# Latest **URL:** https://forum.lifewithlupus.org/latest.md [Latest](https://forum.lifewithlupus.org/latest.md) · [Categories](https://forum.lifewithlupus.org/categories.md) --- ## [Today is Giving Tuesday. Here Are Two Easy Ways to Help Our Community](https://forum.lifewithlupus.org/t/today-is-giving-tuesday-here-are-two-easy-ways-to-help-our-community/8673)
**Author:** [@Ben\_Munoz](https://forum.lifewithlupus.org/u/Ben_Munoz)\ **Replies:** 0\ **Last updated:** [December 2, 2025, 3:26am UTC](https://forum.lifewithlupus.org/t/today-is-giving-tuesday-here-are-two-easy-ways-to-help-our-community/8673 "2025-12-02T03:26:51Z")
Hi everyone, Today is Giving Tuesday, a day when many people look for meaningful causes to support. If you would like to help our community today, here are two simple and meaningful options. 1) Share our campaign with … --- ## [Our Community Is Coming Together. Here Is How You Can Help](https://forum.lifewithlupus.org/t/our-community-is-coming-together-here-is-how-you-can-help/8667)
**Author:** [@Ben\_Munoz](https://forum.lifewithlupus.org/u/Ben_Munoz)\ **Replies:** 0\ **Last updated:** [November 25, 2025, 5:58pm UTC](https://forum.lifewithlupus.org/t/our-community-is-coming-together-here-is-how-you-can-help/8667 "2025-11-25T17:58:57Z")
Hi everyone, As we approach the end of the year, our entire Ben’s Friends network is launching our annual community support campaign. Each forum plays an important role, so we wanted to share a few simple ways you can h… --- ## [Coping with Lupus: Proven Strategies & Inspiration from Nick Cannon](https://forum.lifewithlupus.org/t/coping-with-lupus-proven-strategies-inspiration-from-nick-cannon/8665)
**Author:** [@ModSupport](https://forum.lifewithlupus.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [November 9, 2025, 11:57am UTC](https://forum.lifewithlupus.org/t/coping-with-lupus-proven-strategies-inspiration-from-nick-cannon/8665 "2025-11-09T11:57:56Z")
Living with lupus can be physically and emotionally draining — but it’s also a journey of resilience. Actor, musician, and host Nick Cannon has shown the world that life doesn’t end with a lupus diagnosis — it simply cha… --- ## [Finding Strength with Lupus — Lessons from Selena Gomez](https://forum.lifewithlupus.org/t/finding-strength-with-lupus-lessons-from-selena-gomez/8664)
**Author:** [@ModSupport](https://forum.lifewithlupus.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [November 9, 2025, 11:39am UTC](https://forum.lifewithlupus.org/t/finding-strength-with-lupus-lessons-from-selena-gomez/8664 "2025-11-09T11:39:01Z")
Living with lupus can feel overwhelming — fatigue, joint pain, skin rashes, and the uncertainty of flare-ups. But many people thrive, and one high-profile example is pop star Selena Gomez, who was diagnosed with lupus an… --- ## [3/31/2025 - Warm Welcomes to our new members!](https://forum.lifewithlupus.org/t/3-31-2025-warm-welcomes-to-our-new-members/8652)
**Author:** [@moja](https://forum.lifewithlupus.org/u/moja)\ **Replies:** 0\ **Last updated:** [March 31, 2025, 4:03pm UTC](https://forum.lifewithlupus.org/t/3-31-2025-warm-welcomes-to-our-new-members/8652 "2025-03-31T16:03:50Z")
Hey Yall! There have been some new members who have joined recently! I look forward to getting to know yall and discussing all of these fun facts while also supporting each other! Have a great week! @Grace2 Signed up he… --- ## [Volunteer Opportunity: Marketing Manager (Email + Social Media)](https://forum.lifewithlupus.org/t/volunteer-opportunity-marketing-manager-email-social-media/8651)
