# Support **URL:** https://forum.lifewithlupus.org/c/support/9.md [Latest](https://forum.lifewithlupus.org/latest.md) · [Categories](https://forum.lifewithlupus.org/categories.md) --- ## [About the Support category](https://forum.lifewithlupus.org/t/about-the-support-category/15)
**Author:** [@system](https://forum.lifewithlupus.org/u/system)\ **Replies:** 1\ **Last updated:** [September 1, 2017, 10:57pm UTC](https://forum.lifewithlupus.org/t/about-the-support-category/15 "2017-09-01T22:57:47Z")
Having a bad day? Are you flaring? Have your friends and family found their earplugs? Well, this is the place to let it rip! We are here to listen and we get what you are going through. The is is a safe place to share yo… --- ## [Lupus and being transgender...?](https://forum.lifewithlupus.org/t/lupus-and-being-transgender/8553)
**Author:** [@LilMaxim](https://forum.lifewithlupus.org/u/LilMaxim)\ **Replies:** 3\ **Last updated:** [November 12, 2022, 2:30pm UTC](https://forum.lifewithlupus.org/t/lupus-and-being-transgender/8553 "2022-11-12T14:30:04Z")
I’ve had lupus for about 7 years and have been going through hormone replacement therapy for 4ish years. (oh and I’ve never gone into remission.) I have not been able to find anyone who can tell me if/how this is going t… --- ## [Finding out I was a crappy mother](https://forum.lifewithlupus.org/t/finding-out-i-was-a-crappy-mother/8336)
**Author:** [@mbaer2007](https://forum.lifewithlupus.org/u/mbaer2007)\ **Replies:** 3\ **Last updated:** [September 11, 2020, 5:53pm UTC](https://forum.lifewithlupus.org/t/finding-out-i-was-a-crappy-mother/8336 "2020-09-11T17:53:04Z")
I have an 18 year old daughter who just left for college last week. I recognized that she suffered from severe anxiety and depression early on- well before I started having serious lupus symptoms or was diagnosed. It d… --- ## [Muscle spasms](https://forum.lifewithlupus.org/t/muscle-spasms/7926)
**Author:** [@Reniac](https://forum.lifewithlupus.org/u/Reniac)\ **Replies:** 8\ **Last updated:** [February 13, 2020, 5:19pm UTC](https://forum.lifewithlupus.org/t/muscle-spasms/7926 "2020-02-13T17:19:06Z")
I was in so much pain and swollen I went to the ER. They took me back right away. The Nurse was in the middle of hooking me onto the heart monitor when she said she’ll be right back the doctor walks in sits down folds hi… --- ## [Defeated](https://forum.lifewithlupus.org/t/defeated/7935)
**Author:** [@LadyBloom908](https://forum.lifewithlupus.org/u/LadyBloom908)\ **Replies:** 10\ **Last updated:** [September 27, 2019, 3:38pm UTC](https://forum.lifewithlupus.org/t/defeated/7935 "2019-09-27T15:38:09Z")
Hello, This is my first post, I have been a lurker-gathering info and it has helped.Today is a bad day and I need to at least get it all out. This coming Halloween will be 3 years since my diagnoses of Lupus. I also ha… --- ## [How to deal with emotional disturbances](https://forum.lifewithlupus.org/t/how-to-deal-with-emotional-disturbances/7907)
**Author:** [@BabyGirlAshlee](https://forum.lifewithlupus.org/u/BabyGirlAshlee)\ **Replies:** 1\ **Last updated:** [June 27, 2019, 11:03am UTC](https://forum.lifewithlupus.org/t/how-to-deal-with-emotional-disturbances/7907 "2019-06-27T11:03:01Z")
So I was diagnosed in December and my doctor keeps telling me to lower my stress. That stress triggers lupus. And if I walnut you get it under control I need to stress less. Now telling me all this makes me stress so muc… --- ## [Haven't posted in a few years](https://forum.lifewithlupus.org/t/havent-posted-in-a-few-years/7502)
**Author:** [@Trisha1](https://forum.lifewithlupus.org/u/Trisha1)\ **Replies:** 3\ **Last updated:** [May 16, 2019, 5:29am UTC](https://forum.lifewithlupus.org/t/havent-posted-in-a-few-years/7502 "2019-05-16T05:29:20Z")
Hello everyone, I was diagnosed June 1, 2012. I’ve been in and out of remission several times. I’m not taking any meds for Lupus currently, only meloxicam for pain. My rheumatologist left the practice, and I saw someo… --- ## [Just a rant](https://forum.lifewithlupus.org/t/just-a-rant/7424)
