# Newbies Guide To Lupus **URL:** https://forum.lifewithlupus.org/c/welcome/journal-articles-and-reference-materials/8.md [Latest](https://forum.lifewithlupus.org/latest.md) · [Categories](https://forum.lifewithlupus.org/categories.md) --- ## [About the Newbies Guide To Lupus category](https://forum.lifewithlupus.org/t/about-the-journal-articles-and-reference-materials-category/14)
**Author:** [@system](https://forum.lifewithlupus.org/u/system)\ **Replies:** 0\ **Last updated:** [August 26, 2016, 8:32am UTC](https://forum.lifewithlupus.org/t/about-the-journal-articles-and-reference-materials-category/14 "2016-08-26T08:32:38Z")
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more in… --- ## [A Guide to Navigating Interactions with Lupus Patients](https://forum.lifewithlupus.org/t/a-guide-to-navigating-interactions-with-lupus-patients/8610)
**Author:** [@BF\_Writer](https://forum.lifewithlupus.org/u/BF_Writer)\ **Replies:** 0\ **Last updated:** [December 10, 2023, 11:14pm UTC](https://forum.lifewithlupus.org/t/a-guide-to-navigating-interactions-with-lupus-patients/8610 "2023-12-10T23:14:55Z")
Sascha Gallardo - May 19, 2023 Lupus is a chronic condition that can affect various parts of the body, including joints, skin, kidneys, heart, and more. Characterized by unpredictable flares and remissions, lupus br… --- ## [How do you explain to people what Lupus is and what it means](https://forum.lifewithlupus.org/t/how-do-you-explain-to-people-what-lupus-is-and-what-it-means/75)
**Author:** [@Melissa\_D\_C](https://forum.lifewithlupus.org/u/Melissa_D_C)\ **Replies:** 30\ **Last updated:** [July 2, 2023, 1:33pm UTC](https://forum.lifewithlupus.org/t/how-do-you-explain-to-people-what-lupus-is-and-what-it-means/75 "2023-07-02T13:33:30Z")
How do you explain to people what Lupus is and what it means to you??? Personally, I say “My immune system is on hype-drive. Meaning that my good cells are being attacked all the time. So when I get “sick” {which is of… --- ## [Lupus Foundation of America](https://forum.lifewithlupus.org/t/lupus-foundation-of-america/26)
**Author:** [@John\_JC](https://forum.lifewithlupus.org/u/John_JC)\ **Replies:** 1\ **Last updated:** [August 29, 2017, 12:58pm UTC](https://forum.lifewithlupus.org/t/lupus-foundation-of-america/26 "2017-08-29T12:58:08Z")
Link Below: http://www.lupus.org/newsite/index.html --- ## [Lupus patient 5 years, new to group](https://forum.lifewithlupus.org/t/lupus-patient-5-years-new-to-group/6392)
**Author:** [@Lusha](https://forum.lifewithlupus.org/u/Lusha)\ **Replies:** 4\ **Last updated:** [June 16, 2017, 9:03am UTC](https://forum.lifewithlupus.org/t/lupus-patient-5-years-new-to-group/6392 "2017-06-16T09:03:37Z")
Hello. I am a 40 year old lupus patient who stumbled upon your group on accident. I am, however, grateful I did so, because it looks to be a very valuable resource. From what I remember, my diagnosis was a difficult but … --- ## [Article on Celiac Disease or allergy to Gluten](https://forum.lifewithlupus.org/t/article-on-celiac-disease-or-allergy-to-gluten/37)
**Author:** [@John\_JC](https://forum.lifewithlupus.org/u/John_JC)\ **Replies:** 10\ **Last updated:** [April 6, 2017, 4:54pm UTC](https://forum.lifewithlupus.org/t/article-on-celiac-disease-or-allergy-to-gluten/37 "2017-04-06T16:54:34Z")
Link Below: Very good article After reading this I'm trying a Gluten Free Diet, I know it won't be easy but its worth a try! http://health.ezinemark.com/celiac-disease-and-gluten-linked-to-brain-disease-by-deposi… --- ## [Young and Dating with Lupus](https://forum.lifewithlupus.org/t/young-and-dating-with-lupus/6181)
**Author:** [@Claudine](https://forum.lifewithlupus.org/u/Claudine)\ **Replies:** 1\ **Last updated:** [January 27, 2017, 2:01am UTC](https://forum.lifewithlupus.org/t/young-and-dating-with-lupus/6181 "2017-01-27T02:01:48Z")
I am in dilemma, I am in 30's have had Lupus and MCTD since my early 20's. How do you date with this issue. When do you disclose? When a person finds out I have Lupus they are in shock. I look perfectly fine, athletic, a… --- ## [The Spoon Theory](https://forum.lifewithlupus.org/t/the-spoon-theory/2996)