**Author:** [@Ben\_Munoz](https://forum.lifewithlupus.org/u/Ben_Munoz)\ **Replies:** 0\ **Last updated:** [March 11, 2025, 8:31pm UTC](https://forum.lifewithlupus.org/t/volunteer-opportunity-marketing-manager-email-social-media/8651 "2025-03-11T20:31:49Z")
Do you have experience with marketing and a knack for crafting engaging content? Ben’s Friends is seeking volunteers for two distinct Marketing Manager roles—one focused on email marketing and the other on social media.… --- ## [4 tips on how to get the most out of your Ben’s Friends patient community](https://forum.lifewithlupus.org/t/4-tips-on-how-to-get-the-most-out-of-your-ben-s-friends-patient-community/8560)
**Author:** [@BF\_Writer](https://forum.lifewithlupus.org/u/BF_Writer)\ **Replies:** 0\ **Last updated:** [November 23, 2022, 12:50am UTC](https://forum.lifewithlupus.org/t/4-tips-on-how-to-get-the-most-out-of-your-ben-s-friends-patient-community/8560 "2022-11-23T00:50:58Z")
Sascha Gallardo – September 30, 2021 You probably have been checking a Ben’s Friends community site for a while. Maybe you have been feeling some symptoms and our site came out on your online search. Or maybe you h… --- ## [A Guide to Navigating Interactions with Lupus Patients](https://forum.lifewithlupus.org/t/a-guide-to-navigating-interactions-with-lupus-patients/8610)
**Author:** [@BF\_Writer](https://forum.lifewithlupus.org/u/BF_Writer)\ **Replies:** 0\ **Last updated:** [December 10, 2023, 11:14pm UTC](https://forum.lifewithlupus.org/t/a-guide-to-navigating-interactions-with-lupus-patients/8610 "2023-12-10T23:14:55Z")
Sascha Gallardo - May 19, 2023 Lupus is a chronic condition that can affect various parts of the body, including joints, skin, kidneys, heart, and more. Characterized by unpredictable flares and remissions, lupus br… --- ## [First time posting!](https://forum.lifewithlupus.org/t/first-time-posting/8646)
**Author:** [@moja](https://forum.lifewithlupus.org/u/moja)\ **Replies:** 1\ **Last updated:** [February 13, 2025, 12:48pm UTC](https://forum.lifewithlupus.org/t/first-time-posting/8646 "2025-02-13T12:48:29Z")
Hi everyone! My name is Molly and I am currently a student at the University of Michigan! I was diagnosed with Lupus 10 days before I went to college (talk about a whirlwind of events). After my senior year of high scho… --- ## [Last Chance to Support Ben’s Friends in 2024 - Every Donation Counts!](https://forum.lifewithlupus.org/t/last-chance-to-support-ben-s-friends-in-2024-every-donation-counts/8642)
**Author:** [@Ben\_Munoz](https://forum.lifewithlupus.org/u/Ben_Munoz)\ **Replies:** 0\ **Last updated:** [December 30, 2024, 10:22pm UTC](https://forum.lifewithlupus.org/t/last-chance-to-support-ben-s-friends-in-2024-every-donation-counts/8642 "2024-12-30T22:22:35Z")
As we count down the final hours of 2024, I want to personally thank the 100+ donors who have already contributed over $27,000 to our Friends Helping Friends campaign. Your generosity is nothing short of inspiring, and … --- ## [Help Advance Lupus (SLE) Research from Home](https://forum.lifewithlupus.org/t/help-advance-lupus-sle-research-from-home/8616)
**Author:** [@ModSupport](https://forum.lifewithlupus.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [May 6, 2024, 2:34pm UTC](https://forum.lifewithlupus.org/t/help-advance-lupus-sle-research-from-home/8616 "2024-05-06T14:34:12Z")
Have you heard? Ben’s Friends has partnered with Sanguine Biosciences, a provider of at-home clinical research services, to share an at-home study opportunity for those interested in advancing lupus (SLE) research. Toge… --- ## [Looking For Your Life With Lupus Stories!](https://forum.lifewithlupus.org/t/looking-for-your-life-with-lupus-stories/8611)