**Author:** [@Pollen\_Grains](https://forum.lifewithlupus.org/u/Pollen_Grains)\ **Replies:** 0\ **Last updated:** [March 5, 2019, 3:49pm UTC](https://forum.lifewithlupus.org/t/just-a-rant/7424 "2019-03-05T15:49:08Z")
Do you know what it feels like when something is constantly rubbing on your skin. So much that you get accustomed to it. Not even actively realising that it exists anymore. But back in your head you are aware of the cons… --- ## [Learning how to cope](https://forum.lifewithlupus.org/t/learning-how-to-cope/6650)
**Author:** [@audreyann17](https://forum.lifewithlupus.org/u/audreyann17)\ **Replies:** 11\ **Last updated:** [March 31, 2018, 2:20am UTC](https://forum.lifewithlupus.org/t/learning-how-to-cope/6650 "2018-03-31T02:20:37Z")
Hi. Like many/all of you, I was diagnosed with lupus. Looking back it makes sense that I probably developed lupus around the age of 15 but I wasn’t diagnosed until the age of 19. I’m 20 now and it hasn’t gotten any easie… --- ## [Horrible, mean Pain management doc](https://forum.lifewithlupus.org/t/horrible-mean-pain-management-doc/3886)
**Author:** [@Kittenchops](https://forum.lifewithlupus.org/u/Kittenchops)\ **Replies:** 15\ **Last updated:** [February 2, 2018, 9:00pm UTC](https://forum.lifewithlupus.org/t/horrible-mean-pain-management-doc/3886 "2018-02-02T21:00:07Z")
I went to a new pain management doctor yesterday and she was so mean, so offensive I just couldn't believe it. She treated me like I was a drug addict and was just there trying to get pills. I swear in all my years I h… --- ## [Just a little of your time](https://forum.lifewithlupus.org/t/just-a-little-of-your-time/6674)
**Author:** [@nur](https://forum.lifewithlupus.org/u/nur)\ **Replies:** 4\ **Last updated:** [November 8, 2017, 5:58pm UTC](https://forum.lifewithlupus.org/t/just-a-little-of-your-time/6674 "2017-11-08T17:58:54Z")
hello! I was diagnosed to have lupus in november last year (2016) and this thing is no joke. I have a moody personality before this but can be the crazy and funny girl around my friends but the time i was diagnosed was … --- ## [End of my rope](https://forum.lifewithlupus.org/t/end-of-my-rope/6658)
**Author:** [@janelle](https://forum.lifewithlupus.org/u/janelle)\ **Replies:** 7\ **Last updated:** [October 27, 2017, 10:56am UTC](https://forum.lifewithlupus.org/t/end-of-my-rope/6658 "2017-10-27T10:56:24Z")
Jesus is either gonna help me or not I was so sick last night I wanted to go to e.r because my rhuemys are so confused about my illness. I get rashes eye pain pain with deep breath and my legs are crumbling. My husband a… --- ## [Hypocrite](https://forum.lifewithlupus.org/t/hypocrite/6472)
**Author:** [@janelle](https://forum.lifewithlupus.org/u/janelle)\ **Replies:** 4\ **Last updated:** [October 23, 2017, 9:53am UTC](https://forum.lifewithlupus.org/t/hypocrite/6472 "2017-10-23T09:53:35Z")
Funny about 9 months ago I thought I had everything under control. My lupus was healed blah blah blah. Then I got a flare so freaken bad. Been since December. Can't walk fall over all kinds of stuff never thought lupus w… --- ## [When strangers know you better](https://forum.lifewithlupus.org/t/when-strangers-know-you-better/6624)
**Author:** [@Pollen\_Grains](https://forum.lifewithlupus.org/u/Pollen_Grains)\ **Replies:** 0\ **Last updated:** [September 28, 2017, 12:58pm UTC](https://forum.lifewithlupus.org/t/when-strangers-know-you-better/6624 "2017-09-28T12:58:28Z")
Waking up early has its own perks. You don’t have to fake the smile, hide the limp or fix your posture for other members of the family. Just drag yourself out, crawl to the bathroom, get ready for work and leave before a… --- ## [I would rather have cancer](https://forum.lifewithlupus.org/t/i-would-rather-have-cancer/4188)
**Author:** [@Idioskosmos](https://forum.lifewithlupus.org/u/Idioskosmos)\ **Replies:** 35\ **Last updated:** [August 12, 2017, 4:17pm UTC](https://forum.lifewithlupus.org/t/i-would-rather-have-cancer/4188 "2017-08-12T16:17:06Z")
I was on facebook, and saw a post from a man whose wife had just been given the all clear from her oncologist. She had been diagnosed with cancer in Aug 2015. Five months ago. My first thought was "wow - I wish I ha… --- ## [Am I crazy](https://forum.lifewithlupus.org/t/am-i-crazy/3324)