**Author:** [@Ann\_A](https://forum.lifewithlupus.org/u/Ann_A)\ **Replies:** 11\ **Last updated:** [October 21, 2016, 3:04pm UTC](https://forum.lifewithlupus.org/t/the-spoon-theory/2996 "2016-10-21T15:04:47Z")
http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/ My cross country trip, the death of my father, dealing with relatives, and I have a spoon deficit. --- ## [Lupus Resources](https://forum.lifewithlupus.org/t/lupus-resources/4011)
**Author:** [@BaltimoreBaby](https://forum.lifewithlupus.org/u/BaltimoreBaby)\ **Replies:** 2\ **Last updated:** [June 13, 2015, 7:03pm UTC](https://forum.lifewithlupus.org/t/lupus-resources/4011 "2015-06-13T19:03:09Z")
I thought it would be helpful for us to have a place to store quality, reliable Lupus resources we can reference in a pinch. Please feel free to add resources here. --- ## [Great Article on Understanding Someone with Chronic Illness](https://forum.lifewithlupus.org/t/great-article-on-understanding-someone-with-chronic-illness/3789)
**Author:** [@BaltimoreBaby](https://forum.lifewithlupus.org/u/BaltimoreBaby)\ **Replies:** 1\ **Last updated:** [May 27, 2015, 3:06am UTC](https://forum.lifewithlupus.org/t/great-article-on-understanding-someone-with-chronic-illness/3789 "2015-05-27T03:06:44Z")
We thought this article might be useful for some of you to share with friends and family: http://www.wikihow.com/Understand-Someone-With-Chronic-Pain Perhaps it will help you explain to the important people in your l… --- ## [Interesting article about chronic sinus infections and autoimmune diseases](https://forum.lifewithlupus.org/t/interesting-article-about-chronic-sinus-infections-and-autoimmune-diseases/3204)
**Author:** [@Roxy1](https://forum.lifewithlupus.org/u/Roxy1)\ **Replies:** 1\ **Last updated:** [March 21, 2015, 10:21pm UTC](https://forum.lifewithlupus.org/t/interesting-article-about-chronic-sinus-infections-and-autoimmune-diseases/3204 "2015-03-21T22:21:03Z")
http://www.nytimes.com/ref/health/healthguide/esn-sinusitis-ess.html I am happy that my ENT had me add baby shampoo to the sinus rinses to try to break through biofilms. She also put me on the antibiotic mentioned in t… --- ## [Interesting study from the Mayo Clinic](https://forum.lifewithlupus.org/t/interesting-study-from-the-mayo-clinic/3262)
**Author:** [@Roxy1](https://forum.lifewithlupus.org/u/Roxy1)\ **Replies:** 3\ **Last updated:** [March 21, 2015, 7:22pm UTC](https://forum.lifewithlupus.org/t/interesting-study-from-the-mayo-clinic/3262 "2015-03-21T19:22:10Z")
http://autoimmune.pathology.jhmi.edu/teachers.cfm --- ## [Interesting article](https://forum.lifewithlupus.org/t/interesting-article/3420)
**Author:** [@Roxy1](https://forum.lifewithlupus.org/u/Roxy1)\ **Replies:** 3\ **Last updated:** [August 29, 2014, 1:46pm UTC](https://forum.lifewithlupus.org/t/interesting-article/3420 "2014-08-29T13:46:34Z")
http://www.medicalnewstoday.com/releases/281091.php --- ## [August Lupus Foundation of America Newsletter](https://forum.lifewithlupus.org/t/august-lupus-foundation-of-america-newsletter/3344)
**Author:** [@system](https://forum.lifewithlupus.org/u/system)\ **Replies:** 1\ **Last updated:** [August 7, 2014, 1:22pm UTC](https://forum.lifewithlupus.org/t/august-lupus-foundation-of-america-newsletter/3344 "2014-08-07T13:22:01Z")
Can I Blame Lupus? Took the words right out of my mouth! I blame Lupus for everthing that I can! Hope this helps someone: http://www.lupus.org/magazine/entry/can-i-blame-lupus-how-to-deal-with-confusing-complicatio… --- ## [Can I Blame Lupus? How to Deal With Confusing Complications and Concerns](https://forum.lifewithlupus.org/t/can-i-blame-lupus-how-to-deal-with-confusing-complications-and-concerns/3341)
**Author:** [@Ann\_A](https://forum.lifewithlupus.org/u/Ann_A)\ **Replies:** 0\ **Last updated:** [August 6, 2014, 1:23am UTC](https://forum.lifewithlupus.org/t/can-i-blame-lupus-how-to-deal-with-confusing-complications-and-concerns/3341 "2014-08-06T01:23:39Z")
http://www.lupus.org/magazine/entry/can-i-blame-lupus-how-to-deal-with-confusing-complications-and-concerns?utm\_source=Newsletter+8-5-14&utm\_campaign=Newsletter+8-5-14&utm\_medium=email The latest issues of the newslett… --- ## [Great animation to explain autoimmunity!](https://forum.lifewithlupus.org/t/great-animation-to-explain-autoimmunity/3289)