**Author:** [@ModSupport](https://forum.lifewithlupus.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [January 10, 2024, 11:49pm UTC](https://forum.lifewithlupus.org/t/looking-for-your-life-with-lupus-stories/8611 "2024-01-10T23:49:03Z")
@trust\_level\_0 Dear Lupus Support Member, For over 10 years, the Ben’s Friends online rare patient communities, run & moderated by rare patients themselves, have been a source of support for many of us, living with rar… --- ## [Stopping Plaquenil](https://forum.lifewithlupus.org/t/stopping-plaquenil/2514)
**Author:** [@Louters](https://forum.lifewithlupus.org/u/Louters)\ **Replies:** 17\ **Last updated:** [July 6, 2023, 6:46pm UTC](https://forum.lifewithlupus.org/t/stopping-plaquenil/2514 "2023-07-06T18:46:58Z")
So I ran out of my plaquenil and the Rheum. that prescribed it I am no longer seeing and wont re-fill it and I dont see my new Rheum. until Decemeber 23rd. I am nervous to see what will happen. The pharmacist said there … --- ## [Michigan Rheumatologist?](https://forum.lifewithlupus.org/t/michigan-rheumatologist/8606)
**Author:** [@4kings](https://forum.lifewithlupus.org/u/4kings)\ **Replies:** 3\ **Last updated:** [July 3, 2023, 12:48pm UTC](https://forum.lifewithlupus.org/t/michigan-rheumatologist/8606 "2023-07-03T12:48:02Z")
Hi Everyone & Anyone that is taking the time to read this,thank you & I appreciate you.:blush: I truly hope all is well with all of you :heart\_hands: Hopefully someone is able to help point me in the right direction … --- ## [How do you explain to people what Lupus is and what it means](https://forum.lifewithlupus.org/t/how-do-you-explain-to-people-what-lupus-is-and-what-it-means/75)
**Author:** [@Melissa\_D\_C](https://forum.lifewithlupus.org/u/Melissa_D_C)\ **Replies:** 30\ **Last updated:** [July 2, 2023, 1:33pm UTC](https://forum.lifewithlupus.org/t/how-do-you-explain-to-people-what-lupus-is-and-what-it-means/75 "2023-07-02T13:33:30Z")
How do you explain to people what Lupus is and what it means to you??? Personally, I say “My immune system is on hype-drive. Meaning that my good cells are being attacked all the time. So when I get “sick” {which is of… --- ## [Spotlight on Our ModSupport Member: Sharon a.k.a Stoney](https://forum.lifewithlupus.org/t/spotlight-on-our-modsupport-member-sharon-a-k-a-stoney/8600)
**Author:** [@BF\_Writer](https://forum.lifewithlupus.org/u/BF_Writer)\ **Replies:** 0\ **Last updated:** [May 4, 2023, 2:26am UTC](https://forum.lifewithlupus.org/t/spotlight-on-our-modsupport-member-sharon-a-k-a-stoney/8600 "2023-05-04T02:26:56Z")
Sascha Gallardo – June 4, 2020 Providing a safe and supportive community for patients is our top priority at Ben’s Friends. We want members to freely ask questions, share opinions, and express emotions without having t… --- ## [Losing prednisone weight!](https://forum.lifewithlupus.org/t/losing-prednisone-weight/2898)
**Author:** [@Eagle41](https://forum.lifewithlupus.org/u/Eagle41)\ **Replies:** 17\ **Last updated:** [March 20, 2023, 3:33pm UTC](https://forum.lifewithlupus.org/t/losing-prednisone-weight/2898 "2023-03-20T15:33:06Z")
I was on Acthar for 3 months and prednisone for 8 mo. I ended up gaining 30 pounds. (Most of it came from the Acthar.) I have been off steroids 2 months. I have not lost even one pound! I work 45-50 hours a week on my fe… --- ## [Ben’s Friends inks partnership with ClozTalk](https://forum.lifewithlupus.org/t/ben-s-friends-inks-partnership-with-cloztalk/8590)
