Right now my diagnosis is connective tissue disease with lupus tendencies??? I have not had a positive ana yet but my crp is also very elevated along w the dsdna. I thought about getting life insurance now instead of waiting until its to late when i have lupus tied to my name. I wasnt sure if those rumors where true that getting medical insurance once u have lupus is very difficult??
Rara said:
My first episode of lupus presented in 1993. By request my doctor treated signs and symptoms and lab values. However I did not want the diagnosis of lupus in my medical records for insurance purposes. Approximately three years ago things had progressed to the point that I was started on plaquinil which ended me up in hospital on several occasions. Am not taking any meds for lupus now other than mobic for joint pain. I now have lupus in my medical records and after 32 years of service for my husband he will no longer be retiring with health insurance. I am an RN and have been on disability for 7 months. Even though I can draw on Medicare in two years I cannot get health insurance without paying through the nose. Wish I had purchased some insurance prior to having diagnosis recorded. Just something to think about. Sure makes following through with retirement plans difficult.
Hi,
Yes it can be. Your doctor may want to see if the plaqunil will calm down the symtoms. I hope it works out ok. Sometimes it takes a good month for you to start noticing changes. I have sick building syndrom with lupus producing symptoms which comes with a long list of them!!! Hope you feel better soon,
Erica
Hi,
Just wanted to say hello, I live in Pa. now but lived in londonderry nh for any years I miss it up there. I have sick building syndrom with lupus producing symptoms. I have had the rash and actually the rash on my chest seems to nevr go awayalong with a ton of hair loss.. its aweful. try to keep your chin up... here if yo need to talk.
erica
freightliner said:
I have lichen planus which is an incurable skin disease that can be managed with meds" says my dermatologist. She did a biopsy on my arm because some of my rash didn't all look like lichen planus. After the biopsy came back she did an ANA and accordng to my dermatologist and my rheumy if you are ANA positive you have lupus. I have the extreme sensativity to sunlight < which just started last spring, skin rash on extremeties and upper chest and back, mouth sores and mild fatigue and patches of no hair.. I asked my rheumy if there are different kinds of lupus an he said i have SLE which is the worst kind. from listening to some of these other "victims"of this disease i think they had lupus for years and years before they were diagnosed. I don't think there is any "normal" to this disease. my first visit to the rheumy was in dec. h e put me on plaquenil. and my mouth sores are gone and my patches of no hair are getting bette.r but you needreglar visits to an opthomogist. i have glaucomo but that started before plaquenil. I am 72 and have been married for 52 years. I have a great husband who is a great help around the house since my fatique. I have great family support and I know i will get help from my a daughters, son and daughter=in=law. I guess we hve to trust the md's we go to or find another. I live near nashua nh and if i don't get the advise localy i can always go to boston. think positive!!!
freightliner
Cindy