**Author:** [@rebecca1](https://forum.lifewithlupus.org/u/rebecca1)\ **Replies:** 30\ **Last updated:** [June 22, 2017, 3:55am UTC](https://forum.lifewithlupus.org/t/am-i-crazy/3324 "2017-06-22T03:55:38Z")
I feel like maybe I have a pain med problem that im not noticing. I went to my doctor for a regular check up and he said that I use my pain meds too much and that lupus is not as painful as I think it is. He told me that… --- ## [Prayeeee](https://forum.lifewithlupus.org/t/prayeeee/6473)
**Author:** [@janelle](https://forum.lifewithlupus.org/u/janelle)\ **Replies:** 0\ **Last updated:** [June 13, 2017, 1:33am UTC](https://forum.lifewithlupus.org/t/prayeeee/6473 "2017-06-13T01:33:31Z")
My mind. I keep trying to figure things out it's taking over my mind --- ## [Pray for me](https://forum.lifewithlupus.org/t/pray-for-me/6341)
**Author:** [@janelle](https://forum.lifewithlupus.org/u/janelle)\ **Replies:** 4\ **Last updated:** [June 9, 2017, 8:03pm UTC](https://forum.lifewithlupus.org/t/pray-for-me/6341 "2017-06-09T20:03:54Z")
I'm at my last straw here. Im an untreated lupus mctd patient with low glomeruonephritis and high ana, and, inflammation of bloodvessels.high lymph and wbc This has been going on for 5 months! of no treatment. Finally my… --- ## [Blisters on scalp](https://forum.lifewithlupus.org/t/blisters-on-scalp/4194)
**Author:** [@Peaches](https://forum.lifewithlupus.org/u/Peaches)\ **Replies:** 6\ **Last updated:** [June 7, 2017, 4:57pm UTC](https://forum.lifewithlupus.org/t/blisters-on-scalp/4194 "2017-06-07T16:57:01Z")
Am I the only one who has sores on my scalp? I have been to several doctors and it always comes back to lupus related. I have lost so much hair. It is depressing to deal with all the skin problems. Does anyone else have … --- ## [Can't take anymore](https://forum.lifewithlupus.org/t/cant-take-anymore/6444)
**Author:** [@janelle](https://forum.lifewithlupus.org/u/janelle)\ **Replies:** 3\ **Last updated:** [June 3, 2017, 7:08am UTC](https://forum.lifewithlupus.org/t/cant-take-anymore/6444 "2017-06-03T07:08:49Z")
I see a new doctor tomorrow. I'm terrified now of doctors. I can't hear the Lord's voice all I hear is pain meds are BAD pain meds are BAD. So my doctor doesn't up them but I'm in a really bad flare and can't walk on my … --- ## [How do you to make your spouse or partner understand?](https://forum.lifewithlupus.org/t/how-do-you-to-make-your-spouse-or-partner-understand/245)
**Author:** [@some\_days\_hope\_some](https://forum.lifewithlupus.org/u/some_days_hope_some)\ **Replies:** 12\ **Last updated:** [April 24, 2017, 6:06am UTC](https://forum.lifewithlupus.org/t/how-do-you-to-make-your-spouse-or-partner-understand/245 "2017-04-24T06:06:41Z")
Ok first I want to start out saying I love my husband with all my heart and he is a good man. He just does not seem to understand what I go through when I feel so bad. I cannot count how many times he has said that he … --- ## [Doctors don't care](https://forum.lifewithlupus.org/t/doctors-dont-care/6312)
**Author:** [@janelle](https://forum.lifewithlupus.org/u/janelle)\ **Replies:** 12\ **Last updated:** [March 5, 2017, 7:52am UTC](https://forum.lifewithlupus.org/t/doctors-dont-care/6312 "2017-03-05T07:52:01Z")
I hate my lupus doctor I hate they are so lazy they don't no what it's like to have a chronic illness they just think it's something that's uncomfortable.they have driven my on sane to the point I need anxiety meds they … --- ## [How to explain to family lupus](https://forum.lifewithlupus.org/t/how-to-explain-to-family-lupus/6296)