**Author:** [@BF\_Writer](https://forum.lifewithlupus.org/u/BF_Writer)\ **Replies:** 0\ **Last updated:** [March 20, 2023, 2:43am UTC](https://forum.lifewithlupus.org/t/ben-s-friends-inks-partnership-with-cloztalk/8590 "2023-03-20T02:43:35Z")
Sascha Gallardo – July 1, 2020 We’re excited to announce that Ben’s Friends has partnered with ClozTalk, a social impact company that helps charities raise people’s awareness of their mission. ClozTalk now designs app… --- ## [Depression and Autoimmune and Chronic Illnesses](https://forum.lifewithlupus.org/t/depression-and-autoimmune-and-chronic-illnesses/8359)
**Author:** [@Bens\_Friends](https://forum.lifewithlupus.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [November 18, 2020, 3:29pm UTC](https://forum.lifewithlupus.org/t/depression-and-autoimmune-and-chronic-illnesses/8359 "2020-11-18T15:29:00Z")
Sascha Gallardo – November 18, 2020 One of the things the Ben’s Friends team always tries to emphasize in the communities is to never to feel guilty for being depressed. Instead, members are encouraged to seek help … --- ## [Overwhelmed](https://forum.lifewithlupus.org/t/overwhelmed/8443)
**Author:** [@Mdellano1](https://forum.lifewithlupus.org/u/Mdellano1)\ **Replies:** 5\ **Last updated:** [December 20, 2022, 6:29pm UTC](https://forum.lifewithlupus.org/t/overwhelmed/8443 "2022-12-20T18:29:32Z")
Hello all, this is my first time posting here on the site. I’m not sure how to begin I guess, but just knew I needed an outlet of some kind and reassurance by joining the site that I’m not just being “dramatic” when I f… --- ## [Lupus and being transgender...?](https://forum.lifewithlupus.org/t/lupus-and-being-transgender/8553)
**Author:** [@LilMaxim](https://forum.lifewithlupus.org/u/LilMaxim)\ **Replies:** 3\ **Last updated:** [November 12, 2022, 2:30pm UTC](https://forum.lifewithlupus.org/t/lupus-and-being-transgender/8553 "2022-11-12T14:30:04Z")
I’ve had lupus for about 7 years and have been going through hormone replacement therapy for 4ish years. (oh and I’ve never gone into remission.) I have not been able to find anyone who can tell me if/how this is going t… --- ## [We're In This Together](https://forum.lifewithlupus.org/t/were-in-this-together/8556)
**Author:** [@ModSupport](https://forum.lifewithlupus.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [November 11, 2022, 1:38pm UTC](https://forum.lifewithlupus.org/t/were-in-this-together/8556 "2022-11-11T13:38:51Z")
Are you the sort of person who doesn’t like to ask for help but honestly could do with some help? Maybe the dog could do with going out for more of a walk than you can manage. Maybe you could really do with your meds p… --- ## [Does fatigue come on quickly for you?](https://forum.lifewithlupus.org/t/does-fatigue-come-on-quickly-for-you/3938)
**Author:** [@Lilac83](https://forum.lifewithlupus.org/u/Lilac83)\ **Replies:** 31\ **Last updated:** [August 26, 2022, 3:40pm UTC](https://forum.lifewithlupus.org/t/does-fatigue-come-on-quickly-for-you/3938 "2022-08-26T15:40:42Z")
I'll be fine for a couple of days and having another good day and then suddenly BAM! fatigue hits me hard and I have zero energy which turns my mood grouchy and I'm in survival mode and just want to go home to sleep. If … --- ## [Preparing for Your Doctor’s Appointment](https://forum.lifewithlupus.org/t/preparing-for-your-doctor-s-appointment/8537)
