone (what the ER Drs on TV yelling for when they have a junkie landed on their front door step. Those 3/4 Naltrexone is a dopamine receptor & inhibitor that blocks the area of the brain where you get the 'euphoria' from Vicodin. Great thing about it too...you no longer crave chocolate, ice cream or french fries. Comfort foods LOL. I hope at least I have given you and others a bit of good information. With Blessings, Judi
After about 5-6 days, and wilst going thru Tylenol withdrawal (think of it.. multipy 750 mgs x 75-90 pills per day. The amount of tylenol in my system was horrendous. You have to detx that as well. I was finally allowed to go outside, to the cafe to eat. I still felt like run
I know your not misleading and it's the knowing how different countries celebrate in different ways that i find interesting and the poem on the link is so lovely to those who died "Thank you for adding that"....when it was the memorial over here my mate paul as a staffy and he's a mascot for the memorials for the west midlands area and that dog led 2, 500 people through Dudley.
Now St Patricks day is a big issue in this country and full on celebrations and fancy your daughter being born on that day also....well how you take your food seriously we have more people carrying weight in this country than anything and all you see on the Tele alot is about people should lose weight and it's even affected the hospitals where if your over weight they can refuse operations even if you can still have them.
Mind you Ann i will say this our country is going up the wall with laws this and that.
Hi Ann, it's funny when we Living with LUPUS can't fid things when we need them !!! LOL HA!HA! When that happens i just stop thinking about it and within a cople of mins. - it's likemy memory tells me where i was when i miss place things !! (funny) , but hope that you nd it or replace it soon .... Beverly L.
Ann A. said:
Well right now I'd be satisfied if I could find my debit card. Last Sunday my daughter accidentally took it home with her. She brought it back on her Monday lunch hour. Instead of putting it in my wallet or purse like a sensible woman. I stuck in the flap of my tablet computer (a 7 inch galaxy tab which I use everywhere) and now the card is not there. I was going to the pharmacy to pick up my meds when I realized the card was missing. So then I got the checkbook. Then I couldn't find the cell phone. Finally, I decided that God wanted me to keep my blind self in the house. Well, it is ok because I am not out of any meds and I need to do some cleaning. Looking for a debit card will make me clean. I did find my HTCZ. It was in the drawer with coffee stirrers. Guess who takes their water pill with their coffee? Ok I have been writing all day and I definitely need a brain break. I will have weeks yet before the eye surgery. I am just in here whininnnnnnnnnnnnnnnnnnnnnnnnnnnnggggggggggggggg.
fighter said:
Hey awsome AnnA. Good luck on your cataract surgery, and I will be praying for you that everything goes good. Keep me up to date on your progress. Many blessings and hugs.
I didn't even know they have doses that high! I commend you, and keep up the good work with trying. It's very interesting that you mention when you take it, you get energized. I thought they're supposed to make you sleepy, but taking one is what gets me out of bed in the morning! I was wondering if this was part of physical addiction.
Cannabearrx said:
I have also been trying to get off the pain meds, but I am at a 20/500 3-4 times daily (hydrocodone). And my advice is, now that you are only taking 5's it is the perfect time to quit. By the time you get to the dosages I am at it gets more difficult. If I knew how hard it was going to be to get off of them, or if i knew i would just get larger dosages, I would have never started. Now that I have started, for the 6th time to get off of them, my symptoms are ...
extreme lethargy (cant' stop yawning and feels like i haven't slept for days, when i take a pill i get energized)
achy and un-comfortableness restlessness
night sweats (change my clothes 3-5 times per night) i'm only 30
hot flashes
clamminess
Instant fevers
can't sleep well
irritability
fogginess of thoughts, racing thoughts
mood swings
...and probably a few more that I don't even realize are related to the withdrawls. Good luck, I'm here if you have questions or want to talk about what you are going through.
I did the same thing a couple weeks ago before having a colonoskapy. I blew up like the Philsberry dough boy and it took a couple days for my body to adjust back down. I want to throw those steriods away for good because now I have gained so much weight I look like a cow. But I cant do that either, steriods help with inflamation . So what am I supposed to do. Next week I turn 63, and sometimes I cant get out of bed before swallowing all my pills. What a way to live, but I am living and still working a couple hours a day.
Hi LUPUSSUCK, you know you can't throw them away !!! May you can make an journel like i did - take the pills every other day and write on the dys that you don't take the pills of how they make you feel with / and without them. Then take you report to your doctor visit (30 days later), it helped me..... Beverly L.
P.S. even my weight went up them i lost the weight , talk it over with your doctor- that plan if you think about doing it !!!!!Beverly L. GOOD LUCK!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I thought this would add a bit of a laugh to our Brain Fog.
Recently, I was diagnosed with A.A.A.D.D. - Age Activated Attention Deficit Disorder. This is how it manifests:
I decide to water my garden. As I turn on the hose in the driveway, I look over at my car and decide it needs washing. As I start toward the garage, I notice mail on the porch table that I brought up from the mail box earlier. I decide to go through the mail before I wash the car. I lay my car keys on the table, put the junk mail in the garbage can under the table, and notice that the can is full. So, I decide to put the bills back on the table and take out the garbage first. But then I think, since I'm going to be near the mailbox when I take out the garbage anyway, I may as well pay the bills first. I take my check book off the table, and see that there is only one check left. My extra checks are in my desk in the study, so I go inside the house to my desk where I find the can of Coke I'd been drinking. I'm going to look for my checks, but first I need to push the Coke aside so that I don't accidentally knock it over. The Coke is getting warm, and I decide to put it in the refrigerator to keep it cold. As I head toward the kitchen with the Coke, a vase of flowers on the counter catches my eye--they need water. I put the Coke on the counter and discover my reading glasses that I've been searching for all morning. I decide I better put them back on my desk, but first I'm going to water the flowers. I set the glasses back down on the counter, fill a container with water and suddenly spot the TV remote. Someone left it on the kitchen table. I realize that tonight when we go to watch TV, I'll be looking for the remote, but I won't remember that it's on the kitchen table, so I decide to put it back in the den where it belongs, but first I'll water the flowers. I pour some water in the flowers, but quite a bit of it spills on the floor. So, I set the remote back on the table, get some towels and wipe up the spill. Then, I head down the hall trying to remember what I was planning to do. At the end of the day: the car isn't washed the bills aren't paid there is a warm can of Coke sitting on the counter the flowers don't have enough water, there is still only 1 check in my check book, I can't find the remote, I can't find my glasses, and I don't remember what I did with the car keys. Then, when I try to figure out why nothing got done today, I'm really baffled because I know I was busy all damn day, and I'm really tired. I realize this is a serious problem, and I'll try to get some help for it, but first I'll check my e-mail.... Do me a favor. Forward this message to everyone you know, because I don't remember who the hell I've sent it to. Don't laugh -- if this isn't you yet, your day is coming!!
Love Terri xxxx