**Author:** [@thenewme](https://forum.lifewithlupus.org/u/thenewme)\ **Replies:** 4\ **Last updated:** [February 26, 2017, 6:28am UTC](https://forum.lifewithlupus.org/t/how-to-explain-to-family-lupus/6296 "2017-02-26T06:28:55Z")
Although they feel that Ive been dealing with SLE lupus for years, I have only been diagnosed in the last 9 months. My lupus, POTS, sjogrens is with many symptoms presently. Affecting my CNS, heart, lungs, skin and kid… --- ## [Crisis/Support Line](https://forum.lifewithlupus.org/t/crisis-support-line/6253)
**Author:** [@ModSupport](https://forum.lifewithlupus.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [January 4, 2017, 7:31pm UTC](https://forum.lifewithlupus.org/t/crisis-support-line/6253 "2017-01-04T19:31:42Z")
Are you in crisis, or maybe even feeling suicidal? Do need someone to listen and to support you right now? Take a deep breath, and find the helpline in your country: USA https://suicidepreventionlifeline.org/ Canada … --- ## [Post Something Positive Here Each Day](https://forum.lifewithlupus.org/t/post-something-positive-here-each-day/3796)
**Author:** [@BaltimoreBaby](https://forum.lifewithlupus.org/u/BaltimoreBaby)\ **Replies:** 33\ **Last updated:** [December 27, 2016, 3:37pm UTC](https://forum.lifewithlupus.org/t/post-something-positive-here-each-day/3796 "2016-12-27T15:37:29Z")
Please tell me AT LEAST one POSITIVE thing that occurred during the course of your day(or night). It can be an action or event, a thought, emotion, or a sight, smell, taste, sound or physical sensation. ONLY POSITIVES, N… --- ## [Feeling very alone](https://forum.lifewithlupus.org/t/feeling-very-alone/6171)
**Author:** [@Queenpink](https://forum.lifewithlupus.org/u/Queenpink)\ **Replies:** 5\ **Last updated:** [October 23, 2016, 8:16pm UTC](https://forum.lifewithlupus.org/t/feeling-very-alone/6171 "2016-10-23T20:16:48Z")
I am feeling alone and depressed because of my pain and other symptoms.I get no support from anyone and trying to get people to understand what im going through is very hard.I once tried suicide because of the pain now … --- ## [New to Lupus and struggling](https://forum.lifewithlupus.org/t/new-to-lupus-and-struggling/6188)
**Author:** [@sickntiredno1getsit](https://forum.lifewithlupus.org/u/sickntiredno1getsit)\ **Replies:** 2\ **Last updated:** [October 21, 2016, 3:19pm UTC](https://forum.lifewithlupus.org/t/new-to-lupus-and-struggling/6188 "2016-10-21T15:19:40Z")
My lupus story begins like most I suspect. Thinking back I believe my symptoms began around age 18 or 19. I had several odd symptoms that would come and go for years. Strange rashes on my back, and on my legs especially… --- ## [Being driven bananas](https://forum.lifewithlupus.org/t/being-driven-bananas/4217)
**Author:** [@Queenpink](https://forum.lifewithlupus.org/u/Queenpink)\ **Replies:** 5\ **Last updated:** [July 27, 2016, 8:28pm UTC](https://forum.lifewithlupus.org/t/being-driven-bananas/4217 "2016-07-27T20:28:45Z")
I am going bonkers with the pain now its summer here in ireland.I can't stick it at all the humidty is driving me insane with the pain fatigue and lung issues.I dont know what to do to make me feel better.The plaquenil … --- ## [Work stress](https://forum.lifewithlupus.org/t/work-stress/4216)
**Author:** [@Northrock](https://forum.lifewithlupus.org/u/Northrock)\ **Replies:** 4\ **Last updated:** [July 22, 2016, 12:38am UTC](https://forum.lifewithlupus.org/t/work-stress/4216 "2016-07-22T00:38:48Z")
So I have had to request changes to my job due to lupus for the first time. It's a big deal for me because I want to be able to do anything I could before my diagnosis. I am extremely stubborn. The truth is my doctors wo… --- ## [Help to relieve stress?](https://forum.lifewithlupus.org/t/help-to-relieve-stress/4214)
**Author:** [@Momma\_Bear](https://forum.lifewithlupus.org/u/Momma_Bear)\ **Replies:** 7\ **Last updated:** [July 14, 2016, 9:19pm UTC](https://forum.lifewithlupus.org/t/help-to-relieve-stress/4214 "2016-07-14T21:19:43Z")
Has anyone found a good outlet to assist in controlling, reducing, eliminating stress? My Sjogrens, Raynauds Phenomenon, and SLE are aggravated by stress and I need help. I'm the type of person who takes on "the world ar… [Next page](https://forum.lifewithlupus.org/c/support/9.md?page=1)