**Author:** [@BF\_Writer](https://forum.lifewithlupus.org/u/BF_Writer)\ **Replies:** 0\ **Last updated:** [August 10, 2022, 9:35am UTC](https://forum.lifewithlupus.org/t/preparing-for-your-doctor-s-appointment/8537 "2022-08-10T09:35:14Z")
Sascha Gallardo – October 13, 2020 Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we are also dealing with the Covid-19 pandemic, the challenge has been do… --- ## [Some tips on how to improve your mental and emotional health](https://forum.lifewithlupus.org/t/some-tips-on-how-to-improve-your-mental-and-emotional-health/8532)
**Author:** [@BF\_Writer](https://forum.lifewithlupus.org/u/BF_Writer)\ **Replies:** 0\ **Last updated:** [July 29, 2022, 10:11am UTC](https://forum.lifewithlupus.org/t/some-tips-on-how-to-improve-your-mental-and-emotional-health/8532 "2022-07-29T10:11:36Z")
Sascha Gallardo – June 7, 2021 Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain and fatigue, can already lower one’s mood. Add to these symptoms the finan… --- ## [Some things to understand about systemic lupus erythematosus (SLE)](https://forum.lifewithlupus.org/t/some-things-to-understand-about-systemic-lupus-erythematosus-sle/8521)
**Author:** [@BF\_Writer](https://forum.lifewithlupus.org/u/BF_Writer)\ **Replies:** 0\ **Last updated:** [June 30, 2022, 9:23am UTC](https://forum.lifewithlupus.org/t/some-things-to-understand-about-systemic-lupus-erythematosus-sle/8521 "2022-06-30T09:23:14Z")
Sascha Gallardo - April 27, 2021 Somebody close to you has recently been diagnosed with SLE, a chronic illness where the immune system attacks healthy tissues. Finally, they have found the reason behind all the sym… --- ## [Shop With AmazonSmile This Summer And Help Change Patients Lives](https://forum.lifewithlupus.org/t/shop-with-amazonsmile-this-summer-and-help-change-patients-lives/8519)
**Author:** [@Bens\_Friends](https://forum.lifewithlupus.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [June 13, 2022, 8:51pm UTC](https://forum.lifewithlupus.org/t/shop-with-amazonsmile-this-summer-and-help-change-patients-lives/8519 "2022-06-13T20:51:10Z")
Father’s Day. Graduations. All Summer Needs.:sunglasses: Do some “feel-good” shopping and change a rare disease patient’s life today. Go to smile.amazon.com Click “Get started” Once signed in, you will be prompted to… --- ## [Adderall and Lupus](https://forum.lifewithlupus.org/t/adderall-and-lupus/3727)
**Author:** [@Hannah\_M](https://forum.lifewithlupus.org/u/Hannah_M)\ **Replies:** 17\ **Last updated:** [June 7, 2022, 4:11am UTC](https://forum.lifewithlupus.org/t/adderall-and-lupus/3727 "2022-06-07T04:11:41Z")
Has anyone ever tried taking adderall for lupus fatigue and brain fog? --- ## [Learning to live with Lupus](https://forum.lifewithlupus.org/t/learning-to-live-with-lupus/8267)
**Author:** [@jlflores](https://forum.lifewithlupus.org/u/jlflores)\ **Replies:** 7\ **Last updated:** [December 6, 2021, 11:59pm UTC](https://forum.lifewithlupus.org/t/learning-to-live-with-lupus/8267 "2021-12-06T23:59:55Z")
My name is Jennifer Flores. I was diagnosed in Spring of 2017. Along with Lupus I dealing with diabetes and chronic pain from a degenerative back disease that has required three back surgeries. Between the Lupus and th… --- ## [Check out the Ben's Friends Blog](https://forum.lifewithlupus.org/t/check-out-the-bens-friends-blog/8439)
**Author:** [@Bens\_Friends](https://forum.lifewithlupus.org/u/Bens_Friends)\ **Replies:** 0\ **Last updated:** [November 30, 2021, 4:00pm UTC](https://forum.lifewithlupus.org/t/check-out-the-bens-friends-blog/8439 "2021-11-30T16:00:10Z")
Be sure and check out our Blog for the latest on Ben’s friends patient communities and the Disease/Conditions that we provide patient support for: https://blog.bensfriends.org/ [Next page](https://forum.lifewithlupus.org/latest.md?page=1)