**Author:** [@Sheila\_W](https://forum.lifewithlupus.org/u/Sheila_W)\ **Replies:** 3\ **Last updated:** [July 29, 2014, 12:29am UTC](https://forum.lifewithlupus.org/t/great-animation-to-explain-autoimmunity/3289 "2014-07-29T00:29:26Z")
This is well done, easy to understand. Great for patients and those who care about patients with autoimmune disease. Feel free to share in other groups of other autoimmune diseases. https://www.youtube.com/watch?v=yZ6wW… --- ## [Protein Found in Lupus may lead to cure!](https://forum.lifewithlupus.org/t/protein-found-in-lupus-may-lead-to-cure/3264)
**Author:** [@Sheila\_W](https://forum.lifewithlupus.org/u/Sheila_W)\ **Replies:** 6\ **Last updated:** [July 16, 2014, 4:38pm UTC](https://forum.lifewithlupus.org/t/protein-found-in-lupus-may-lead-to-cure/3264 "2014-07-16T16:38:40Z")
Click on colored sentence below to see the article. 'Research Uncovers How Key Controller Protein Is Activated' in Autoimmune Diseases, Cancer, viral infections, etc. --- ## [Rheumatologist's explaination of how cold weather affects us!](https://forum.lifewithlupus.org/t/rheumatologists-explaination-of-how-cold-weather-affects-us/961)
**Author:** [@SK1](https://forum.lifewithlupus.org/u/SK1)\ **Replies:** 5\ **Last updated:** [October 11, 2012, 4:23pm UTC](https://forum.lifewithlupus.org/t/rheumatologists-explaination-of-how-cold-weather-affects-us/961 "2012-10-11T16:23:11Z")
This info is from a Rheumatologist at University of Specialty Clinics, Univ of S Carolina. This is a good explaination of barometric pressure. Arthritis and Raynauds are mentioned. http://specialtyclinics.med.sc.edu/jo… --- ## [Lupus Research Report](https://forum.lifewithlupus.org/t/lupus-research-report/266)
**Author:** [@John\_JC](https://forum.lifewithlupus.org/u/John_JC)\ **Replies:** 0\ **Last updated:** [October 28, 2011, 5:16pm UTC](https://forum.lifewithlupus.org/t/lupus-research-report/266 "2011-10-28T17:16:47Z")
Genetic Profiling Can Predict Some Lupus Manifestations People with lupus can experience a wide variety of disease-related manifestations, including nephritis (kidney inflammation) and skin rashes. The variability of the… --- ## [Vitamin D – Are You Getting Enough to Stop Muscle Pain](https://forum.lifewithlupus.org/t/vitamin-d-are-you-getting-enough-to-stop-muscle-pain/248)
**Author:** [@Ann\_A](https://forum.lifewithlupus.org/u/Ann_A)\ **Replies:** 0\ **Last updated:** [October 17, 2011, 2:03am UTC](https://forum.lifewithlupus.org/t/vitamin-d-are-you-getting-enough-to-stop-muscle-pain/248 "2011-10-17T02:03:00Z")
http://lifeafterpain.com/info/muscles/vitamin-d-daily-requirement/ The life after pain site sells a trigger point program - which i am not trying to get anyone to buy. But sometimes it also has some interesting informa… --- ## [Recent Research on Vitamin D and SLE](https://forum.lifewithlupus.org/t/recent-research-on-vitamin-d-and-sle/232)
**Author:** [@Ann\_A](https://forum.lifewithlupus.org/u/Ann_A)\ **Replies:** 0\ **Last updated:** [October 13, 2011, 7:09am UTC](https://forum.lifewithlupus.org/t/recent-research-on-vitamin-d-and-sle/232 "2011-10-13T07:09:08Z")
If your rheumatologist is not already monitoring your vitamin D level, then the next time you have blood drawn, please consider asking for a check of your blood serum level of vitamin D. A number of people on this forum… --- ## [Lupus Foundation Of America Advances Clinical Research With Launch Of New Online Registry](https://forum.lifewithlupus.org/t/lupus-foundation-of-america-advances-clinical-research-with-launch-of-new-online-registry/31)
**Author:** [@John\_JC](https://forum.lifewithlupus.org/u/John_JC)\ **Replies:** 0\ **Last updated:** [October 29, 2010, 1:08am UTC](https://forum.lifewithlupus.org/t/lupus-foundation-of-america-advances-clinical-research-with-launch-of-new-online-registry/31 "2010-10-29T01:08:11Z")
Link below: http://www.medicalnewstoday.com/articles/206006.php